Memoirs Special Needs

Jonathan Mooney blends anecdote, expertise, and memoir to present a new mode of thinking about how we live and learn - individually, uniquely, and with advantages and upshots to every type of brain and body. He explores the toll that being not normal takes on kids and adults when they’re trapped in environments that label them, shame them, and tell them, even in subtle ways, that they are the problem.

Special Heart is a deeply touching personal story told through the eyes of a journalist as he faces the most daunting challenge in life - far more frightening than reporting from battlefields, infinitely more momentous than interviewing newsmakers of the day: caring for his critically ill newborn son. Baier reflects on past challenges as he looks forward with hope, chronicling the steps on his path to national prominence as a television anchor, as well as his unexpected journey into the world of pediatric cardiac disease.

Diagnosed with pathological demand avoidance (PDA) in his teenage years, Harry Thompson looks back with wit and humour at the ups and downs of family and romantic relationships, school, work and mental health, as well as his teenage struggle with drugs and alcohol. By embracing neurodiversity and emphasising that autistic people are not flawed human beings, Thompson demonstrates that some merely need to take the 'scenic route' in order to flourish and reach their full potential.

Unlocked begins with a vivid depiction of the author's life with her autistic son, Ben. Feelings of isolation and self-hate and even moments of hatred toward her own child in response to his behaviors, as well as the impact on her marriage and younger daughter, impel her to seek solutions for his condition. Through years of trial and error, Susan eventually discovers methods that bring about radical improvement in Ben.

In Love Fiercely, a Catholic father offers prayerful insight into the experience of raising and loving his eldest daughter. Elizabeth Bodoh is nearly blind, nonverbal, suffers from epilepsy and cerebral palsy, and loves music. She enjoys cuddles and eating. A shunt manages the fluid on her brain, and a wheelchair helps her family move her.

On the morning of November 14, 1992, Annette Herfkens, a top Dutch banker, packed her luggage for a romantic getaway with her longtime fiancé, Willem. At 6:25 that morning, Annette and Willem boarded a plane out of Ho Chi Minh City, with 23 other passengers and six crew members, excited to finally have a vacation together. Six minutes before landing, flying at speed of 300 miles per hour, the plane lost altitude and crashed along a mountain ridge in the jungle of Vietnam.

Despite being a winner of the Pulitzer Prize for Poetry in 2008, Philip Schultz could never shake the feeling of being exiled to the “dummy class” in school, where he was largely ignored by his teachers and peers and not expected to succeed. Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.

In the pursuit of possible links between childhood vaccines, intestinal inflammation, and neurologic injury in children, Wakefield lost his job in London’s Royal Free Hospital, his country of birth, his career, and his medical license. A recent General Medical Council ruling stated that he was “dishonest, irresponsible and showed callous disregard for the distress and pain of children.” Maligned by the medical establishment and mainstream media, Wakefield endeavors to set the record straight.

Now raising their four-year-old daughter, Indiana, alone, after Joey’s passing, Rory Feek digs deeper into the soil of his life and the unusual choices he and his wife, Joey, made together and the ones he’s making now to lead his family into the future. When Feek and his older daughters moved into a run-down farmhouse almost 20 years ago, he had no idea of the almost fairy-tale love story that was going to unfold on that small piece of Tennessee land. He takes listeners on his incredible journey from heartbreak to hope and, ultimately, the kind of healing that comes only through faith.

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.

One afternoon, Emma Nadler gets a call from her daughter's doctor that changes her life forever. Faced with the realities of raising a child with a rare genetic condition, Nadler must confront her preconceptions of motherhood and her perfectionistic beliefs. Nadler—who also happens to be a psychotherapist—offers a rare window into the unconventional ways she and her family adapt to their improbable path. Every relationship in her life—with herself, her husband, children, friends, and even clients—is reimagined as she navigates the heartbreak and hilarity of her daily life.

I Have Been Buried Under Years of Dust is a remarkable memoir by a mother and her autistic daughter who’d long been unable to communicate - until a miraculous breakthrough revealed a young woman with a rich and creative interior life, a poet, who’d been trapped inside for more than two decades.

More than four hundred abandoned suitcases filled with patients’ belongings were found when Willard Psychiatric Center closed in 1995 after 125 years of operation. They are skillfully examined here and compared to the written record to create a moving—and devastating—group portrait of twentieth-century American psychiatric care.

One morning, Jenny McCarthy sensed something was wrong and ran into her two-year-old son Evan's room to discover he was having a seizure. In that moment, Jenny was thrust into the midst of a medical odyssey. After numerous misdiagnoses and many harrowing, life-threatening episodes, Evan was finally diagnosed with autism. Jenny didn't know what to do next and found herself alone, without any resources except for her determination to help her son.

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

When climate activist Greta Thunberg was 11, her parents Malena and Svante, and her little sister Beata, were facing a crisis in their own home. Greta had stopped eating and speaking, and her mother and father had reconfigured their lives to care for her. Desperate and searching for answers, her parents discovered what was at the heart of Greta’s distress: her imperiled future on a rapidly heating planet. Steered by Greta’s determination to understand the truth and generate change, they began to see the deep connections between their own suffering and the planet’s.

Misfit, truant, delinquent. John Robison was never a model child, and he wasn’t a model dad either. Diagnosed with Asperger’s syndrome at the age of 40, he approached fatherhood as a series of logic puzzles and practical jokes. When his son, Cubby, asked, “Where did I come from?” John said he’d bought him at the Kid Store and that the salesman had cheated him by promising Cubby would “do all chores”. He read electrical engineering manuals to Cubby at bedtime.

Named president and CEO of NBC at the age of 43, he faced a two-headed dragon: on one hand, distrust from the network people deeply skeptical of the "suit" from GE, their new corporate parent; and on the other, fiscal oversight demands from a cautious, conservative institution reluctant to invest heavily in a media business they didn't understand. For the next 20 years, he managed to navigate the fine line between the two and in the process completely reinvent - and save - the network.

When Kelle Hampton's new daughter was placed in her arms in the delivery room, she knew instantly that something was wrong. As her friends and family celebrated, a terrified Kelle was certain that Nella had Down syndrome - a fear her pediatrician soon confirmed. Yet gradually Kelle embraced the realization that she had been chosen to experience an extraordinary and special gift. With lyrical prose and gorgeous photography, Bloom takes listeners on a wondrous journey through Nella's first year of life.

Growing up unknowingly autistic, Livia spent the majority of her young life seeking worth and validation in external achievements. She excelled in her honors classes, competitive sports, and eventually, an eating disorder. Until the control she so desperately sought nearly killed her, Livia made the hardest decision anyone with an eating disorder can make: to trust and surrender to the recovery process.