Disability Memoir

Despite being a winner of the Pulitzer Prize for Poetry in 2008, Philip Schultz could never shake the feeling of being exiled to the “dummy class” in school, where he was largely ignored by his teachers and peers and not expected to succeed. Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.

A junior at Columbia University on a full scholarship, Sandy had just started to see the world open up to him. But instead of his plans for a bright future, he now faces a new reality, one defined by a cane, a companion dog, jobs limited to his blindness. In the depth of his new darkness, Sandy faces a choice—to play it “safe” or return to Columbia to pursue his dreams. With the loving devotion of his girlfriend (and now wife) Sue and the selflessness of his best friend, Art Garfunkel, and through his own unyielding determination, Sandy forges a life of exceptional achievement.

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.

Backbone is a life-fulfilling message about managing chronic pain and living a life of purpose. For two decades, Karen Duffy, New York Times bestselling author, former MTV VJ, Revlon model, and actress, has managed to live an enriching life despite living in a state of constant pain. In this powerful, inspirational, funny, and important manual for surviving pain, Duffy draws on her experience as a patient advocate, trained recreational therapist, and hospice chaplain to illuminate gratifying methods people can use to cope with chronic pain.

When Jeremy and Emily Freeman’s teenage son Caleb was in a devastating car accident, doctors gave him a 10 percent chance of survival. Fear of losing a child was all too fresh for the Freemans—their seven-year-old son, Trey, had died just four years earlier from a genetic immunodeficiency. But God. In #butGod Jeremy shares the incredible story of Caleb’s recovery, the darkness that nearly overtook their family in the waiting, and the #butGod movement that captured the prayers of Christians around the world.

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

We are all born with a series of gifts and curses. It is my experience, that some of those form your self-identity, and dictate much of your life. Attention Deficit Disorder was mine. Growing up I felt hindered by the inability to focus; therefore self-identified as a failure. Yet here I am, 40 years old, professionally and financially successful, artistically trained and skilled, and most importantly happy. In this book, I reflect on why I failed so much at certain elements of my life. I forgive my former self for how I erred as a son, brother, partner and friend.

On paper, Coach Rob Mendez sounds like any other football coach on any other field across America: passionate, authoritative, knowledgeable. But he’s unlike any other coach you know - in fact, he’s probably unlike any other person you know. Born with an extraordinarily rare condition called tetra-Amelia syndrome, Rob has no arms or legs. He moves with the assistance of a custom-made, motorized wheelchair that he operates with his back and shoulders.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label “social deviant.” No guidance came from his mother, who conversed with light fixtures, or his father, who spent evenings pickling himself in sherry. It was no wonder he gravitated to machines, which could, at least, be counted on.

Stephen Kuusisto was born legally blind - but he was also raised in the 1950s and taught to deny his blindness in order to "pass" as sighted. Stephen attended public school, rode a bike, and read books pressed right up against his nose. As an adult, he coped with his limited vision by becoming a professor in a small college town, memorizing routes for all of the places he needed to be. Then, at the age of 38, he was laid off. With no other job opportunities in his vicinity, he would have to travel to find work.

A young man once called unteachable journeys across America to investigate the lives of those, like himself, who are forced to create new ways of living in order to survive.

After a diagnosis of a degenerative eye disease, John Samuel’s life—and his chance at success—started to vanish. In a world systemically unequipped for accessibility, disability inclusion is often left out of conversations about diversity. For people with disabilities, it can feel impossible to adapt and thrive when you’re already set up for failure.

Due to horrible physical deformities, he spent much of his life as a fairground freak. He was hounded, persecuted, and starving, until his fortune changed and he was rescued, housed, and fed by the distinguished surgeon, Frederick Treves. The subject of several books, a Broadway hit, and a film, Joseph Merrick has become part of popular mythology. Here, in this fully revised edition containing much fresh information, are the true and un-romanticized facts of his life.

After 30 years of a healthy, rewarding, and exciting life, I wake up in a hospital bed unable to move. The neurosurgeon leans down and breaks the news: You won't regain any function in your body and you will never walk again. My medical insurance sends me home, discontinues my care, and tells me to "adapt to my new life". Little Big Steps is the story of the pivotal moments, interactions, and breakthroughs following the injury that turned my life upside down.

In I'll Pray for You and Other Outrageous Things Said to Disabled People, Hannah Setzer volunteers to go first and say the things that we all think, but rarely say. Hannah has lived her whole life as a disabled woman and is here to share her story, though don't think for a second that this is inspiration porn. In fact, Hannah's disability is the least interesting thing about her!

At 30 years old Bryan Bishop’s life was right on track: as the sidekick on The Adam Carolla Show, his career was taking off and, newly engaged, his personal life was soaring to new heights. Then he was diagnosed with an inoperable brain tumor. Suddenly Bryan’s promising future was looking at a troubling schedule of radiation and chemotherapy. But having found refuge in comedy, "Bald Bryan" recounts his alternately heartbreaking and hysterical experience of cancer treatment and recovery.

Inspirational, humorous, and thought provoking, Noah Galloway's Living with No Excuses sheds light on his upbringing in rural Alabama, his military experience, and the battle he faced to overcome losing two limbs during Operation Iraqi Freedom. From reliving the early days of life to his acceptance of his "new normal" after losing his arm and leg in combat, Noah reveals his ambition to succeed against all odds.

Lucy Edwards is a UK-based blind broadcaster, content creator, Pantene Ambassador and disability activist. At only 17 her world went to black. In an instant Lucy lost her eyesight due to a rare condition called Incontinentia Pigmenti. She had to learn how to navigate her life all over again, the beginning of an extraordinary journey to find self-acceptance and happiness. Lucy took to the internet and started to upload her experiences. Through sharing her day-to-day routine in her viral 'How does a blind girl?' video series, Lucy's story gripped the nation.

As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast. A personal soundtrack was Hay’s determined compensation for his condition.