The Invisible Kingdom
Reimagining Chronic Illness
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Narrated by:
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Meghan O'Rourke
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By:
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Meghan O'Rourke
About this listen
A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases
A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.
Drawing on her own medical experiences, as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color.
Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
©2022 Meghan O'Rourke (P)2022 Penguin AudioListeners also enjoyed...
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Critic reviews
“An authentically original voice and, perhaps more startlingly, an authentically original perspective….The book is not only a memoir of her illness, but also a document of years of research.” —Andrew Solomon, National Book Award-winning author of The Noonday Demon, in The New York Times Book Review
“The Invisible Kingdom is an important and powerful book in many ways, but perhaps its most valuable contribution is the way it articulates the loneliness and frustration of having symptoms that superficially resemble the pains and pressures of contemporary life in the United States while being much more severe.”—The Nation
“[O’Rourke] gives shape and color to the invisible life of patients whom society has failed. She offers hope for patient-driven change. Most important, she provides an account that many will be able to relate to—a ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal
Featured Article: Best of the Year—The 15 Best Bios and Memoirs of 2022
There are few stories more compelling or more intimately told than those soul-baring memoirs that seek not just to recount the experiences of one's own life, but to draw some greater commentary on the big existential questions. What does it mean to be human? What is our purpose in being here? How much of who we are is purely self-determined? Exceptional in both their prose and narration, these listens represent a few of the year's best memoirs.
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- By S. Frank on 11-12-11
By: Gary Greenberg
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Peace, Love & Healing
- Bodymind Communication & the Path to Self-Healing: An Exploration
- By: Bernie S. Siegel
- Narrated by: Bernie S. Siegel
- Length: 2 hrs and 56 mins
- Unabridged
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A classic of patient empowerment, Peace, Love & Healing offered the revolutionary message that we have an innate ability to heal ourselves. Now proven by numerous scientific studies, the connection between our minds and our bodies has been increasingly accepted as fact throughout the mainstream medical community. In a new introduction, Dr. Bernie Siegel highlights current research on the relationships among consciousness, psychosocial factors, attitude, and immune function.
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horrible horrible
- By Honestly on 02-09-15
By: Bernie S. Siegel
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Chronic
- The Hidden Cause of the Autoimmune Pandemic and How to Get Healthy Again
- By: Steven Phillips MD, Dana Parish, Kristin Loberg
- Narrated by: Teri Schnaubelt, Thomas Allen
- Length: 10 hrs and 42 mins
- Unabridged
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In this timely book, Steven Phillips, MD, and his former patient, Sony singer-songwriter Dana Parish, reveal striking evidence that a broad range of common infections, from COVID-19 to Lyme and many others, cause a variety of autoimmune, psychiatric, and chronic conditions. Chronic explores the science behind what makes them difficult to diagnose and treat, debunks widely held beliefs by doctors and patients alike, and provides solutions that empower sufferers to reclaim their lives.
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A must read book
- By Amazon Customer on 03-01-21
By: Steven Phillips MD, and others
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Like a Mother
- A Feminist Journey Through the Science and Culture of Pregnancy
- By: Angela Garbes
- Narrated by: Roxana Ortega, Angela Garbes
- Length: 7 hrs
- Unabridged
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What to listen to after What to Expect.... A badass, feminist, and personal deep-dive into the science and culture of pregnancy and early motherhood that debunks myths and dated assumptions, offering guidance and camaraderie to women navigating one of the biggest and most profound changes in their lives. Like most first-time mothers, Angela Garbes was filled with questions when she became pregnant. What exactly is a placenta? How does a body go into labor? Why is breast best? What are the signs and effects of postpartum depression?
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Microchimerism - interesting at first, then profoundly healing
- By Emily Virgil on 09-10-18
By: Angela Garbes
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Falling into the Fire
- A Psychiatrist's Encounters with the Mind in Crisis
- By: Christine Montross
- Narrated by: Christine Montross
- Length: 8 hrs and 56 mins
- Unabridged
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Falling into the Fire is psychiatrist Christine Montross's thoughtful investigation of the gripping patient encounters that have challenged and deepened her practice. Beautifully written, deeply felt, Falling into the Fire brings us inside the doctor’s mind, illuminating the grave human costs of mental illness as well as the challenges of diagnosis and treatment. At once rigorous and meditative, Falling into the Fire is an intimate portrait of psychiatry, allowing the reader to witness the humanity of the practice and the enduring mysteries of the mind.
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Buy this book! and READ it
- By joyce on 08-15-13
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Ten Drugs
- How Plants, Powders, and Pills Have Shaped the History of Medicine
- By: Thomas Hager
- Narrated by: Angelo Di Loreto
- Length: 8 hrs and 39 mins
- Unabridged
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Beginning with opium, the “joy plant,” which has been used for 10,000 years, Thomas Hager tells a captivating story of medicine. His subjects include the largely forgotten female pioneer who introduced smallpox inoculation to Britain, the infamous knockout drops, the first antibiotic, which saved countless lives, the first antipsychotic, which helped empty public mental hospitals, Viagra, statins, and the new frontier of monoclonal antibodies. This is a deep, wide-ranging, and wildly entertaining book.
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Engrossing to physicians & lay persons alike
- By C. White on 03-08-19
By: Thomas Hager
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Heart
- A History
- By: Sandeep Jauhar
- Narrated by: Patrick Lawlor
- Length: 8 hrs and 43 mins
- Unabridged
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For centuries, the human heart seemed beyond our understanding: an inscrutable shuddering mass that was somehow the driver of emotion and the seat of the soul. As cardiologist and best-selling author Sandeep Jauhar tells in The Heart, it was only recently that we demolished age-old taboos and devised the transformative procedures that changed the way we live. Deftly alternating between historical episodes and his own work, Jauhar tells the colorful and little known story of the doctors who risked their careers and the patients who risked their lives to know and heal our most vital organ.
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Fascinating Insight
- By Ironcharles on 10-27-18
By: Sandeep Jauhar
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The Neuroscientist Who Lost Her Mind
- My Tale of Madness and Recovery
- By: Barbara K. Lipska, Elaine McArdle - contributor
- Narrated by: Emma Powell
- Length: 6 hrs and 54 mins
- Unabridged
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In 2015, Barbara Lipska - a leading expert on the neuroscience of mental illness - was diagnosed with melanoma that had spread to her brain. Within months, her frontal lobe, the seat of cognition, began shutting down. She descended into madness, exhibiting dementia- and schizophrenia-like symptoms that terrified her family and coworkers. But miraculously, the immunotherapy her doctors had prescribed worked quickly. Just eight weeks after her nightmare began, Lipska returned to normal. With one difference: she remembered her brush with madness with exquisite clarity.
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Be Prepared To Feel Insane--
- By Gillian on 04-11-18
By: Barbara K. Lipska, and others
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Human Heart, Cosmic Heart
- A Doctor's Quest to Understand, Treat, and Prevent Cardiovascular Disease
- By: Dr. Thomas Cowan
- Narrated by: David Drummond
- Length: 4 hrs and 18 mins
- Unabridged
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While serving with the Peace Corps in Swaziland, Thomas Cowan encountered the work of Rudolf Steiner and Weston A. Price - two men whose ideas would fascinate and challenge him for decades to come. Both drawn to the art of healing and repelled by the way medicine was - and continues to be - practiced in the United States, Cowan returned from Swaziland, went to medical school, and established a practice.
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Worthless
- By Martin on 11-04-16
By: Dr. Thomas Cowan
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A Nation in Pain
- Healing Our Biggest Health Problem
- By: Judy Foreman
- Narrated by: Karen White
- Length: 14 hrs and 57 mins
- Unabridged
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Published in partnership with the International Association for the Study of Pain, A Nation in Pain offers a sweeping, deeply researched account of the chronic pain crisis, from neurobiology to public policy, and presents practical solutions that are within our grasp today. Drawing on both her personal experience with chronic pain and her background as an award-winning health journalist, she guides us through recent scientific discoveries, including genetic susceptibility to pain.
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Broad but superficial.
- By J. P. Murphy on 07-03-15
By: Judy Foreman
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The Heart Healers
- The Misfits, Mavericks, and Rebels Who Created the Greatest Medical Breakthrough of Our Lives
- By: James Forrester MD
- Narrated by: Jonathan Yen
- Length: 15 hrs and 45 mins
- Unabridged
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At one time heart disease was a death sentence. By the middle of the 20th century, it was killing millions, and, as with the Black Death centuries before, physicians stood helpless. Visionaries, though, had begun to make strides earlier. On September 7, 1895, Ludwig Rehn successfully sutured the heart of a living man with a knife wound to the chest for the first time.
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Great review of the landmark achievements in Cardiology.
- By Trauma NP on 12-14-15
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Counterclockwise
- Mindful Health and the Power of Possibility
- By: Ellen J. Langer
- Narrated by: Sandra Burr
- Length: 7 hrs and 10 mins
- Unabridged
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If we could turn back the clock psychologically, could we also turn it back physically? For more than 30 years, award-winning social psychologist Ellen Langer has studied this provocative question, and now has a conclusive answer: opening our minds to what's possible, instead of clinging to accepted notions about what's not, can lead to better health at any age.
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Surprisingly disappointing
- By Stephen on 06-23-09
By: Ellen J. Langer
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The Last Best Cure
- My Quest to Awaken the Healing Parts of My Brain and Get Back My Body, My Joy, and My Life
- By: Donna Jackson Nakazawa
- Narrated by: Karen Saltus
- Length: 9 hrs and 18 mins
- Unabridged
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One day Donna Jackson Nakazawa found herself lying on the floor to recover from climbing the stairs. That’s when it hit her. She was managing the symptoms of the autoimmune disorders that had plagued her for a decade, but she had lost her joy. As a science journalist, she was curious to know what mind-body strategies might help her. As a wife and mother she was determined to get her life back. Over the course of one year, Nakazawa researches and tests a variety of therapies including meditation, yoga, and acupuncture to find out what works.
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Amazing book, but struggled with the voice.
- By erin norton on 01-05-18
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One Doctor
- Close Calls, Cold Cases, and the Mysteries of Medicine
- By: Brendan Reilly
- Narrated by: Rob Shapiro
- Length: 15 hrs and 7 mins
- Unabridged
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An epic story told by a unique voice in American medicine, One Doctor describes life-changing experiences in the career of a distinguished physician. In riveting first-person prose, Dr. Brendan Reilly takes us to the front lines of medicine today.
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Simply Brilliant
- By Jan on 06-20-14
By: Brendan Reilly
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In 1850s South Carolina, an enslaved woman named Rose faced a crisis: the imminent sale of her daughter Ashley. Thinking quickly, she packed a cotton bag for her with a few items, and, soon after, the nine-year-old girl was separated from her mother and sold. Decades later, Ashley’s granddaughter Ruth embroidered this family history on the sack in spare, haunting language. Historian Tiya Miles carefully traces these women’s faint presence in archival records, and, where archives fall short, she turns to objects, art, and the environment to write a singular history of slavery.
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Fresh out of medical residency, Dr. Benjamin Gilmer joined a rural North Carolina clinic only to find that its previous doctor shared his last name. Dr. Vince Gilmer was loved and respected by the community—right up until he strangled his ailing father and then returned to the clinic for a regular week of work. Vince’s eventual arrest for murder shocked his patients. How could their beloved doctor be capable of such violence? The deeper Benjamin looked into Vince’s case, the more he became obsessed with discovering what pushed a good man toward darkness.
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Compelling Story Turned Tedious
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Fascinated from an early age by the natural world in general and ants in particular, Edward Osborne Wilson's field work on them and on all social insects has vastly expanded our knowledge of their many species and fascinating ways of being. This work led to his 1975 book Sociobiology, which created an intellectual firestorm from his contention that all animal behavior, including that of humans, is governed by the laws of evolution and genetics. Subsequently, Wilson has become a leading voice on the crucial importance to all life of biodiversity.
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In this boldly optimistic debut memoir, Hayley Arceneaux details how she overcame seemingly insurmountable odds to grab hold of a life greater than she’d ever imagined. With her signature upbeat messaging, Arceneaux recounts her odyssey, from her cancer diagnosis at age ten and the yearlong treatment that inspired her goal of working with pediatric cancer patients, to living through her father’s terminal cancer diagnosis, to getting her lifelong dream job at St. Jude Children’s Research Hospital as a physician assistant.
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Inheritance
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Inheritance is an audiobook about secrets - secrets within families, kept out of shame or self-protectiveness; secrets we keep from one another in the name of love. It is the story of a woman's urgent quest to unlock the story of her own identity, a story that has been scrupulously hidden from her for more than 50 years, years she had spent writing brilliantly, and compulsively, on themes of identity and family history.
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Author makes too much out of too little...
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Unvarnished
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One of the most accurate accounts of being behind a bar
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Stephen Hawking
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One of the most influential physicists of our time, Stephen Hawking touched the lives of millions. Recalling his nearly two decades as Hawking’s collaborator and friends, Leonard Mlodinow brings this complex man into focus in a unique and deeply personal portrayal. We meet Hawking the genius, who pours his mind into uncovering the mysteries of the universe - ultimately formulating a pathbreaking theory of black holes that reignites the discipline of cosmology and paves the way for physicists to investigate the origins of the universe in completely new ways.
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A Beautiful Book!
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I Cried to Dream Again
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There is perhaps no crime more disturbing than the abuse of a child—and no court cases as upsetting as those in which juveniles who have faced abuse are tried for fighting back. In this gripping memoir Sara Kruzan, a survivor of childhood abuse and sex trafficking, tells the honest, disturbing, and ultimately empowering story of her journey from abuse to incarceration without parole for killing her abuser to finally gaining her liberation.
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A True Warrior
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How Far to the Promised Land
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For much of his life, Esau McCaulley was taught to see himself as an exception: someone who, through hard work, faith, and determination, overcame childhood poverty, anti-Black racism, and an absent father to earn a job as a university professor and a life in the middle class.
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An excellent story of Redemption
- By James Carmichael on 09-23-23
By: Esau McCaulley
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Becoming Dr. Q
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Today he is known as Dr. Q, an internationally renowned neurosurgeon and neuroscientist who leads cutting-edge research to cure brain cancer. But not too long ago, he was Freddy, a 19-year-old undocumented migrant worker toiling in the fields of Central California. Alfredo Quiñones-Hinojosa tells his amazing life story - from his impoverished childhood in the tiny village of Palaco, Mexico, to his harrowing border crossing and his transformation from illegal immigrant to American citizen and gifted student at the University of California at Berkeley and at Harvard Medical School.
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Thank Heaven for Mexican Immigrants
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Chasing Hope
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Since 1984, Nicholas Kristof has worked almost continuously for The New York Times as a reporter, foreign correspondent, bureau chief, and now columnist, becoming one of the foremost reporters of his generation. Here, he recounts his event-filled path from a small-town farm in Oregon to every corner of the world. This is a candid memoir of vulnerability and courage, humility and purpose, mistakes and learning—a singular tale of the trials, tribulations, and hope to be found in a life dedicated to the pursuit of truth.
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inspirational
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What listeners say about The Invisible Kingdom
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- Sarah Weeks
- 04-24-22
Chronic illness
The author doesn’t pull any punches. Chronic illness is awful and victories are rare. I’m not sure I would recommend this book to someone with a chronic illness but I would surely recommend it to friends and family of those with a chronic illness- especially those with long COVID, ME-CFS, Lyme disease, and autoimmune diseases. I’m glad that I listened to the audiobook and that I didn’t read the book jacket - I listened based on a friend’s recommendation.
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4 people found this helpful
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- Mark
- 06-13-23
Knowledge is power!
Nobody should judge anyone’s illness. Doctors are not the know all of our bodies; trust ourselves
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- Natalie Bester
- 01-25-23
Insight into auto-immunity disease
Meghan’s journey through the jungle of symptoms, traditional and non-traditional medical treatments and experiences gave me a better understanding of my own and family members’ fight against auto-immune disorders. Thank you.
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- HP
- 02-03-23
Comforting, Validating with Fact Finding Reports
Thank you Meghan O'Rourke for your travel log and destination IK journal entries. As a fellow IK explorer, and now a guide for advanced hikers, you had me laughing and crying as so many of your expressions mirror my feelings and experience. One obstacle Ii haven't overcome on this adventure is finding the words to convey my own perspective. Thank you for giving me a better handle on the language and introducing new idioms to me. I hope all those struggling to accept their current quality of life while staying hopeful and motivated enjoy this book as thoroughly as I did. @hp_wellnesscoach for @chronicwellnesscollective I'd love to meet you for a Washington hike and see the whales.
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- Rebecca
- 10-14-23
So informative!
I loved everything! As someone with an autoimmune condition, I learned so much from this book
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- Jessica
- 10-24-23
Such an insightful book
I loved this book, anyone who suffers from chronic illness or has loved ones who do should read this book.
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- Kristy Johnson
- 01-27-24
I was healthy until a head injury! Eds and ptsd and TBI…
Loved how you came to a place of functioning again. I have had fits and starts. The grief is real. I hope I find cures too.
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- Niko
- 03-23-22
Excellent account of the chronic illness odyssey
I both read and listened to this. It was read by the author. It was a great account of the journey of discovering, managing, naming, and coming to terms with being sick in today’s medical system designed so much around acute care. She gave words to so many things I haven’t been able to. Worth it for those with chronic health conditions, especially ones such as Ehlers-Danlos, POTS, long COVID, Lyme, and other poorly understood conditions. Also very worthwhile if you are a healthcare provider. I think this would help convey the patient experience of navigating a complex healthcare system with complex, chronic, and/or poorly understood medical needs. Very important, affirming book for me.
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- Mary Brooks
- 07-10-23
Resonated!!!
So strange the very few bad reviews. I don’t know how anyone who has ever struggled with chronic illness doesn’t relate to this even if only some of it. For me it was just about all of it. I’ve done it all as well for my MS diagnosis. Mines been such a similar path on every level. I thought for sure I’d be totally healed, but I’m still a “spoonie” who lives in pain everyday and has to manage this. I’ve had bouts of being about 75% better but then it doesn’t take much to “trigger” me. It’s a real bummer. Only thing I was shocked by was the amount of times she mentioned having active EBV but yet none of the doctors connected that. That’s my belief. And maybe why she does still struggle. In the MS world it’s now being fully recognized the connection between the 2. I believe that will continue with other conditions as well. Regardless, thank you to Megan for her vulnerability and sharing her story. I got sick around same time as her and there were no books or support groups like there is now.
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- thatfaithbrady
- 12-20-22
I see myself
I see myself in this book and have been able to prepare for my appointment with a functional NP. I am so glad I found this book. I recommend it to anyone with unexplained health issues or someone you know.
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