Medical Dementia

Freedom 55? The so-called “Golden Years”? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer’s in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together.

In the fall of 1988, Sue Miller found herself caring for her father as he slipped into the grasp of Alzheimer's disease. She was, she claims, perhaps the least constitutionally suited of all her siblings to be in the role in which she suddenly found herself, and in The Story of My Father she grapples with the haunting memories of those final months and the larger narrative of her father's life.

At the age of 53, Tony walks away from a life of journalism and into an unknown future dogged by self-doubt and financial worry. June is 48 years old then, a writer and a teacher, and over the following nine years she watches as her husband gradually changes - in interests, goals, and behavior - until Tony has a sudden fall, ending their life as they have known it.

It is pure torture to watch a loved one slowly lose everything and know there is nothing that can be done for them It is so important to reassure your loved ones during the early stages of this disease. The more worked up they get, the more inept and useless they feel. Nobody should feel this way, especially those in the early stages of dementia. It’s not easy to be patient under normal circumstances. It’s even harder the fifteenth time you’re looking for a cell phone or car keys. You must force yourself to always exercise patience. If finding their phone is important to them, then it...

Forfatter og antropolog Ina Kjøgx Pedersen har været på feltarbejde i sin egen familie. Hendes idé var på nærmeste hold at følge sin mors demenssygdom; den sygdom, som er udråbt til at være en af vor tids største personlige og verdensøkonomiske katastrofer, som i ringe omfang lader sig behandle, og som i sundhedsvæsnet kun kan måles negativt: I form af rask tilbagegang. Men ville det også opleves sådan for hende i virkeligheden?