Disability Memoir

Schizoetry by definition means: a literary work fusing poetry with the mind of a schizophrenic. This is a genre that I created. All my work revolves around the life and times of a paranoid schizophrenic. My work is very educational and inspiring to those in the system of mental health as well as those outside of the system. It gives insight as to how we think, feel, perceive, and process information.

What do you do when your reality slips away? If you're Sky Yardley and Jane Dwinell, you accept each new challenge, reshape your life, and write. When Sky was diagnosed with "probable early stage Alzheimer's" at age 66, he was determined to live as fully as possible. He researched dementia, talked about dementia, connected with other people with the disease, and wrote about it.

This is my story. After a lifetime of trying to help everyone else get their lives together, I have finally figured out how to get mine together. I am now 72 years old, semi-retired from a business I created to help young adults with autism function in the world. I live in Mexico with my loving partner. I have fulfilling relationships with my adult children and grandchildren.

Kamata's adventures with her teen—who happens to be deaf, with cerebral palsy, and in a wheelchair—through subterranean Tennessee, to the islands of Japan, and to the top of the Eiffel Tower ultimately lead to a daughter's increasing independence, a mother letting go of expectations, and advocacy for travel which prohibits discrimination.

Challenging the view that autism is something that needs to be ‘cured', Virginia Bovell testifies to the extraordinary care Danny has received for over 30 years and the everyday kindness and decency of the people – ‘the band of angels' – that surround him. She asks us to consider what makes a thriving individual versus an inadequate one; what it means to be ill versus what it means to not to conform; what roles society values and rewards; and how humans might flourish outside of failing political and economic systems.

Arriving in the UK from Jamaica at the tender age of 14, Keisha shares her empowering lived experiences growing up with undiagnosed Dyslexia and Dyspraxia, while facing several intersectional challenges that include culture, race, and the UK education system.

The yard was a huge piece of property with a forest out back (or at least a few dozen trees). We had a barn and a horse (really a very small pony, but I didn’t know that then) named Romeo, because he liked to roam—often ending up out of the fenced pasture and out on the street. We had chickens, as well, in a coop by the barn up at the edge of the forest.

Graham Hale Gardner died before turning 23 and never learned to walk or speak due to severe cerebral palsy complicated by epilepsy. Yet he left a legacy of love and compassion that deeply moved scores of people from widely different backgrounds. Graham’s story, written through the eyes of his father, speaks of the enormous legacy left by a boy who never spoke. A story that raises provocative questions about the “invisible lines of connection” that make us human.

Devenir aveugle : pour Marie-Christine comme pour quiconque, cette idée est inconcevable et terrifiante. C’est pourtant la sentence que la jeune femme de 30 ans reçoit au printemps 2018 : elle ne verra plus. Jamais. Les couchers de soleil, son visage dans le miroir ou la frimousse de son fils : désormais, tout n’existera que dans sa mémoire, jusqu’au jour où ces images disparaîtront comme peau de chagrin.

This honest, outspoken, and thought-provoking memoir by award-winning writer and appearance activist Carly Findlay will challenge all your assumptions and beliefs about what it is like to have a visibly different appearance. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. This is both a moving memoir and a proud manifesto on disability and appearance diversity issues.

Recycled Human is a continuation of my first book, Damaged Goods, but Recycled Human is aimed more at the re-entry into the general public. A big part of that shift involves various "transitional services" which are in fact not helping people. In fact, the services meant to help a person like me develop can be yet another oppressive system. When a person wants to change and truly is ready to face change, it can be challenging to find genuine resources. So here it is...this is my testimony of what I saw in myself and the system that needed changing.

There Are No Answers Here, Only Questions is the true story of two life-altering events and the personal transformation that resulted from their unlikely collision. It's the story of an owner preparing to sell his business and retire just as he is diagnosed with cancer.

This powerful, honest, hilarious and furious memoir from journalist and advocate Lucy Webster looks at life at the intersection; the struggles, the joys and the unseen realities of being a disabled woman. From navigating the worlds of education and work, dating and friendship; to managing care; contemplating motherhood; and learning to accept your body against a pervasive narrative that it is somehow broken and in need of fixing, The View From Down Here shines a light on what it really means to move through the world as a disabled woman.

When Emmett de Monterey is eighteen months old, a doctor diagnoses him with cerebral palsy. Words too big for his 25-year-old artist parents and their happy, smiling baby. Growing up in South East London in the 1980s, Emmett is spat at on the street and prayed over at church. At his school for disabled children, he's told he will be expelled if the rumours are true, if he's gay; at his mainstream school, teachers refuse to schedule his classes on the ground floor, and he loses a stone from the effort of getting up the stairs.

Full of heart and tenderness, The House with All the Lights On provides an account of deafness in Australia and the UK, where Jessica's grandparents spent the first 60 years of their lives. She tells her grandparents' experience of growing up in a hearing world—one where sign language was banned for much of the 20th Century. Her quest to better understand them takes her to sign language classes, to the workplaces of research audiologists, and in the final chapters, she is led back to England where she visit their old schools and family landmarks.

Hannah Diviney has always known that her experience of the world was fundamentally different from those around her. While her friends went to soccer and dance and little athletics, Hannah was going to physio and doctors' appointments. While her friends got jobs, fell in love and went clubbing, Hannah surrounded herself with the fantastical worlds she found in books. But books where people like her were nowhere to be found. Refusing to accept the narratives, or lack thereof, that she'd been given, Hannah was determined to forge her own path in a world that wasn't designed for her.

Bill Rush lived with a significant disability of quadriplegic cerebral palsy. He did not have use of his arms, hands, or voice. Society’s prejudices proved to be a greater obstacle than his disability in attaining his first life goal of completing college. Rush chronicled his extraordinary life from childhood until graduation from the University of Nebraska - Lincoln in Journey Out of Silence, first published in 1986. This second edition brings back into print Bill's original chronicle. It also contains an introduction to Our Life Our Way, the sequel.

Autism is the fastest growing and most common developmental disorder. Imagine the frustration and anxiety over taking your child to a team of medical specialists to be told that they have a lifelong and often debilitating developmental disorder with no cure and limited treatment options? Lauren's parents knew something was different about her from the time she was an infant but as she entered Kindergarten in the fall of 1986 her differences were very obvious to everyone around her as compared to other children her age.

Darkness—that’s what Bozena Gasior remembers feeling when she first heard her two-year-old son’s autism diagnosis. What followed was a cacophony of despair and cries, not knowing what to do, say, or feel. It was the day she thought that part of her son’s life had died. But one eventful day some four years later, his fingers touched the piano keys for the first time, and she felt something—a glimmer of light shining down, illuminating her home and family.

Just before Christmas in 2012, at age 53, John LeMieux lost his left leg to a recurrence of sarcoma. The unique 20-hour rotationplasty surgery - never done on a man his age - was followed by six months of bed rest. It was only the beginning of years of physical, spiritual, and emotional growth. In this memoir, John recounts the lows and highs of a life forever altered.