• Episode 54: Joanne Paquette - Ollier's Disease

  • Jan 15 2025
  • Length: 35 mins
  • Podcast

Episode 54: Joanne Paquette - Ollier's Disease

  • Summary

  • Ollier's disease has shaped Joanne's life since infancy. Her story is one of resilience, adaptation, and hope, as she recounts the challenges of undergoing numerous surgeries, navigating family dynamics, and finding ways to thrive despite her condition. Our conversation dives into Joanne's work as the founder of RAREsies, her mission to support those with rare diseases, and her advocacy for education and awareness. Through her words, Joanne radiates a spirit of determination and a belief in the power of human connection. As she shares her struggles and triumphs, she offers profound insights into living with a rare disease and how one can turn adversity into strength.

    The song that Joanne chose is Love Shack by the B-52's.

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