Showing titles in People with Disabilities

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in. Soon— but without knowing exactly when—he will likely have no vision left. Full of apprehension but also dogged curiosity, Leland embarks on a sweeping exploration of the state of being that awaits him.

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments, and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant 16-year-old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.

On January 21, 2008, a routine medical procedure left Mallory paralyzed from her waist down. Less than two years later, Mallory had broken eight world records, and by the 2012 Paralympic Games, she held fifteen world records and thirty-four American records. Two years after that, a devastating fall severely damaged her left arm. But despite all of the hardships that Mallory faced, she was sure about one thing: she refused to give up.

This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.

At first glance, Josh Hanagarne seems an improbable librarian. He stands 6'7", competes in strongman contests, and was diagnosed in high school with Tourette's syndrome. But books are his first love - Josh's earliest memories involve fantastic adventures between the pages of Gulliver’s Travels and a passionate infatuation with Fern from Charlotte’s Web. Everything in Josh’s life - from his Mormon upbringing, to finally finding love, to learning to control his tics through lifting - circles back to a close connection with books.

The Anti-Ableist Manifesto defines ableism as discrimination in favor of non-disabled people and helps listeners understand that ending discrimination begins with self-reflection. Tiffany Yu celebrates the power of stories and lived experiences to foster the proximity, intimacy, and humanity of disability identities that have far too often been “othered” and rendered invisible.

Temple Grandin, Ph.D., is a gifted animal scientist who has designed one third of all the livestock-handling facilities in the United States. She also lectures widely on autism - because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us.

What is intimacy? More than sex, more than romantic love, the pieces in this stunning and illuminating new anthology offer broader and more inclusive definitions of what it can mean to be intimate with another person. Explorations of caregiving, community, access, and friendship offer us alternative ways of thinking about the connections we form with others—a vital reimagining in an era when forced physical distance is at times a necessary norm.

When Jade unexpectedly suffered from a rare condition which left her paralysed and in a wheelchair at the age of twelve, she never imagined that she'd one day meet her husband John and that together they would take to social media to dispel the stigma surrounding disability, one story at a time. From questions about suffering and sex to family and faith, Jade and John speak honestly and humorously about life as an inter-able couple.

Thousands of soldiers die every year to defend their country. United States Army Staff Sergeant Travis Mills was sure that he would become another statistic when, during his third tour of duty in Afghanistan, he was caught in an IED blast four days before his 25th birthday. Against the odds, he lived, but at a severe cost - Travis became one of only five soldiers from the wars in Afghanistan and Iraq to survive a quadruple amputation.

Paige Layle was normal. She lived in the countryside with her mom, dad, and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer “why” in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control.

In 2019, Greta Morgan was on the rise. She had toured with Vampire Weekend, collaborated with Jenny Lewis, and garnered critical acclaim with her own musical projects. But in March 2020, after contracting COVID-19, she was diagnosed with spasmodic dysphonia, a neurological disorder with no known cure that left her unable to sing. Her once crystalline voice now reduced to a hush, she saw her career come to an abrupt standstill.

The GIs called her Joey. Hundreds owed their lives to the tiny Filipina who stashed explosives in spare tires, tracked Japanese troop movements, and smuggled maps of fortifications across enemy lines. As the Battle of Manila raged, Josefina Guerrero walked through gunfire to bandage wounds and close the eyes of the dead. Her valor earned her the Medal of Freedom, but what made her a good spy was also destroying her: leprosy, which so horrified the Japanese they refused to search her.

Erik Weihenmayer is the first and only blind person to summit Mount Everest, the highest point on Earth. Descending carefully, he and his team picked their way across deep crevasses and through the deadly Khumbu Icefall; when the mountain was finally behind him, Erik knew he was going to live. His expedition leader slapped him on the back and said something that would affect the course of Erik’s life: “Don’t make Everest the greatest thing you ever do.” No Barriers is Erik’s response to that challenge.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem-cell transplant surgery could restore May's vision.

They all thought he was gone. But he was alive and trapped inside his own body for ten years. In January 1988 Martin Pistorius, aged 12, fell inexplicably sick. First, he lost his voice and stopped eating. Then he slept constantly and shunned human contact. Doctors were mystified. Within 18 months, he was mute and wheelchair-bound. Martin's parents were told an unknown degenerative disease left him with the mind of a baby and less than two years to live.

Diagnosed with pathological demand avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol. By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the 'scenic route' in order to flourish and reach their full potential.