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In this special episode recorded live at the International Stroke Conference (ISC25), we dive into the American Stroke Association’s pilot program, Stroke Connections. This initiative is designed to amplify the voices of stroke survivors and caregivers, ensuring their lived experiences are heard at the conference—a group that has historically been underrepresented in stroke research and advocacy.

Join me as I chat with Stephanie Mohl, National Vice President of the American Stroke Association, and two inspiring stroke survivors and advisory committee members, Gracie Doran and Michelle Ballasiotes (previous guest on Episode 55). We discuss how the Stroke Connections pilot is bridging the gap between research and lived experience, and the importance of community and advocacy for improving stroke care.

While the program is still in its early stages, the goal is to secure sponsors to expand and make survivor perspectives a permanent part of future conferences.

Takeaways from this episode:

• The International Stroke Conference is a critical platform for both research and survivor voices.
• Incorporating survivor experiences into research and conferences can lead to more impactful stroke care and advocacy.
• The Stroke Connections program provides an opportunity to amplify the voices of survivors and caregivers in shaping stroke care and research.

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Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Welcome to Episode 78 of the Know Stroke Podcast. On this episode co-host David Dansereau is running solo without his broadcasting partner Mike Garrow, who is traveling to LA to attend the 2025 International Stroke Conference ( and maybe he’ll even fit in a Lakers game while there! )

Mike will be taking part in advisory board meetings for the American Heart and Stroke Association, sharing his valuable care provider lived experience and advocacy perspectives.

For our listeners attending ISC, please introduce yourself to Mike!

On this first episode of 2025, David gives a quick update to why he hasn’t been behind the microphone for a bit on the show, and also covers his own ‘magic wand’ answer to our somewhat famous question we’ve asked every guest on our show.

David also reveals the origin story behind the magic wand question, how it's tied to research initiated while at the International Stroke Conference (ISC), his current book project (Closure After Stroke), and what all the knowledge gained from these answers reveals about changes needed to the stroke care pathway. Here are some of the common themes around changes needed in stroke care (see linked post for details):

• Enhanced Public Education and Awareness
• Streamlined Emergency Response Systems
• Comprehensive Post-Stroke Rehabilitation
• Equitable Access to Care
• Advancements in Research and Technology
• Patient and Care Partner Access and Voice

Also David thanks one of our show supporters who reached out to him recently, politely inquiring, ‘are you still doing the show??’

So hopefully this episode answers that question too and with it ensures your continued needed support! Help Us -Be a Show Supporter!

Show Mentions:

More on our famous podcast question

The Slinky Effect in Stroke Recovery

The Real Problem with Stroke

Support Our Show!
Thank you for helping us to continue to make great content. We appreciate your generosity!

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Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

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Website | Linkedin | Twitter | YouTube | Facebook

Know Stroke Podcast Disclaimer:
Our podcast and media advertising services are for informational purposes only and do not constitute the practice of medical advice, diagnosis or treatment.

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In this episode, we explore the critical role of social determinants of health (SDOH) in stroke prevention and recovery with an incredible panel of experts from the Bugher Collaborative. Our guests include:

• Dr. Nirupama Yechoor, Principal Investigator at Mass General Hospital and leader of the Bugher Collaborative.
• Dr. Devanshi Choksi, neurologist and colleague of Dr. Yechoor at Mass General.
• Rachel Kitagawa and Sofia Constantinescu, neurology postgraduates from Yale University.

We dive into:

• The Bugher Collaborative: Its mission, the partnership between Mass General, Yale, and UCSF, and how it addresses equity in stroke care.
• Research Highlights: Insights into how socioeconomic status, access to care, and community support affect stroke outcomes.
• Yale’s Findings: Key demographic differences uncovered through their research and what they reveal about health equity.
• The Road Ahead: Next steps for the collaborative and their vision for improving stroke care.
• Magic Wand Wishes: What each guest would change to improve stroke prevention and recovery if they had unlimited resources.

This conversation builds on our discussion of the 2024 ASA Stroke Prevention Guidelines, offering a deeper dive into the intersection of health equity and stroke care.

Resources and Links:

• Learn more about the Bugher Collaborative
• Dr. Nirupama Yechoor’s Bio
• Dr. Devanshi Choksi's Bio
• Rachel Kitagawa’s Bio
• Sofia Constantinescu’s Bio

Support Our Show!
Thank you for helping us to continue to make great content. We appreciate your generosity!

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Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

Connect with Us and Share our Show on Social:
Website | Linkedin | Twitter | YouTube | Facebook

Know Stroke Podcast Disclaimer:
Our podcast and media advertising services are for informational purposes only and do not constitute the practice of medical advice, diagnosis or treatment.

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In this episode of the Know Stroke Podcast, hosts Mike Garrow and David Dansereau welcome Vineet Johnson, a licensed physical therapist and entrepreneur, to explore the transformative potential of neuroplasticity in stroke rehabilitation. Vineet discusses the development of his iRegain device, highlighting its focus on gamification, patient engagement, and home therapy. The conversation delves into the challenges of funding, the importance of clinical trial access, and success stories from patients. Vineet envisions a future where affordable and accessible technologies drive recovery.

Episode highlights:

• Discover how over 32 years of expertise in physical therapy and neuroscience shaped Vineet Johnson's innovative approach to stroke recovery.
• Learn about the MyHand™ System, a revolutionary device that leverages neuroplasticity to help stroke and brain injury survivors regain hand function.
• Understand how gamification boosts patient motivation and engagement during therapy.
• Explore how data tracking drives measurable progress and improved clinical outcomes.
• Hear about the challenges healthcare startups face, from funding to raising awareness of clinical trials.
• Get insights into iRegained’s mission to make rehabilitation accessible, affordable, and effective for all.

Learn more about IRegained LLC here - https://iregained.ca/index.php
Connect with Vineet - vineet@iregained.ca

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Thank you for helping us to continue to make great content. We appreciate your generosity!

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Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

Connect with Us and Share our Show on Social:
Website | Linkedin | Twitter | YouTube | Facebook

Know Stroke Podcast Disclaimer:
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In this episode of the Know Stroke Podcast, Rachel Forman, a stroke neurologist at Yale, discusses the latest American Stroke Association guidelines for stroke prevention. The conversation covers various topics including the importance of social determinants of health, dietary recommendations, exercise, blood pressure control, and the role of GLP-1 medications. Rachel emphasizes the need for individualized care and community engagement to effectively address stroke risks and improve patient outcomes. She also highlights the significance of mental health support for stroke survivors and the importance of awareness around gender-specific risks.

Takeaways

• Social determinants of health are critical stroke risk factors.
• Exercise is essential for stroke prevention and recovery.
• Dietary changes should be realistic and gradual for patients.
• Blood pressure control is vital for preventing strokes.
• GLP-1 medications can aid in stroke prevention but should be combined with lifestyle changes.
• Women face unique stroke risks, especially during pregnancy.
• Community engagement is necessary for effective stroke prevention.
• Mental health support is crucial for stroke survivors.
• Healthcare providers must tailor recommendations to individual patient needs.
• Education and awareness are key in reducing stroke incidence.

Support Our Show!
Thank you for helping us to continue to make great content. We appreciate your generosity!

Support the show

Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

Connect with Us and Share our Show on Social:
Website | Linkedin | Twitter | YouTube | Facebook

Know Stroke Podcast Disclaimer:
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Episode 74 Guest Lester Leung,MD- Founder Headway Neurology,LLC
In Season 2 Episode 7 we first interviewed Lester Y. Leung, MD, MSc of Tufts MC.
Dr Leung is a Board Certified Vascular & Neneral Neurologist, Assistant Professor of Neurology, Director, Comprehensive Stroke Center at Tufts Medical Center and Director and Founder, Stroke and Young Adults (SAYA) Program.

In this episode we caught up with Dr. Leung again to learn about the launch of his new Advancing Stroke Recovery Program (ASR) at Headway Neurology,LLC

Headway Neurology LLC is a neurology micropractice based in Newton, MA. Dr. Leung has been serving Eastern Massachusetts and surrounding states since 2015. Headway Neurology operates as a direct care (self pay) practice in order to improve access and scheduling flexibility and minimize overhead (providing a more personal experience, unfettered by corporate healthcare).
Learn more: https://www.headwayneurology.com/
Show Mentions:
MedRhythms
Vivistim

Support Our Show!
Thank you for helping us to continue to make great content. We appreciate your generosity!

Support the show

Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

Connect with Us and Share our Show on Social:
Website | Linkedin | Twitter | YouTube | Facebook

Know Stroke Podcast Disclaimer:
Our podcast and media advertising services are for informational purposes only and do not constitute the practice of medical advice, diagnosis or treatment.

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In this SnapCast, David and Mike discuss their transition to a new recording studio and their plans for the future. They also talk about Mike's appointment to an advisory committee for the American Heart and American Stroke Association. The hosts mention their upcoming break and the possibility of replaying previous episodes during that time. They express gratitude for the feedback received on the Vivistim series and encourage listeners to stay active and participate in community events.

Takeaways

• The hosts have transitioned to a new recording studio, which will make post-production and social media sharing easier.
• Mike has been appointed to an advisory committee for the American Heart and American Stroke Association, where he hopes to bring a survivor and caregiver perspective.
• The hosts will be taking a break over the summer but will continue to release episodes, including survivor interviews and replays of previous episodes.
• They express gratitude for the feedback received on the Vivistim series and encourage listeners to stay active and participate in community events.

Support the show

Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

Connect with Us and Share our Show on Social:
Website | Linkedin | Twitter | YouTube | Facebook

Know Stroke Podcast Disclaimer:
Our podcast and media advertising services are for informational purposes only and do not constitute the practice of medical advice, diagnosis or treatment.

Get Our Podcast News Updates on Substack

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Episode 73: We’re excited to continue our partnership with Vivistim as part of a Know Stroke Podcast spotlight series for May! Today's interview is with Tim Blinten, a young stroke survivor from Massachusetts who shares his story and a #strokethriver and real world experience with Vivistim.

In our first episode of this series we spoke with Teresa Jacobson Kimberley, PT, PhD, FAPTA. She walked us through the science behind vagus nerve stimulation and her research findings with the Vivistim technology.

Thank you again Vivistim for your support in this stroke awareness month spotlight series!

You can get in touch with Tim here:

• Email - tblinten@starsofma.org
• Instagram - @timblinten

Disclaimer: “The MicroTransponder® Vivistim® Paired VNS™ System is intended to be used to stimulate the vagus nerve during rehabilitation therapy in order to reduce upper extremity motor deficits and improve motor function in chronic ischemic stroke patients with moderate to severe arm impairment. Do not use if you have had a bilateral or left cervical vagotomy. Risks may include, but are not limited to pain after surgery, hoarseness, bruising, swelling, coughing and throat irritation. While not observed in the Vivistim studies, infection leading to explant is a risk associated with any device surgery. For full safety information, please see www.vivistim.com/safety. Individual results may vary.”

Regulatory note: In 2021, the U.S. Food and Drug Administration (FDA) approved paired vagus nerve stimulation (VNS) for patients with moderate-to-severe upper extremity motor impairments following chronic ischemic stroke.

Support Our Show!
Thank you for helping us to continue to make great content. We appreciate your generosity!

Support the show

Show credits:
Music intro credit to Jake Dansereau. Our intro welcome is the voice of Caroline Goggin, a stroke survivor and our first podcast guest! Please listen to her inspiring story on Episode 2 of the podcast.

Connect with Us and Share our Show on Social:
Website | Linkedin | Twitter | YouTube | Facebook

Know Stroke Podcast Disclaimer:
Our podcast and media advertising services are for informational purposes only and do not constitute the practice of medical advice, diagnosis or treatment.

Get Our Podcast News Updates on Substack