Medical Dementia

Freedom 55? The so-called “Golden Years”? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer’s in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together.

What if the dreaded world of Alzheimer's was also a world of emotional discovery? Eugenia Zukerman's poetry and simple prose, both heartbreaking and ultimately inspirational, ushers the listener into her world as she unflinchingly examines familial loyalties, moments from her past and present, and the need to face an uncertain future due to the diagnosis of a condition that she truly hopes "will remain unnamed."

Leaving London to return home to rural South Wales, Robyn finds that it's her old life - same teddy bears resting on her pillow, their bodies tucked under the duvet; same view of the garages behind which she'd had her first cigarette and first kiss - but so much has changed. Her dad, the proud, charmingly intelligent self-made man who made people laugh, was in the grip of early onset Alzheimer's. His brilliant mind, which saw him building power stations and literally bringing light into the lives of others, had succumbed to darkness.

At the age of 53, Tony walks away from a life of journalism and into an unknown future dogged by self-doubt and financial worry. June is 48 years old then, a writer and a teacher, and over the following nine years she watches as her husband gradually changes - in interests, goals, and behavior - until Tony has a sudden fall, ending their life as they have known it.

Forfatter og antropolog Ina Kjøgx Pedersen har været på feltarbejde i sin egen familie. Hendes idé var på nærmeste hold at følge sin mors demenssygdom; den sygdom, som er udråbt til at være en af vor tids største personlige og verdensøkonomiske katastrofer, som i ringe omfang lader sig behandle, og som i sundhedsvæsnet kun kan måles negativt: I form af rask tilbagegang. Men ville det også opleves sådan for hende i virkeligheden?