Disability Memoir

The modern world is built for neurotypicals. Needless noise, bright flashing lights, small talk, implication and ‘unwritten rules’; it can be a nightmarish dystopia as far as the autistic population is concerned. In Untypical, Pete Wharmby lays bare the experience of being ‘different’, explaining with wit and warmth just how exhausting it is to fit into a world not designed for you.

What it really feels like to live with type 1 diabetes—true stories inside. If you’ve ever felt overwhelmed, frustrated, or alone with type 1 diabetes, this book is for you. Written by Neil Greathouse (@thebetes), Type 1 Diabetes – True Stories is a powerful collection of honest, hilarious, and sometimes heartbreaking moments from over 30 years of living with T1D.

Growing up in Mineral Wells, Texas during the 1950s and 60s was anything but idyllic for Walter Ashby. Due to a misdiagnosis and medical error, his sister Janie went from being a lively young girl to a shell of a person who required their parents’ attention 24 hours a day, every day. To add insult to injury, his parents received another blow: before Walter was six-years-old, he lost 98 percent of his vision, leaving him legally blind.

Bonner Paddock grew up just wanting to be ordinary. Diagnosed with cerebral palsy at age eleven, he guarded the truth about his health, building a normal life and keeping his secret from everyone—most of all himself—for the next eighteen years. But the sudden death of a friend’s young son due to cerebral palsy forced Bonner to reevaluate who he was and spurred him to pursue one breathtaking experience after another.

Growing up with Autism is hard enough. Growing up with Autism when you're a little gay weirdo is almost impossible. Greatest Hits of my Childhood Trauma is the story of a boy fighting to exist in a world that would rather throw him away. From overly religious mothers to prison sentences, drug overdoses, psychiatric facilities, bizarre sexual encounters, and queer high school romance, this tale of 90s middle America is heartbreaking, hilarious, and hard to put down. Alex Dark takes us through the darkest parts of his life with a charm that will keep you coming back for more.

After being diagnosed with muscular dystrophy, Melissa Haugen felt alone. In an effort to make others feel seen, she vulnerably shares her personal story of living with muscular dystrophy.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.

In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a “hunchback” like the “little locksmith” who does odd jobs at her family’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own.

On October 3, 2005, Kapacziewski and his soldiers were coming to the end of their tour in Northern Iraq when their convoy was attacked by enemy fighters. A grenade fell through the gunner’s hatch and exploded, shattering Kapacziewski’s right leg below the knee, damaging his right hip, and severing a nerve and artery in his right arm. He endured more than forty surgeries, but his right leg still wasn’t healing as he had hoped, so in March 2007, Kapacziewski chose to have it amputated.

Our aim with this narrative is to share our journey through the labyrinth of cancer treatment—the decisions we faced, the paths we chose, and, most importantly, the lessons we learned. We hope to offer guidance, support, and perhaps a sense of solidarity to others who find themselves on a similar journey. This is not your typical medical guide; it is a well-researched companion for every aspect of your cancer journey and a deeply personal account of battling cancer from the perspective of a spouse.

This is a love letter from son to father. Part Big Russ and Me, part ADHD Is Awesome, Leland’s book, Born Lucky, is set to take its place as one of the most inspirational stories and victories for someone with special needs.

It was a crisp winter day when six-year-old Kacey McCallister lost both of his legs, forever altering the course of his life. This unthinkable trial could have broken him, but from that day forward, he chose to rise above his circumstances and learn to live without limits. For those struggling to find hope in the depths of physical, spiritual, or emotional trials, this incredible story of one man’s unbreakable courage will inspire and motivate listeners to not only survive, but thrive amidst life’s challenges.

In this powerful new history, New York Times bestselling author Max Wallace draws on groundbreaking research to reframe Helen Keller’s journey after the miracle at the water pump, vividly bringing to light her rarely discussed, lifelong fight for social justice across gender, class, race, and ability. Peeling back the curtain that obscured Keller’s political crusades in favor of her “inspirational” childhood, After the Miracle chronicles the complete legacy of one of the 20th century’s most extraordinary figures.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.

From the disability rights advocate and creator of the #DisabledAndCute viral campaign, a thoughtful, inspiring, and charming collection of essays exploring what it means to be black and disabled in a mostly able-bodied white America.

Despite being a winner of the Pulitzer Prize for Poetry in 2008, Philip Schultz could never shake the feeling of being exiled to the “dummy class” in school, where he was largely ignored by his teachers and peers and not expected to succeed. Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.

Weeks after giving birth, Holly Frances went from being a healthy 26-year-old new mom to paralyzed and on life support—in less than 72 hours. Diagnosed with a rare autoimmune disorder called Guillain-Barre Syndrome, Holly was trapped in her body, unable to move, speak, or hold her newborn daughter. Life Support tells the story of how Holly struggled to overcome the despair, hopelessness and physical pain, to regain her health and get back to being a mother to her daughter.

Thirty-four-year-old Rebecca Alexander is a psychotherapist, a spin instructor, a volunteer, and an athlete. She is also almost completely blind, with significantly deteriorated hearing. Not Fade Away is a deeply moving exploration of the obstacles we all face-physical, psychological, and philosophical. Rebecca's story is an exquisite reminder to live each day to its fullest.

At first glance, Josh Hanagarne seems an improbable librarian. He stands 6'7", competes in strongman contests, and was diagnosed in high school with Tourette's syndrome. But books are his first love - Josh's earliest memories involve fantastic adventures between the pages of Gulliver’s Travels and a passionate infatuation with Fern from Charlotte’s Web. Everything in Josh’s life - from his Mormon upbringing, to finally finding love, to learning to control his tics through lifting - circles back to a close connection with books.