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In this episode, we are talking to Daniel DeFabio, who co-founded the Disorder Channel, the Rare Disease Film Festival, and also works as a community manager for Global Genes. Daniel and I discuss his background in designing games, creating media, and how the birth of his son Lucas, who was born with a rare disease called Menkes Disease, helped him and his wife figure out what really matters in their lives.

Daniel's empathy, creativity, and openness shine in this episode. It's another terrific example of how the difficulties we experience around disability or disease is a both/and experience, filled with joy, difficulties, and moments that help you understand what gives life meaning and value.

You can learn more about Daniel here:

https://globalgenes.org/2022/04/22/tell-your-story-daniel-defabiorare-dad-filmmaker-advocate/

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Millions Lost The Unrealized Potential of Entrepreneurship and Disability

We often read that people with a disability are especially good at solving problems, have a surplus of resilience, and utilize soft skills–like empathy–to better adapt to the world. If solving problems, resilience, and soft skills–like empathy–are common and requisite traits for entrepreneurs, why are so few people with a disability entrepreneurs, or working with entrepreneurs? What biases and narratives still exist that continue leaving people with a disability out of these opportunities? And what can we do to shift these narratives so that more companies recognize the latent and untapped potential in the disability community to start businesses or help businesses thrive? Entrepreneurs with a disability share their stories, as a way to shed light on the millions of people who are facing unnecessary roadblocks that often prevent them from realizing their true entrepreneurial potential and contributing their genius to the world.

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The Nuance of Disability: “Because of,” NOT “In Spite Of”

A film director and producer, along with a writer, share their stories as creatives who embraced their disability and made a conscious choice to flourish because of it, not in spite of it. As a result, their work is now reclaiming the narrative around disability and portraying it not as a burden, but instead, simply as another essential consideration within which to work, much like a budget or a guideline. When reframed like this, disability changes from an afterthought or a legal requirement to a welcome and helpful element that, along with others, guides the ingenuity, design, beauty, and usefulness of the end result because it tells a better story from all angles.