Disability Memoir

Le 8 décembre 1995, à la suite d’un accident vasculaire cérébral, Jean-Dominique Bauby est plongé dans un coma profond. Quand il en sort, toutes ses fonctions motrices sont détériorées. Atteint de ce qu'on appelle le " locked-in syndrome ", il est littéralement enfermé à l'intérieur de lui-même ; il ne peut plus bouger, manger, parler ou même simplement respirer sans assistance. Dans ce corps inerte, seul un œil bouge.

Whether you’re facing your own hip replacement surgery or want to train for something like a triathlon, or you simply find yourself facing extreme challenges in your own life, this book is your guide to putting steel in your bones and doing what you may never have thought was possible.

Henry Markram is the Elon Musk of neuroscience, the man behind the billion-dollar Blue Brain Project to build a supercomputer model of the brain. He has set the goal of decoding all disturbances of the mind within a generation. This quest is personal for him. The driving force behind his grand ambition has been his son Kai, who has autism. Raising Kai made Henry Markram question all that he thought he knew about neuroscience, and then inspired his groundbreaking research that would upend the conventional wisdom about autism, expressed in his now-famous theory of Intense World Syndrome.

Clem Bastow grew up feeling like she’d missed a key memo on human behaviour. She found the unspoken rules of social engagement confusing, arbitrary and often stressful. Friendships were hard, relationships harder and the office was a fluorescent-lit nightmare of anxiety. It wasn’t until Clem was diagnosed as autistic, at age 36, that things clicked into focus. Clem reflects as an autistic adult on her formative experiences as an undiagnosed young person, from the asphalt playground of St Joseph's Primary School in Melbourne to working as an entertainment journalist in Hollywood.

Andrea Lytle Peet was thirty-three years old—an urban planner living in D.C., newly married, and a triathlete—when she received the death sentence of an ALS diagnosis (also known as Lou Gehrig's disease). After grappling with the fact that she will likely become paralyzed and die within two to five years, Andrea experienced an unexpected spark that changes her outlook in the most magnificent way.

I discover a "lost" aunt, separated from our family due to racism and discrimination against the disabled. She had a mental disability due to childhood meningitis. She was taken away in 1942 when all Japanese Americans were considered the enemy and imprisoned. She then became a "ward" of the state. We believed she had died but 70 years later found her alive and living a few miles from our family farm. How did she survive? Why was she kept hidden? How did both shame and resilience empower my family to forge forward in a land that did not want them?

A short, inspirational audiobook from Henry Fraser, a young quadriplegic motivational speaker and artist. Henry Fraser was a 17-year-old sports enthusiast and senior prefect when he broke his spinal cord and was left paralysed from the shoulders down. Life as he knew it was over, and yet, through extraordinary determination and a positive attitude, he has forged a successful career as an inspirational speaker and an artist.

David Aguilar was born missing part of one arm, a small detail that seemed to define his life and limit people’s ideas of who he was and who he could be. But in this funny and heartfelt memoir, David proves that he can throw out the rulebook and people’s expectations and maybe even make a difference in the world—and all with a sense of humor.

Quadriplegics simply do not walk again - yet millions watched as Chris Norton defied incredible odds and took step by impossible step across his graduation stage. With his fiancée, Emily, by his side, those unbelievable steps became the start of an extraordinary journey for them both. Told from both of their unique perspectives, this moving story invites you to find, as Chris and Emily have, that God can transform our lowest points into life's greatest gifts.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

Learn about narcolepsy and one persons struggle living with the disease before and after diagnosis. Have you ever woke up and not known where you were or how you got their? You may have narcolepsy. Have you ever laughed so hysterically you fell down motionless? You may have cataplexy. Have you ever been accused of being drunk or on drugs, even though you know you were not?

Twenty-three-year-old Ardra Shephard is sleeping with the wrong guy, living in a crappy apartment, and spending money she doesn't have on designer shoes, boozy brunches, and weekends in NYC. Making mistakes while you figure stuff out is what your twenties are all about. Then a doctor tells Ardra she has MS, and those two letters split her life into a Before and After.

One afternoon, Emma Nadler gets a call from her daughter's doctor that changes her life forever. Faced with the realities of raising a child with a rare genetic condition, Nadler must confront her preconceptions of motherhood and her perfectionistic beliefs. Nadler—who also happens to be a psychotherapist—offers a rare window into the unconventional ways she and her family adapt to their improbable path. Every relationship in her life—with herself, her husband, children, friends, and even clients—is reimagined as she navigates the heartbreak and hilarity of her daily life.

At the age of 27, Whitney Dafoe was forced to give up his life as a photographer who traveled the world. Bit by bit a mysterious illness stole away the pieces of his life: First, it took the strength of his legs, then his voice, and his ability to eat. The Puzzle Solver follows several years in which he desperately sought answers. Whitney's father, Ron Davis, PhD, a world-class geneticist at Stanford University whose legendary research helped crack the code of DNA, suddenly changed the course of his career in a race against time to cure his son's debilitating condition.

At the age of 30, Jake found himself hospitalized, grappling with the weight of anxiety, depression, and paranoia. Soon, he received the life-altering diagnosis of schizophrenia. In this intimate and illuminating book, you are invited into Jake's world, a world he shares with his mother, Laurette, through alternating chapters.

This is my inspirational true story of childhood sexual abuse that I endured. The abuse was a secret, even to me, due to the fact that all the painful images were locked up in my subconscious for close to 37 years.

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

Annie and Rolf Lulloff were entering an exciting stage of life in 1976 when the first signs of health issues that lie ahead for Annie began to emerge. A sudden loss of sense of smell, severe anxiety attacks, vision issues, and other neurological challenges piled up, eventually culminating in a diagnosis of Parkinson’s disease on New Year’s Eve, 1989. But the Lulloffs were not about to let Parkinson’s get the best of them.

When Jade unexpectedly suffered from a rare condition which left her paralysed and in a wheelchair at the age of twelve, she never imagined that she'd one day meet her husband John and that together they would take to social media to dispel the stigma surrounding disability, one story at a time. From questions about suffering and sex to family and faith, Jade and John speak honestly and humorously about life as an inter-able couple.

A dramatic and remarkable narrative of an extraordinary teacher's determination, from the author of the Sunday Times bestsellers The Tiger's Child and One Child. Torey Hayden faced six emotionally troubled kids no other teacher could handle - three recent arrivals from battle-torn Northern Ireland, badly traumatized by the horrors of war; an eleven-year-old boy, who only knew life inside an institution; an excitable girl, aggressive and sexually precocious at the age of eight; and seven-year-old Leslie, perhaps the most hopeless of all, unresponsive and unable to speak.