HC&U Podcast Por Ben and Lindsey Massengale arte de portada

HC&U

HC&U

De: Ben and Lindsey Massengale
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This podcast is meant to be a resource for patients and caregivers dealing with the metabolic disorder, homocystinuria- also known as HCU. Arte Comida y Vino Hygiene & Healthy Living
Episodios
  • Bonus Episode 2025 WHAD Panel
    May 23 2025

    We hope you enjoy the 2025 WHAD panel featuring Erica Arnaud, Brandon Tornes, and Brittany Hunter hosted by Ben. Thank you to our panel sponsor, Syntis Bio!

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    Check out Syntis Bio!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Más Menos
    1 h y 7 m
  • Episode 38 with Andreana Lanpouthakoun
    Apr 24 2025

    In the thirty eighth episode of HC&U, we interview Andreana Lanpouthakoun.

    Andreana is a Cobalamin G patient. Andreana and I discuss her journey to diagnosis including some brain and nervous system difficulties experienced after her late onset Cobalamin G.

    During Lindsey's Low Pro Bitesss, we talk about cabbage steaks.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Más Menos
    20 m
  • Episode 37 with Jessie and Trace Fordham
    Mar 27 2025

    In the thirty seventh episode of HC&U, we interview Jessie and Trace Fordham.

    Trace is a Cobalamin C patient. Trace, his mom, and I discuss Trace's journey to diagnosis including some brain and nervous system difficulties.

    During Lindsey's Low Pro Bitesss, we talk about jackfruit pot roast.

    Please share the podcast and give us a 5 star rating and review! Email us at podcast@hcunetworkamerica.org!

    Check out HCU Network America!

    HC&U on Facebook

    Find Our Low Protein Ideas on Instagram!

    HC&U on Twitter

    HCU Network America on Twitter

    What's your newborn screening story? Diagnosed at birth? Not screened? Missed? Let us know through the Homocystinurias Data Collection Program powered by Rare-X!

    Share your NBS story with HCUNA!

    Vegan Shepherd's Pie

    #homocystinuria #hcu #metabolicdisorder #hcu #classicalhomocystinuria #hcunetworkamerica #hcunetworkaustralia #patientadvocacy #hcandu #hc&u

    Más Menos
    39 m
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