Rare Care Podcast

By: Rare Care Podcast
  • Summary

  • Rare Disease Advisor's Rare Care Podcast features exclusive interviews with experts and stakeholders from the rare disease community.
    Copyright © 2022 Haymarket Media, Inc. All Rights Reserved
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Episodes
  • 157: An Interview With Andrea Renzi, a Patient Advocate for Women Affected by HDFN
    Feb 12 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Andrea Renzi, a New Hampshire mother and patient advocate whose family has been affected by hemolytic disease of the fetus and newborn (HDFN).

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    12 mins
  • 156: An Interview With Dr. James Bussel on Fetal and Neonatal Alloimmune Thrombocytopenia (FNAIT)
    Feb 5 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews James Bussel, MD, emeritus professor of pediatrics, medicine, and obstetrics and gynecology at New York's Weill Cornell Medicine. The topic of their discussion is nipocalimab as a potential treatment for fetal and neonatal alloimmune thrombocytopenia (FNAIT).

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    13 mins
  • 155: An Interview With Rigoberto Garcia, Executive Director of the Hemophilia Foundation of Southern California
    Jan 31 2025

    Larry Luxner, senior correspondent for Rare Disease Advisor, interviews Rigoberto Garcia, executive director of the Hemophilia Foundation of Southern California, about the difficulty minorities—especially undocumented Hispanics—have in accessing treatment for their bleeding disorders.

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    15 mins

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