Social Disabilities

Imagine if you were to lose your sight? Would it feel like the end of everything worthwhile? There is a way forward. Once you realise that blindness is a word and not a sentence, life takes on a new perspective. There are ways to thrive with vision loss. This book reveals how to turn such a life-challenge into a lifestyle you can fully manage and enjoy.

Meg Zucker was born with one finger on each hand, shortened forearms, and one toe on each misshapen foot, caused by a genetic condition called ectrodactyly. She would eventually pass this condition on to her two sons, and, along with her husband, raise them and their adopted daughter, who has her own invisible differences. Born of the family’s hard-won experiences, this book offers invaluable advice on raising confident, empathetic, and resilient children who succeed, not despite but because of their differences.

Prize-winning journalist and the coauthor of smash New York Times best seller I Am Malala, Christina Lamb now tells the inspiring true story of another remarkable young hero: Nujeen Mustafa, a teenager born with cerebral palsy whose harrowing journey from war-ravaged Syria to Germany in a wheelchair is a breathtaking tale of fortitude, grit, and hope that lends a face to the greatest humanitarian issue of our time: the Syrian refugee crisis.

The Awakening of HK Derryberry is the inspiring story of how one man was willing to step out of his upper-middle-class world into the life of a young, disabled boy with a dismal future but an amazing ability. Little did Jim Bradford know the transformational potential of that friendship - for HK and himself.

The Underdogs tells the story of Karen Shirk, felled at age 24 by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled". Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life.

This handbook covers in its entirety the benefits of social skills coaching, which is a one-on-one skills-based training that addresses an individual's specific difficulties in navigating his/her social environment. Social skills coaching helps develop an individual's ability to more effectively communicate with others.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

It's the summer of 1970. Seventeen-year-old Jean has cerebral palsy, but she's always believed she's just the same as everyone else. She's never really known another disabled person before she arrives at Camp Courage. As Jean joins a community unlike any she has ever imagined, she comes to question her old beliefs and look at the world in a new light. The camp session is only 10 days long, but that may be all it takes to change a life forever.

Sally Hobart Alexander continues the story of her journey into blindness in this uplifting tale of a life rebuilt and love renewed. Suzanne Toren’s perceptive narration perfectly expresses the emotions of Sally’s sometimes fun, often arduous, and always interesting journey. Also available is Taking Hold, My Journey Into Blindness, which tells the first half of Sally’s story.

An inclusive and empowering manifesto for change in women’s healthcare – exploring the systemic and deep rooted sexism within medicine, and offering actionable ways for women to advocate for ourselves and others and get the diagnosis and treatment we need. Have you ever been to a doctor and felt like you were being fobbed off or ignored? Did they belittle or overlook your concerns about your health? Ever been told you’re just ‘hormonal’? You’re not alone.

Kate’s life in Baton Rouge, full of friends and family, gymnastics and Girl Scouts, is just plain great. But then, at the age of twelve, she suddenly develops a mysterious shoulder pain that won’t go away . . . and that will change her life forever. It turns out that Kate has one of the rarest genetic disorders in the world, Fibrodysplasia Ossificans Progressiva. FOP causes bone to form in places in the body where it shouldn’t, and there’s no cure yet.

Ione Gamble never imagined that entering adulthood would mean being diagnosed with an incurable illness. Watching identity politics become social media fodder from the confines of her sickbed Ione began to pick apart our obsession with self-care, personal branding, productivity and #LivingYourBestLife. Using her experience with disability to cast a fresh gaze on the particularly peculiar cultural moment in which young women find themselves, Poor Little Sick Girls explores the pressures faced—as well as the power of existing as an unacceptable woman in our current era of empowerment.

Learn about children who are blind, their challenges and adaptations, and their similarities with others.

Jen Powley was diagnosed with multiple sclerosis at 15. By 35, she had lost the use of her arms and legs. Just Jen is a powerful memoir that tells the story of Powley’s life at the time of her diagnosis and the infinite, irrevocable ways it has changed since. Powley’s writing pulls no punches. She is lively, bold, and unapologetic, answering questions people are often afraid to ask about living with a progressive disease.

Conjoined twins Chang and Eng Bunker have fascinated the world since the 19th century. In her captivating book, Chang and Eng Reconnected, Cynthia Wu traces the "Original Siamese Twins" through the terrain of American culture, showing how their inseparability underscored tensions between individuality and collectivity in the American popular imagination.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

Ben Mattlin lives a normal, independent life. Why is that interesting? Because Mattlin was born with spinal muscular atrophy, a congenital weakness from which he was expected to die in childhood. Not only did Mattlin live through childhood, he became one of the first students in a wheelchair to attend Harvard, from which he graduated and became a professional writer. His advantage?

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

From a young age, Stephen Hawking had a strong sense of wonder and was full of questions about the world around him and the stars above. He would spend his whole life trying to figure out how the universe worked, including discovering truths about black holes and energy. And when he was diagnosed with a rare disease called ALS that destroys the nerve cells in the body, he would find his own mental energy to carry on with his studies even after his limbs and vocal chords stopped working. He became one of history's most influential scientists.

In 1959, at the age of 21, Max Starkloff was in a car accident that left him paralyzed from the neck down. His doctors doubted he would live longer than a few days, and, if he survived, the hope for his quality of life would be minimal. How did this young man with barely a high school education become the leader of a powerful disability rights movement and the founder of the Starkloff Disability Institute? This is his remarkable story.