We hope you enjoy the 2025 WHAD panel featuring Erica Arnaud, Brandon Tornes, and Brittany Hunter hosted by Ben. Thank you to our panel sponsor, Syntis Bio!

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

Check out Syntis Bio!

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What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In the thirty eighth episode of HC&U, we interview Andreana Lanpouthakoun.

Andreana is a Cobalamin G patient. Andreana and I discuss her journey to diagnosis including some brain and nervous system difficulties experienced after her late onset Cobalamin G.

During Lindsey's Low Pro Bitesss, we talk about cabbage steaks.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In the thirty seventh episode of HC&U, we interview Jessie and Trace Fordham.

Trace is a Cobalamin C patient. Trace, his mom, and I discuss Trace's journey to diagnosis including some brain and nervous system difficulties.

During Lindsey's Low Pro Bitesss, we talk about jackfruit pot roast.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Vegan Shepherd's Pie

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In the thirty sixth episode of HC&U, we interview Dr. Curtis Coughlin, genetic counselor, PhD researcher, and associate professor at the University of Colorado.

We discuss the importance of genetic testing and the role it plays in metabolic disorders.

During Lindsey's Low Pro Bitesss, we talk about Lindsey's cream cheese and tomato pasta.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Vegan Shepherd's Pie

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In this bonus episode of HC&U, we interview Joy Brown whose daughter, Ari, is a classical HCU patient.

We discuss Ari's homocystinuria journey and the implications of a late diagnosis.

During Lindsey's Low Pro Snacksss, we talk about Trader Joe's Grainless Tortilla Chips.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Ari's Story

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In the thirty fifth episode of HC&U, we interview Yasenia Castro whose sister, Enelcita,is an HCU patient.

We discuss Enelcita's diagnosis journey and the behavioral symptoms that arose throughout this time. We also talk about the progress Enelcita has made since her diagnosis.

During Lindsey's Low Pro Bitesss, we talk about vegan shepherd's pie.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

Vegan Shepherd's Pie

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In the thirty fourth episode of HC&U, we interview Laurie Bonucci whose son, Joe, is a Classical HCU patient.

We discuss Joe's delayed diagnosis and the impact that had on his life. We also talk about the awesome successes Joe has had throughout his HCU journey.

During Lindsey's Low Pro Bitesss, we talk about one of Ben's favorite dishes, veggie pizza.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

In the thirty third episode of HC&U, we interview Holly Fulginiti whose husband Chris was diagnosed with homocystinuria.

We discuss the Chris's long journey to a diagnosis and the role Holly played in advocating for Chris.

During Lindsey's Low Pro Bitesss, we talk about a great Thanksgiving side, veggie casserole.

Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

Check out HCU Network America!

HC&U on Facebook

Find Our Low Protein Ideas on Instagram!

HC&U on Twitter

HCU Network America on Twitter

What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

Share your NBS story with HCUNA!

#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u