Medical System

A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.

Anyone who has fallen off the conveyer belt of mainstream health care and into the shadowy corners of illness knows what a dark place it is to land. Where is the infrastructure, the information, the guidance? What should you do next? In Rebel Health, Susannah Fox draws on twenty years of tracking the expert networks of patients, survivors, and caregivers who have come of age between the cracks of the health care system to offer a way forward.

At twenty-four, Arnold Beisser was a recent medical school graduate and a nationally ranked tennis player. But overnight a devastating bout of polio left him permanently paralyzed from the neck down and dependent on an iron lung to draw his next breath. Polio robbed Arnold Beisser of his strength, his athletic ability, and almost his life. Yet he discovered in this unthinkable trap not only the expected sadness and despair, but wonder, delight, and the pleasure of everyday living.

The information needed to obtain a better and more appropriate treatment is not secret, it is hiding in plain sight and is available to everybody who wishes to take the time to listen, compile, interpret, and draw conclusions from it. This book connects the dots for the listen and helps patients to navigate the maze of decisions that they have to make in the present-day medical system.