Bonus Episode with Joy Brown
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Bonus Episode with Joy Brown
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In this bonus episode of HC&U, we interview Joy Brown whose daughter, Ari, is a classical HCU patient.
We discuss Ari's homocystinuria journey and the implications of a late diagnosis.
During Lindsey's Low Pro Snacksss, we talk about Trader Joe's Grainless Tortilla Chips.
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What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!
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Ari's Story
#homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u