Social Disabilities

Macy is a girl who's a lot like you and me, but she's also quite different, which is a great thing to be. With kindness, grace, and bravery, Macy finds her place in the world, bringing beauty and laughter wherever she goes and leading others to find delight in the unique design of every person. Children are naturally aware of the differences they encounter at school, in their neighborhood, and in other everyday relationships.

From a young age, Stephen Hawking had a strong sense of wonder and was full of questions about the world around him and the stars above. He would spend his whole life trying to figure out how the universe worked, including discovering truths about black holes and energy. And when he was diagnosed with a rare disease called ALS that destroys the nerve cells in the body, he would find his own mental energy to carry on with his studies even after his limbs and vocal chords stopped working. He became one of history's most influential scientists.

Some people use wheelchairs to get to and from places. What does that mean? Listeners learn why someone would use a wheelchair and what daily life is like for someone who can't walk.

Disability is often described as a tragedy, a crisis, or an aberration, though 1 in 5 people worldwide have a disability. Why is this common human experience rendered exceptional? In All Our Families, disability studies scholar Jennifer Natalya Fink argues that this originates in our families. When we cut a disabled member out of the family story, disability remains a trauma as opposed to a shared and ordinary experience. This makes disability and its diagnosis traumatic and exceptional.

Kate’s life in Baton Rouge, full of friends and family, gymnastics and Girl Scouts, is just plain great. But then, at the age of twelve, she suddenly develops a mysterious shoulder pain that won’t go away . . . and that will change her life forever. It turns out that Kate has one of the rarest genetic disorders in the world, Fibrodysplasia Ossificans Progressiva. FOP causes bone to form in places in the body where it shouldn’t, and there’s no cure yet.

Ione Gamble never imagined that entering adulthood would mean being diagnosed with an incurable illness. Watching identity politics become social media fodder from the confines of her sickbed Ione began to pick apart our obsession with self-care, personal branding, productivity and #LivingYourBestLife. Using her experience with disability to cast a fresh gaze on the particularly peculiar cultural moment in which young women find themselves, Poor Little Sick Girls explores the pressures faced—as well as the power of existing as an unacceptable woman in our current era of empowerment.

They put a price on his head. They did everything they could to disrupt his mission. Finally, when an antitank mine tore off his right foot, the warriors of jihad in Iraq thought they had neutralized one of their most resourceful, determined foes.

There are 1.3 billion people around the world who identify as having a disability. When you include friends and family, the disability market touches 53 percent of all consumers. It is the world’s largest emerging market. Unleash Different reveals how companies like Google, PepsiCo, and Nordstrom are attracting people with disabilities as customers and as employees. Replacing “nice to do” with “return on investment” allows market forces to take over and the world’s leading brands to do what they do best: serve a market segment - in this case, the disability market.

We’ve all had moments of feeling like we didn’t belong, but imagine being born into a world where fitting in was never an option. Michele Sullivan, who has a rare form of dwarfism, shares how her physical posture taught her the most effective relational posture with others, which helped her become one of the most powerful women in philanthropy.

An inclusive and empowering manifesto for change in women’s healthcare – exploring the systemic and deep rooted sexism within medicine, and offering actionable ways for women to advocate for ourselves and others and get the diagnosis and treatment we need. Have you ever been to a doctor and felt like you were being fobbed off or ignored? Did they belittle or overlook your concerns about your health? Ever been told you’re just ‘hormonal’? You’re not alone.

In a series of beautifully textured stories, the author takes the listener on a fascinating journey as she travels with Teela, her lively "golden dog", through airports, city streets, and southwest desert landscapes, exploring these surroundings with changed sight. This unusual account of travel will inspire the sighted as well as the blind, offering pointed observations on processes of learning to work with a service animal and on coming to terms with a disability.

An unflinching and luminous memoir that explores a father’s philosophical transformation when he must reconsider the questions what makes us human? and whose life is worth living? Before becoming a father, Chris Gabbard was a fast-track academic finishing his doctoral dissertation at Stanford. A disciple of Enlightenment thinkers, he was a devotee of reason, believed in the reliability of science, and lived by the dictum that an unexamined life is not worth living. That is, until his son August was born.

Disability and Political Representation explores how disabled people experience the various stages and aspects of the representation process, drawing upon extensive empirical research and a variety of qualitative and quantitative data. It discusses why increasing the number of disabled politicians matters, not only as a matter of justice and equality but also to better represent the issues and interests of importance to disabled people.

Published in 1996, Life as We Know It introduced Jamie Bérubé to the world as a sweet, bright, gregarious little boy who loves The Beatles, pizza, and making lists. At four he is like many young people his age, but his Down syndrome leads most people to see him only in terms of his disability. Twenty years later Michael Bérubé chronicles his son's growth and his growing love of the world, writing as both a disability studies scholar and as a father.

Historically, they have borne the labels "freaks" and "oddities"; they have been collected as pets, displayed as spectacles, and treated as comic relief. Now, for the first time, in this comprehensive volume, the lives of dwarfs are explored in all their fullness and humanity. Spanning the centuries from ancient Egypt to the present, this unique social history chronicles the various ways this population has been exploited, describes their strategies for coping, and notes the persistent influence of mythology upon perceptions of them by others.

Three months into her pregnancy with her first child, Hilary Yancey received a phone call that changed everything. As she learned the diagnosis - cleft lip and palate, a missing right eye, possible breathing complications - Hilary began to pray in earnest. Even in the midst of these findings, she prayed that God would heal her son. God could do a miracle unlike anything she had seen. Only when Hilary held her baby, Jack, in her arms for the first time did she realize God had given her something drastically different than what she had demanded.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

After her elderly owner passes away, Star—a deaf Australian shepherd—is brought to a local shelter. Star feels scared and alone—until she meets 12-year-old Julian. After getting in trouble at school yet again, Julian volunteers at the shelter and realizes he can communicate with Star in a way that no one else can. Their bond continues to grow, and Julian and Star become inseparable. Then the unthinkable happens: Funding for the shelter dries up. The only way to save Star is to adopt her, but he has to prove that he can stay out of trouble and train a dog like Star.

Ben Mattlin's wife, ML, recalls falling in love with his confidence and sheer determination. On one of their earliest dates, he persuaded her to ride on his lap in his wheelchair on their way home from an Elvis Costello concert. Thirty years later, they still travel like this from time to time, undaunted by the curious stares following them down the street. But In Sickness and in Health is more than an "inspiring" story of how a man born with spinal muscular atrophy

Sabine Heinlein spent almost a year reporting at "The Farm", a program for mental patients at the notorious Creedmoor Psychiatric Center in Queens. Originally designed to teach its "members" confidence and skills by caring for animals and plants, the Farm had long become a dysfunctional hoarder's den. The patients sat idly on chairs in a grimy dayroom filled with the therapist's "collectibles" and garbage.