Disability Memoir

CANCER WITHOUT FEAR–A YEAR TO LIVE is the remarkable unconventional story of Chuck Sirko's terminal cancer diagnosis. When Chuck refused mainstream's “Gold Standard of Care”, his wife Jacqueline dedicated herself to researching alternative methods of treatment. The goal: to make Chuck’s remaining time free from any repercussions of radiation and chemotherapy and to live life to the fullest.

Often used as a shorthand for tidiness or as the punchline of a joke, OCD is one of society’s most misunderstood disorders and it’s rarely spoken about with such honesty and openness. Beautifully written, moving and often darkly funny, Tuppence recounts what it feels like to share your mind with a nest of scorpions.

I am in a bar in Brooklyn listening to two men, my friends, discuss whether or not my life was worth living. So begins Chloé Cooper Jones' bold account of moving through the world in a body that looks different than most. Born with a rare congenital condition called sacral agenesis, she must contend not only with her own physical pain but the emotional discomfort of others. It is only when she unexpectedly becomes a mother that she confronts the demand to live life fully, propelling her on a journey across the globe, reclaiming the spaces she'd been denied, and denied herself.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

In this intimate story of relationship resilience, marine biologist Beth Mathews’s adventurous life as a professor and mother in Alaska is upended when her healthy husband is slammed by a rare type of stroke. Jim’s radical approach to recovery clashes with Beth’s instinct to keep him safe at home and sets them on a collision course as he insists on ambitious sailing expeditions with Beth and their young son in Alaska’s magnificent yet unforgiving waters.

My life has been nothing short of a miracle. A true triumph, even in the midst of adversity. In Deaf Blind Champion, I give you a front-row seat into how my life changed when I heard my diagnosis, and what I did to get through the depression that engulfed me to become an accomplished sportsman, a dad, life partner, son, brother, teammate, and activist.

In "You're Not Doing It Right," Ellen Patnaude bravely opens the door to the haunting reality of Lewy body dementia (LBD) and unravels its profound impact on families. One of the most common types of dementia after Alzheimer's disease, LBD is marked by fluctuations in cognition, hallucinations, and motor symptoms. The journey begins with subtle warnings of small changes in her mother's behavior that worry Patnaude's father, but go unnoticed by the author and her sibling.

I Kept Walking opens in 1940s Tehran when a misguided prank leaves three- year-old Minou frozen in fear. Days later, a doctor breaks the news to her mother: "Your daughter has polio." To understand why nothing is as it seems-the cause of her polio or why her dutiful Jewish mother, who was married off at 13, thwarted her dream of marriage, Minou must flee Iran and confront the psychological toll of her polio. I Kept Walking is the audacious account of a bold young woman who was unwilling to be crushed by polio or the prohibitions of a conservative society.

Unexpected Joy is a book about an inspirational young man who makes friends everywhere he goes. He is not like everyone else. He has special needs. He has taken his father and others on a journey they did not choose. His father learned to embrace the journey over many years. This is a story of struggle, depression, deliverance, redemption, acceptance, and eventually joy wrapped in an adventure of a lifetime of challenges.

My Autistic Fight Song is a memoir that follows Rosie Weldon’s journey from a college drop out as she tries to achieve her dream of being a qualified accountant. With the odds stacked against her and the stakes high, she refuses to give up on her dream. Of two things Rosie was sure. First, she wanted to be an accountant. Second, she was destined to be alone. But when life threw at her an autism diagnosis and a mystery girl, she was left asking: Who would employ her and was she capable of falling in love?

Born with a rare, incurable genetic disorder that doctors misdiagnosed until her 30s, Amy’s right leg swelled until it was 200 percent bigger than her left leg. Her peers bullied her for having an “elephant leg,” and she learned to hide her disability by wearing skirts. In an attempt to recreate her identity as a teenager, she competed in the Miss Junior American Coed Pageant, and—to her shock—she won, only to become known as “the beauty queen with the big leg”.

Klim's journey to greatness began behind the Iron Curtain, in communist-era Poland. His family made a bid for freedom in the 1980s and immigrated to Australia, where swimming became his passport into a new culture and eventually led him to become one of his adopted country's great sporting heroes. His crowning moment came at the 2000 Sydney Olympics, where he captured the hearts of millions with his gold medal performances and world record-breaking swims. But being a champion athlete does not come without personal challenges.

Ruth's tribe are her lively children and her filmmaker husband, Simon, who has motor neurone disease and can communicate only with his eyes. Ruth's other tribe are the friends who gather at the cove in Greystones, Co. Wicklow, and regularly throw themselves into the freezing cold water just for kicks. The Tragic Wives' Swimming Club, as they jokingly call themselves, meet to cope with the extreme challenges life puts in their way, not to mention the monster waves rolling over the horizon.

Shortly after his daughter, Leontine, was born, Christian Donlan's world shifted an inch to the left. He started to miss light switches and door handles when reaching for them. He would injure himself in a hundred stupid ways every day. First playful and then maddening, these strange experiences were the early symptoms of multiple sclerosis, an incurable and degenerative neurological disease.

The Underdogs tells the story of Karen Shirk, felled at age 24 by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled". Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life.

When the newly qualified vet, James Herriot, arrives in the small Yorkshire village of Darrowby, he has no idea of the new friends he will meet or adventures that lie ahead. From the author whose books inspired the BBC series All Creatures Great and Small, this first volume of unforgettable memoirs chronicles James Herriot's first years as a country vet, with the signature storytelling magic that has made him a favourite the world over.

A two-week vacation to the Florida Keys meant Mary and Jameson Sr. could share the beauty of their favorite turquoise-blue waters with their four children. On that serene day at Looe Key Reef, after they finished lunch on the boat, their oldest, ten-year-old Jameson Jr., was swimming among the marine life, capturing breathtaking footage of a sea turtle. Until a massive bull shark attacked.

In a single moment in time, Garret Frey was transformed from an active and energetic four-year-old to a quadriplegic, ventilator-dependent boy who struggled to make sense of a world in disarray. For seven years, Garret worked with Clinical Psychologist Dr. Karen Pirnot as Garret learned that his mental powers could help compensate for the loss of body function. As I Am details the struggles of Garret's mother to advocate for a "normal" childhood education for her son.

Jon Sadler was four when he had his first seizure following an episode of high fever. That made him the object of constant concern to his family and dictated almost every decision he made. With medication, Jon was deemed seizure-free for several years, though his speech was permanently affected. After a college sailing accident, he had his first grand mal seizure (loss of consciousness and violent muscle contractions).

Operated on as an infant, without anesthesia, Wendy P. Williams began life at war with her body. There were tubes everywhere, in and out of every opening, her mother reminded her on every anniversary of her surgery. Autobiography of a Sea Creature takes listeners on Williams’ difficult sensory journey toward healing, as she communes along the way with horseshoe crabs, dolphins, and other marine life that taught her the restorative power of beauty, resilience, and interdependence.