Disability Memoir

At once heartbreakingly honest and strikingly witty, Holding On by Letting Go is the unforgettable true story of one woman's journey through despair to acceptance and hope. Ultimately, it is a portrayal of the light that can be found in the darkest of times.

When Phil Hanley was in first grade, he realized something that would forever set him apart from his peers: he couldn’t read. His teachers were ill-equipped to assist him, and he slipped through the school’s cracks, year by year falling further and further behind his friends. Finally, he was diagnosed with dyslexia, a learning disability that would shape the rest of his life. Unable to pursue college or a traditional job, Phil was thrust into a life defined by unconventional twists. Eventually, he found himself on a stage with a microphone, a spotlight, and five minutes of jokes.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits, an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes, had earned him the label "social deviant". No guidance came from his mother or his father. It was no wonder he gravitated to machines, which could, at least, be counted on.

On a hot July afternoon, Joni Eareckson Tada's life was dramatically altered in a split second. A reckless dive into shallow water took an athletic young woman from health and success to life as a quadriplegic in a wheelchair. In the 45 years since the release of this book - which has more than five million copies in print in over 40 languages - Joni's earnest struggle to find hope has resonated with millions of listeners around the world.

At six months old, Kenneth is struck by polio, leaving him physically marked and setting the tone for a life shaped by struggle. Abandoned by his mother at the hospital, he is taken in by Pearlie Mae, a blind but fearsome relative who raises him with tough love and relentless discipline. By three, Kenneth experiences haunting visions of celestial beings that feel like a divine or infernal claim on his soul, adding a spiritual weight to his physical trials. Life with Pearlie Mae is harsh; she demands survival skills rather than offering comfort. Kenneth learns early to navigate a world that ...

Sabrina Greenlee was born to teenage parents in the shadow of South Carolina’s Clemson University, and her story unfolds against the backdrop of her challenging upbringing in a family that lacked the means—financial and emotional—to offer her and her two brothers the safety, comfort, and love every child deserves. When she was a teenager, her beloved younger brother, Dilly, died in a drunk driving accident. In her early twenties, Sabrina faced the tragic loss of her fiancé and one true love. A decade later, she was brutally and publicly assaulted, resulting in the loss of her vision.

Temple Grandin, Ph.D., is a gifted animal scientist who has designed one third of all the livestock-handling facilities in the United States. She also lectures widely on autism - because Temple Grandin is autistic, a woman who thinks, feels, and experiences the world in ways that are incomprehensible to the rest of us.

Dietetics practitioners are food and nutrition experts who help people live healthier lives. They work in a variety of settings—from hospitals and research to sports, schools, nursing homes, and the food industry. Yet, despite the diversity of the populations they serve, the dietetics profession is predominantly female, white, and able-bodied. Only 2% of dietetics practitioners have a disability compared to 29% of US adults. There is an urgent need to diversify the field—especially by including practitioners with disabilities.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.

In 1997, Daniel Trush, a bright, active, outgoing twelve-year-old, collapsed on the basketball court and fell into a deep coma. Rushed to the hospital, he was found to have five previously undetected aneurysms in his brain. One had burst, causing a massive cerebral hemorrhage. While Daniel remained comatose, the uncontrolled pressure inside his skull caused him to suffer multiple strokes.

The incredible life story of Haben Girma, the first Deafblind graduate of Harvard Law School, and her amazing journey from isolation to the world stage. Haben defines disability as an opportunity for innovation. She learned non-visual techniques for everything from dancing salsa to handling an electric saw. She developed a text-to-braille communication system that created an exciting new way to connect with people.

This groundbreaking memoir offers a glimpse into an activist's journey to finding and cultivating community and the continued fight for disability justice, from the founder and director of the Disability Visibility Project.

In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced.

At the age of four, Joshua Miele was blinded and badly burned when a delusional neighbor poured sulfuric acid over his head in a crime that shocked New York. It could have ended his life, but instead, Miele—naturally curious, and a born problem solver—not only recovered, but thrived. Throughout his life, Miele has found increasingly inventive ways to succeed in a world built for the sighted, and to help others to do the same. At first reluctant to even think of himself as blind, he eventually embraced his blindness and became a committed advocate for disability and accessibility

Thousands of soldiers die every year to defend their country. United States Army Staff Sergeant Travis Mills was sure that he would become another statistic when, during his third tour of duty in Afghanistan, he was caught in an IED blast four days before his 25th birthday. Against the odds, he lived, but at a severe cost - Travis became one of only five soldiers from the wars in Afghanistan and Iraq to survive a quadruple amputation.

Oksana Masters was born in Ukraine—in the shadow of Chernobyl—seemingly with the odds stacked against her. She came into the world with one kidney, a partial stomach, six toes on each foot, webbed fingers, no right bicep, and no thumbs. Her left leg was six inches shorter than her right, and she was missing both tibias.

First came the boom - the loud, deep, unapologetic bellow that seemed to erupt from the very core of the Earth. Eerily, the majestic high-rise slowly leaned to the south. On the 78th floor of the World Trade Center's north tower, no alarms sounded, and no one had information about what had happened at 8:46 a.m. on September 11, 2001. Blind since birth, Michael couldn't see a thing, but he could hear the sounds of shattering glass, falling debris, and terrified people flooding around him and his guide dog, Roselle.

Nathan Glad was not expected to survive birth. Born with OI (Osteogenesis Imperfecta), also known as Brittle Bone, he has faced remarkable life challenges. Despite it all, Nathan remains determinately happy. This book contains his 7 Hacks for Happiness.

Can four words change a life? On a rainy autumn day, four words changed the life of a young cardiology nurse. Four little words hurled across a dimly lit exam room struck fear in a mother’s heart. “You are legally blind.” Anita’s journey through blindness began with the devastating diagnosis of retinitis pigmentosa, an untreatable, degenerative retinal disease. At the age of 33, she was forced to face not only vision loss, but also the loss of driving, her nursing career, and even her independence. Anita was convinced that life was over.

This inspiring autobiography by Helen Keller is an account of her life from her family history up to her last years of college, supplemented by her personal letters from age 7 to 21. This edition includes letters and reports contributed by her teacher, Anne Sullivan, and the editor, John Albert Macy.