Disability Memoir

At a time when we are all more rudderless than ever, we look for the very best teachers and mentors to guide us. In Fully Alive, an unusual and gripping memoir, Timothy Shriver shows how his teachers have been the world's most forgotten minority: people with intellectual disabilities. In these pages we meet the individuals who helped him come of age and find a deeper and more meaningful way to see the world.

The GIs called her Joey. Hundreds owed their lives to the tiny Filipina who stashed explosives in spare tires, tracked Japanese troop movements, and smuggled maps of fortifications across enemy lines. As the Battle of Manila raged, Josefina Guerrero walked through gunfire to bandage wounds and close the eyes of the dead. Her valor earned her the Medal of Freedom, but what made her a good spy was also destroying her: leprosy, which so horrified the Japanese they refused to search her.

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

The entire world knows Michael J. Fox as Marty McFly, the teenage sidekick of Doc Brown in Back to the Future; as Alex P. Keaton in Family Ties; as Mike Flaherty in Spin City; and through numerous other movie roles and guest appearances on shows such as The Good Wife and Curb Your Enthusiasm. Diagnosed at age 29, Michael is equally engaged in Parkinson’s advocacy work, raising global awareness of the disease and helping find a cure through The Michael J. Fox Foundation for Parkinson's Research, the world's leading nonprofit funder of PD science.

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.

Ido in Autismland opens a window into non-verbal autism through dozens of short, autobiographical essays each offering new insights into autism symptoms, effective and ineffective treatments, and the inner emotional life of a severely autistic boy. In his pithy essays, author Ido Kedar, a brilliant 16-year-old with autism, challenges what he believes are misconceptions in many theories that dominate autism treatment today while he simultaneously chronicles his personal growth in his struggles to overcome his limitations.

Katherine and Jay Wolf were a young couple living the dream in Southern California, but all was nearly lost when Katherine suffered a shocking near-fatal brainstem stroke and struggled to find hope in a life that looked nothing like the one they had before.

We are all born with a series of gifts and curses. It is my experience, that some of those form your self-identity, and dictate much of your life. Attention Deficit Disorder was mine. Growing up I felt hindered by the inability to focus; therefore self-identified as a failure. Yet here I am, 40 years old, professionally and financially successful, artistically trained and skilled, and most importantly happy. In this book, I reflect on why I failed so much at certain elements of my life. I forgive my former self for how I erred as a son, brother, partner and friend.

Dietetics practitioners are food and nutrition experts who help people live healthier lives. They work in a variety of settings—from hospitals and research to sports, schools, nursing homes, and the food industry. Yet, despite the diversity of the populations they serve, the dietetics profession is predominantly female, white, and able-bodied. Only 2% of dietetics practitioners have a disability compared to 29% of US adults. There is an urgent need to diversify the field—especially by including practitioners with disabilities.

In 2019, Greta Morgan was on the rise. She had toured with Vampire Weekend, collaborated with Jenny Lewis, and garnered critical acclaim with her own musical projects. But in March 2020, after contracting COVID-19, she was diagnosed with spasmodic dysphonia, a neurological disorder with no known cure that left her unable to sing. Her once crystalline voice now reduced to a hush, she saw her career come to an abrupt standstill.

We all face obstacles that threaten to hold us back. For Robert Paylor, his paralysis wasn’t a metaphor. In the biggest game of his life, competing for the collegiate rugby national championship, Robert suffered a catastrophic spinal cord injury that left him paralyzed from the neck down. Doctors told him he’d never walk or move his hands again. But Robert refused to accept that fate.

MEDICAL GASLIGHTING MEMOIR by author Anneke Vliegen, diagnosed with a combination of chronic, rare, barely visible and fluctuating diseases. Anneke describes her journey to happiness, after a misdiagnosis of chronic fatigue syndrome (ME/CFS) brought her condescendence, humiliation and neglect. For twenty years, this medical gaslighting continued until she was close to death. The discovery of adrenal insufficiency, lupus and hypermobile Ehlers-Danlos syndrome (hEDS) led to improved care and respect. The medical world had heard Anneke’s hooves, and assumed she needed to be treated like a ...

This is the very personal and frank account of A.W.J. Pilgrim’s battle with schizophrenia, in the context of his whole life story. He is a Londoner, dad and talented prolific artist painter and author. Learn how his illness progressed, how he struggled, his personal thoughts about it, detailed accounts of being sectioned, effects of medications, psychosis, hallucinations & delusions. The story not all sad, he has had some good luck too, and still has dreams. Learn how he has put his schizophrenia into remission.

Before becoming the actor, producer, advocate, and model that people know today, Nyle DiMarco was half of a pair of Deaf twins born to a multi-generational Deaf family in Queens, New York. At the hospital one day after he was born, Nyle “failed” his first test—a hearing test—to the joy and excitement of his parents.

When Roger Rasmussen was diagnosed with prostate cancer in 2019, he did what most patients do: listened carefully, weighed his options, and tried to make peace with the life-altering decisions ahead. Then he heard about Joe Tippens' story, which led him down a rabbit hole of research into something unexpected—a compound called fenbendazole with curious case reports and a growing collection of personal accounts.

An unexpected journey. An unbreakable spirit. At 26, Non Reyes had it all—a loving family, a promising future, and an adventurous spirit. But in a single instant, everything changed. A devastating accident left him paralyzed from the neck down, forcing him to rebuild his life in ways he never imagined. In An Unexpected Ride, Non shares his deeply personal journey of resilience and rediscovery of purpose after tragedy. With raw honesty and a touch of humor, he reflects on the struggles, triumphs, and everyday victories of life with a disability—offering hope to anyone facing their own ...

Athena Stevens has never learned the name of the doctor whose lack of intervention at her birth lead to her cerebral palsy, but she feels the consequences of his actions – and inaction – every day. The factor observed first and foremost in her life will forever be the effects of what other people have done to her, rather than her accomplishments. And yet, she was groomed to believe that she would overcome any force that stood in her way.

The first story Selma Blair Beitner ever heard about herself is that she was a mean, mean baby. With her mouth pulled in a perpetual snarl and a head so furry it had to be rubbed to make way for her forehead, Selma spent years living up to her terrible reputation: biting her sisters, lying spontaneously, getting drunk from Passover wine at the age of seven, and behaving dramatically so that she would be the center of attention. In a memoir that is as wildly funny as it is emotionally shattering, Blair tells the captivating story of growing up and finding her truth.

At six months old, Kenneth is struck by polio, leaving him physically marked and setting the tone for a life shaped by struggle. Abandoned by his mother at the hospital, he is taken in by Pearlie Mae, a blind but fearsome relative who raises him with tough love and relentless discipline. By three, Kenneth experiences haunting visions of celestial beings that feel like a divine or infernal claim on his soul, adding a spiritual weight to his physical trials. Life with Pearlie Mae is harsh; she demands survival skills rather than offering comfort. Kenneth learns early to navigate a world that ...