Disability Memoir

When Judith Newman shared the story of how Apple's electronic personal assistant, Siri, helped Gus, her son who has autism, she received widespread media attention and an outpouring of affection from listeners around the world. Basking in the afterglow of media attention, Gus told anyone who would listen, "I'm a movie star". Judith's story of her son and his bond with Siri was an unusual tribute to technology. While many worry that our electronic gadgets are dumbing us down, she revealed how they can give voice to others.

Owen-known to his family as "little buddy" or "Little B"-has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi-an adorable Anatolian Shepherd puppy-was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited.

We treat the body as an afterthought, until it no longer can be. Until the pain or the pleasure is too great. Sinéad Gleeson's life has been marked by terrible illness, including leukemia and debilitating arthritis. As a child, she bathed in the springs of Lourdes, ever hopeful that her body would cooperate, ever looking forward to the day when she could take her body for granted. But just as she turns inward to explore her own pain, and then the marvel of recovery, and then the arrival of her greatest joys—falling in love, becoming a mother—she turns her gaze outward.

Already facing a wretched cancer diagnosis, a young man’s prospects for survival dim as he learns his treatments have not worked. Writing against the clock, he feverishly authors a story of profound joy and sadness exploring the life he could have lived. Desperately told, his story takes you through poignant memories, intimate relationships, and fantastical triumphs in a quest to make sense of it all and leave a legacy behind.

When a devastating event takes away the way of life you are accustomed to, you have two choices: Stop living, or start planning! In this memoir, Shawn Paulsen demonstrates how he has overcome his stumbling blocks and turned them into stepping stones on his journey through the misfortunes of life. Shawn’s story inspires and motivates others to overcome. He describes how he has learned to face adversity with his chin up by taking a comedic view of his malady and life.

An Unexpected Story of Hope & Perserverance: As a young child, something was wrong with Michael. He lacked basic motor skills and was unable to follow simple instructions or answer questions. Testing revealed a diagnosis of autism with a low IQ. Experts insisted that leading an independent life would be impossible for him...and school was not an option.

Driving on the wrong side of the road, an accident up the Alps, Force 10 storms, seasickness, being robbed of 200 euros, a brush with bats, blocked toilets and other mishaps...travelling with (or without) Don had its moments! Dawn thought her journeys abroad were over when she married Don. He flatly refused to fly. Surprisingly, plenty of opportunities to travel the globe by car, ferry, and cruise ship presented themselves. Venturing to France with Don, who has spina bifida, family friend Geoff, who’d had a stroke, and four-year-old Tim, as well as 89-year-old Harold, certainly added an ...

Public Hostage, Public Ransom starts with the autobiographical story of William Bronston, the activist physician whose early professional California training steels him with a deep moral, professional, and cultural bond to the huge 6,000-person disabled population he encounters incarcerated in Willowbrook State School in Staten Island, NY, on whose behalf he daily battles to humanize and ultimately catalyze a federal class action lawsuit against the state to close the death-making institution.

As director of legendary Pommery Champagnes, Philippe Pozzo di Borgo was not generally someone in the habit of asking for help. Then, in 1993, an accident left him a quadriplegic. Passing his days hidden in his Paris townhouse, Philippe found himself the modern equivalent of an “untouchable.” The only person who seemed not to be bothered by Philippe’s condition was someone who had been marginalized his entire life - Abdel, the unemployed, uninhibited immigrant from the outskirts of society who would become Philippe’s caretaker.

Rachel Kolb was born profoundly deaf the same year that the Americans with Disabilities Act was passed, and she grew up as part of the first generation of deaf people with legal rights to accessibility services. Still, from a young age, she contorted herself to expectations set by a world that prioritizes hearing people. So even while she found clarity and meaning in American Sign Language (ASL) and written literature, she learned to speak through speech therapy and to piece together missing sounds through lipreading and an eventual cochlear implant.

Jump in the passenger seat as I navigate you through my journey of blindness, sexual abuse, mental illness, and various other medical conditions and tragedies. I will take you on the twists and turns of single motherhood and dating with a disability, all while only having the use of one arm. Join me for an emotional, yet exciting, ride to see how I end up at my current destination.

A serious illness destroyed Helen Keller's sight and hearing before she reached the age of two. At seven, she was introduced to Ann Sullivan, the beloved teacher and friend who helped Helen to make contact with her world. Through sheer determination and resolve, Helen learned to speak, read, and write, and prepared herself for entry into prep school by the age of 16. She later enrolled at Radcliffe and graduated with honors. Her motto: "There are no handicaps, only challenges."

If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown, and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you're, gasp... disabled? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast? And what the **** does normal mean anyway?

Diagnosed with cerebral palsy as a child, Kyle Pease had grown up supporting his athlete brothers Brent and Evan from the sidelines. While his condition limited his ability to play sports, it didn't dampen Kyle's passion for them, nor did it stop the Pease family from including Kyle in various excursions. From rolling his wheelchair up Bridal Veil Falls in Yosemite National Park to zipping down Colorado snow slopes, there was never a dull moment with the Pease brothers. Where there was a wheel, there was a way to adventure.

A gorgeously crafted memoir about resilience, family, and forging your own way, by a woman born without legs. At the age of three, Eileen Cronin first realized that only she did not have legs. Her boisterous Catholic family accepted her situation as "God's will", treating her no differently than her 10 siblings, as she "squiddled" through their 1960s Cincinnati home. But when starting school, even wearing prosthetics, Cronin had to brave bullying and embarrassing questions.

A child survives the miracle of birth. Regrettably, the doctor discovers an abnormality. Born March 7th, 1973 as the 28th recorded birth to survive with a diagnosis of Eagle-Barrett Syndrome. The rare birth defect involves three triads of urological complications. Continued survival meant multiple surgeries, painful examinations, with tubes inserted into the urethra as the corrective procedures healed. The doctor’s frightening revelations, “a child rarely survives to the age of two.” Each birthday celebration an unknown, "The chance for your survival to the age of sixteen is rare," ...

Shot point-blank in the side of the neck, Michael Kiel was completely paralyzed from the neck down on April 16, 1993. As a 19-year-old sophomore at Penn State - Altoona campus, the world he knew vanished. It was turned upside down and inside out, and the next four months in the hospital and rehab center would test every fiber of his being. This memoir is about his perspective on life - his entire life - before, during, and after a life-altering spinal cord injury.

In Parkinson's & Recreation 2, Dennis shares ways in which he and his wife are traversing the progression of PD and is first and foremost a written legacy he is attempting to leave for his family. As a part of this attempt, Dennis has gone on a journey of uncovering his family roots. What would you feel if you discovered Viking kings in your lineage? What would you feel if you uncovered the mystery of how the Jernigan line was woven throughout the fabric of English nobility? What would such revelations mean for you and your family?

Buzz Bissinger’s twins were born three minutes—and a world—apart. Gerry, the older one, is a graduate student at Penn, preparing to become a teacher. His brother Zach has spent his life attending special schools. He’ll never drive a car, or kiss a girl, or live by himself. He is a savant, challenged by serious intellectual deficits but also blessed with rare talents: an astonishing memory, a dazzling knack for navigation, and a reflexive honesty that can make him both socially awkward and surprisingly wise.

Theirs was an unlikely life together. Sheila gave birth to Josephine on 11th May 1993 and for twenty-three years they co-existed in a loving mother-daughter relationship, but one with a difference. Josephine suffered catastrophic brain injury at birth, never spoke to Sheila, rarely smiled and was barely able to see the faces of the people who loved her.