Disabled Child

For parents of disabled children, navigating the systems, services, and supports is a daunting, and often overwhelming, task. No one explains to parents how to figure out the complex medical, educational, and social service systems essential to their child’s success. Over and over, parents are being asked to reinvent the exact same wheels.

An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.

You couldn't really tell about Mama's brain just from looking at her, but it was obvious as soon as she spoke. She had a high voice, like a little girl's, and she only knew 23 words. I know this for a fact, because we kept a list of the things Mama said tacked to the inside of the kitchen cabinet. Most of the words were common ones, like good and more and hot, but there was one word only my mother said, soof.

Aidan Thomas is miserable. And it's much more than the strange nightmares he's been having. Just when life seemed to be coming together for Aidan, his parents suddenly move the family across the country to take care of his wheelchair-bound grandfather. When strange events begin to occur, Aidan is drawn into his grandfather's basement where he discovers three ancient scrolls and an invitation to another world. No longer confined to the realm of his own imagination, Aidan embarks on an adventure where he joins them in the struggle between good and evil.

Step into a family that believes wellness and potential are their little son's birthright. Even though he has acute and mysterious developmental problems, even though his doctors advise only patience and acceptance, parents Judy and Steve plan to bring about a full recovery, one way or another.

The story of little Amy Bac and her courageous battle against a rare disease as told by us - her parents. Amy fought this disease with grace and with courage as her parents faced a stalker meant to bring more harm to their innocent little child. Together, strong in their faith - Amy's parents would fight for their child's very life while their daughter's love for them never faltered. Three months after Amy's death on Valentine's day - Chad and Christy would receive the final autopsy report from Beth Isreal Hospital - Harvard University's Neuro-pathologist: Purkinje cell loss, severe, with ...

In Chasing the Intact Mind, Lutz traces the history of the intact mind concept, explaining how it influences current policy and practice affecting those with autism.

Sadie Wynn doesn't want a new life; her old one suits her just fine. But times are hard in drought-plagued Missouri, and Daddy thinks they'll be better off in Texas. Sadie hates this strange new place, where even children must work at the cannery to help make ends meet and people are rude to her disabled father. Yet when trouble comes, it is the kindness of these new neighbors that helps the family make it through.

"Wanted...a mail order GROOM, who loves children, 2 boys and 1 adorable little girl. Their mother wouldn't mind if you loved her too. I am a 33-year-old woman with long strawberry-blonde hair. I have a home and farm that could use a man's touch. We need you to be honest, loving and caring, and I can't think of a better Christmas gift than YOU for me and the kids. We are in Laramie, Wyoming...and need a commitment as soon as possible!" Christmas was only three weeks away, and Duane Wilson had sent a telegram back to Ellen explaining that he had been injured in the Civil war and walked with a...

Each of us live, grow and spend time in the space of time we call LIFE. Sometimes we’re on top of the mountain and life can’t get any better, and other times we greatly struggle as we walk through challenging valleys. For these times, we must put our complete trust in the Almighty God who can sustain us through every situation we face. God’s Will for our lives oftentimes is very different from the path we laid out. In this book, you will read about how we survived the struggles with raising our handicapped son alongside his older brother. You will discover personal ...

Starting college is an exciting and daunting prospect - but for students with disabilities, the process of enrolling and participating in classes comes with unique challenges. Millions of parents each year face the perplexing, sometimes contradictory policies of colleges and universities when it comes to disability accommodations. Packed with relevant information about university policies, legal rights, and accessibility options, you'll find the answers to your most pressing questions about your child's college experience.

Owen-known to his family as "little buddy" or "Little B"-has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi-an adorable Anatolian Shepherd puppy-was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

In The Hardest Hardest Job, Atkins-Griffith makes room for the “dark side” of disability parenting, without seeing this as diametrically opposed to boundless love for your child. Amanda takes parents through the different challenging phases in their child’s life, covering everything from the frustration of school advocacy to navigating your child’s adolescence to setting them up for their future without you.

Born in Ghana, West Africa, with one deformed leg, he was dismissed by most people - but not by his mother, who taught him to reach for his dreams. As a boy, Emmanuel hopped to school more than two miles each way, learned to play soccer, left home at age 13 to provide for his family, and, eventually, became a cyclist. He rode an astonishing 400 miles across Ghana in 2001, spreading his powerful message: Disability is not inability. Today, Emmanuel continues to work on behalf of the disabled.

In this biography anthology, meet 34 artists, thinkers, athletes and activists with disabilities, from past and present. From Frida Kahlo to Stephen Hawking, find out how these iconic figures have overcome obstacles, owned their differences and paved the way for others by making their bodies and minds work for them.

When life gives you lemons, you need hope. And a way to handle them. Because how you approach, process, and transform life's difficulties makes all the difference, especially for parents facing the sometimes sour experiences of raising special needs children with developmental, behavioral, and/or health needs. Structured around the steps of a recipe for making lemonade, emotional stories from special needs parents, including the author, are woven together with practical strategies from a Christian world view. The result is a transformational, uplifting, virtual support group that will ...

Born with a hole in his heart that required invasive surgery when he was only three months old, Quinn Bradlee suffered from a battery of illnesses - seizures, migraines, fevers - from an early age. But it wasn't until he was 14 that Bradlee was correctly diagnosed with Velo-Cardio-Facial Syndrome (VCFS), a widespread, little-understood disorder that is expressed through a wide range of physical ailments and learning disabilities.

Hannah, Maria, and Seb are at the World Championships in Tokyo, bonding over their excitement at watching their favourite athletes compete. But Jesse Marks, a star runner on the US relay team has had his gold medal stolen! The sport park is alive with gossip and as the three new friends begin to investigate, several suspects begin to emerge. With time running out before the final race is run, can the detectives uncover who is out to sabotage the team?

Navigating a Life with Disability? Raising a Special Needs (or whatever you're calling, today) Child? Read This: A Pathway Guide Through Adversity with Quiet Candor and Humor (because you're gonna need it!)... Disability: An Anecdotal Field Guide for the Rest of Us offers firsthand wisdom and practical tips for navigating life with a disability. Drawing on her own experiences as a woman with muscular dystrophy, Tracee Garner covers topics from advocacy to employment, mental health to emergency preparedness. Written in an engaging conversational tone, this “field guide” shares key ...