Disability Memoir

On June 10, 2008, Carol Decker walked through the hospital doors a healthy woman with flu-like symptoms and early labor contractions. Three months later, she returned home a blind triple-amputee struggling to bond with a daughter she would never see. Unshattered recounts Carol's fight for survival against sepsis and its life-shattering complications. From excruciating skin grafts to learning how to function in daily life without lower legs, a left hand, and her sight, Carol takes us on a personal and raw, yet inspiring journey.

At age 16, James Tate Hill was diagnosed with Leber’s hereditary optic neuropathy, a condition that left him legally blind. After high school friends stopped calling and a disability counselor advised him to aim for C's in his classes, he used his remaining blurry peripheral vision to pretend he could still see. Feigning eye contact, memorizing common routes, filling shelves with paperbacks he read via tape cassettes, he organized his life around passing for sighted.

Growing Up Disabled in Australia is the fifth book in the highly acclaimed, best-selling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt.

When Jade unexpectedly suffered from a rare condition which left her paralysed and in a wheelchair at the age of twelve, she never imagined that she'd one day meet her husband John and that together they would take to social media to dispel the stigma surrounding disability, one story at a time. From questions about suffering and sex to family and faith, Jade and John speak honestly and humorously about life as an inter-able couple.

Vaneetha Risner contracted polio as an infant, was misdiagnosed, and lived with widespread paralysis. She lived in and out of the hospital for 10 years and, after each stay, would return to a life filled with bullying. When she became a Christian, though, she thought things would get easier, and they did: carefree college days, a dream job in Boston, and an MBA from Stanford where she met and married a classmate. But life unraveled. Again.

At six months old, Kenneth is struck by polio, leaving him physically marked and setting the tone for a life shaped by struggle. Abandoned by his mother at the hospital, he is taken in by Pearlie Mae, a blind but fearsome relative who raises him with tough love and relentless discipline. By three, Kenneth experiences haunting visions of celestial beings that feel like a divine or infernal claim on his soul, adding a spiritual weight to his physical trials. Life with Pearlie Mae is harsh; she demands survival skills rather than offering comfort. Kenneth learns early to navigate a world that ...

As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast. A personal soundtrack was Hay’s determined compensation for his condition.

On paper, Coach Rob Mendez sounds like any other football coach on any other field across America: passionate, authoritative, knowledgeable. But he’s unlike any other coach you know - in fact, he’s probably unlike any other person you know. Born with an extraordinarily rare condition called tetra-Amelia syndrome, Rob has no arms or legs. He moves with the assistance of a custom-made, motorized wheelchair that he operates with his back and shoulders.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).

Sumérgete en la extraordinaria vida de Gerardo Schmedling, un hombre cuyo poder espiritual inquebrantable desafió las adversidades de la parálisis de Guillain-Barré en su juventud y las secuelas que afectaron su movilidad de por vida. Este relato, narrado por su prima María Mercedes Olivares Schmedling, conocida como Mechas, quien compartió con él desde su infancia, revela cómo Gerardo se convirtió en el arquitecto de un movimiento global de transformación personal y social.

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

This is a love letter from son to father. Part Big Russ and Me, part ADHD Is Awesome, Leland’s book, Born Lucky, is set to take its place as one of the most inspirational stories and victories for someone with special needs.

When Jeremy and Emily Freeman’s teenage son Caleb was in a devastating car accident, doctors gave him a 10 percent chance of survival. Fear of losing a child was all too fresh for the Freemans—their seven-year-old son, Trey, had died just four years earlier from a genetic immunodeficiency. But God. In #butGod Jeremy shares the incredible story of Caleb’s recovery, the darkness that nearly overtook their family in the waiting, and the #butGod movement that captured the prayers of Christians around the world.

Born without arms or legs below his elbows and knees, Kyle Maynard excels as a champion athlete, inspirational speaker, college student, and male model. No Excuses is his inspirational autobiography that shows how a positive, can-do attitude gives someone we might see as disadvantaged the advantage over life.

It never gets better, but it does get easier. That’s the first thing Roz says to anyone who asks him for advice. Anyone who’s fighting like hell, just hanging on or putting the pieces back together. When you’re broken, fixed becomes an obsession.

Hey guys, you might know me already from one of my social media channels where I talk about the highs and lows of living with Tourette's syndrome. I've loved sharing those times with you and - as there are lots of things I can't fit into a 60-second video - I've decided to write a book! It's the full story of how I came to be diagnosed and how having Tourette's has changed my life. Writing it has given me an opportunity to talk about things I haven't felt ready to share before - for some reason it's easier to put down private things in written words than in a video!

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

After a diagnosis of a degenerative eye disease, John Samuel’s life—and his chance at success—started to vanish. In a world systemically unequipped for accessibility, disability inclusion is often left out of conversations about diversity. For people with disabilities, it can feel impossible to adapt and thrive when you’re already set up for failure.

When Schuyler Rummel-Hudson was 18 months old, a question about her lack of speech by her pediatrician set in motion a journey that continues today. When she was diagnosed with bilateral perisylvian polymicrogyria (an extremely rare neurological disorder), her parents were given a name for the monster that had been stalking them from doctor to doctor, and from despair to hope, and back again.

Despite being a winner of the Pulitzer Prize for Poetry in 2008, Philip Schultz could never shake the feeling of being exiled to the “dummy class” in school, where he was largely ignored by his teachers and peers and not expected to succeed. Not until many years later, when his oldest son was diagnosed with dyslexia, did Schultz realize that he suffered from the same condition.