Disability Memoir

Athena Stevens has never learned the name of the doctor whose lack of intervention at her birth lead to her cerebral palsy, but she feels the consequences of his actions – and inaction – every day. The factor observed first and foremost in her life will forever be the effects of what other people have done to her, rather than her accomplishments. And yet, she was groomed to believe that she would overcome any force that stood in her way.

In her moving account of how she came to understand the world around her despite being blind and deaf since childhood, Helen Keller confirms that no physical obstacle can hinder the achievements of the human mind. Included with Keller's poignant autobiography are her letters, spanning 15 years, which reveal her remarkable intellectual growth and empathic soul. Commentary by her teacher, Anne Sullivan, and the book's original editor is also featured, providing illuminating insight from two of Keller's closest companions.

Bonner Paddock grew up just wanting to be ordinary. Diagnosed with cerebral palsy at age eleven, he guarded the truth about his health, building a normal life and keeping his secret from everyone—most of all himself—for the next eighteen years. But the sudden death of a friend’s young son due to cerebral palsy forced Bonner to reevaluate who he was and spurred him to pursue one breathtaking experience after another.

It never gets better, but it does get easier. That’s the first thing Roz says to anyone who asks him for advice. Anyone who’s fighting like hell, just hanging on or putting the pieces back together. When you’re broken, fixed becomes an obsession.

Growing up in Mineral Wells, Texas during the 1950s and 60s was anything but idyllic for Walter Ashby. Due to a misdiagnosis and medical error, his sister Janie went from being a lively young girl to a shell of a person who required their parents’ attention 24 hours a day, every day. To add insult to injury, his parents received another blow: before Walter was six-years-old, he lost 98 percent of his vision, leaving him legally blind.

On October 3, 2005, Kapacziewski and his soldiers were coming to the end of their tour in Northern Iraq when their convoy was attacked by enemy fighters. A grenade fell through the gunner’s hatch and exploded, shattering Kapacziewski’s right leg below the knee, damaging his right hip, and severing a nerve and artery in his right arm. He endured more than forty surgeries, but his right leg still wasn’t healing as he had hoped, so in March 2007, Kapacziewski chose to have it amputated.

Jan Grue was diagnosed with spinal muscular atrophy at the age of three. Shifting between specific periods of his life - his youth with his parents and sister in Norway; his years of study in Berkeley, St. Petersburg, and Amsterdam; and his current life as a professor, husband, and father - he intersperses these histories with elegant, astonishingly wise reflections on the world, social structures, disability, loss, relationships, and the body: in short, on what it means to be human.

Find Another Dream, written and performed by Maysoon Zayid, is the true story of how a Muslim Jersey girl with cerebral palsy creates her own path to stardom. The daughter of Palestinian immigrants, as a child she dreamed of one day dancing on Broadway. As a teen, a bubble-bursting choreographer told her to “find another dream”, so she set her sights on becoming a soap star, undeterred by the fact that the odds were against her.

On June 10, 2008, Carol Decker walked through the hospital doors a healthy woman with flu-like symptoms and early labor contractions. Three months later, she returned home a blind triple-amputee struggling to bond with a daughter she would never see. Unshattered recounts Carol's fight for survival against sepsis and its life-shattering complications. From excruciating skin grafts to learning how to function in daily life without lower legs, a left hand, and her sight, Carol takes us on a personal and raw, yet inspiring journey.

In early 2011, Yolanda Hadid was struck by mysterious symptoms including brain fog, severe exhaustion, migraines, and more. Over the months and years that followed, she went from being an outspoken, multitasking, hands-on mother of three, reality TV star, and social butterfly to a woman who spent most of her time in bed. Yolanda was turned inside out by some of the country's top hospitals and doctors, but due to the lack of definitive diagnostic testing, she landed in a dark maze of conflicting medical opinions.

In 1895, a specialist straps five-year-old Katharine Hathaway, then suffering from spinal tuberculosis, to a board with halters and pulleys in a failed attempt to prevent her from becoming a “hunchback” like the “little locksmith” who does odd jobs at her family’s home. Forced to endure her confinement for ten years, Katharine remains immobile until age fifteen, only to find that none of it has prevented her from developing a deformity of her own.

Ever since he was small, John Robison had longed to connect with other people, but by the time he was a teenager, his odd habits—an inclination to blurt out non sequiturs, avoid eye contact, dismantle radios, and dig five-foot holes (and stick his younger brother in them)—had earned him the label “social deviant.” No guidance came from his mother, who conversed with light fixtures, or his father, who spent evenings pickling himself in sherry. It was no wonder he gravitated to machines, which could, at least, be counted on.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

Our aim with this narrative is to share our journey through the labyrinth of cancer treatment—the decisions we faced, the paths we chose, and, most importantly, the lessons we learned. We hope to offer guidance, support, and perhaps a sense of solidarity to others who find themselves on a similar journey. This is not your typical medical guide; it is a well-researched companion for every aspect of your cancer journey and a deeply personal account of battling cancer from the perspective of a spouse.

In this powerful new history, New York Times bestselling author Max Wallace draws on groundbreaking research to reframe Helen Keller’s journey after the miracle at the water pump, vividly bringing to light her rarely discussed, lifelong fight for social justice across gender, class, race, and ability. Peeling back the curtain that obscured Keller’s political crusades in favor of her “inspirational” childhood, After the Miracle chronicles the complete legacy of one of the 20th century’s most extraordinary figures.

It was a crisp winter day when six-year-old Kacey McCallister lost both of his legs, forever altering the course of his life. This unthinkable trial could have broken him, but from that day forward, he chose to rise above his circumstances and learn to live without limits. For those struggling to find hope in the depths of physical, spiritual, or emotional trials, this incredible story of one man’s unbreakable courage will inspire and motivate listeners to not only survive, but thrive amidst life’s challenges.

Jeremy Schreiber was on top of the world—athletic, newly married, successful. And then something went terribly wrong. In this moving memoir, he shares his journey after he received a terrifying diagnosis: ALS. As the devastating disease robbed him of movement and speech, he was abandoned by his wife and betrayed by a society that shuns people with disabilities. But it’s not all doom and gloom. He found love, support, and a powerful purpose. While fighting for his independence and then for his life, Jeremy gave his all to the ALS and disability communities.

What would your life look like if you measured success by your improvements instead of your victories? Chris Nikic, the first person with Down syndrome to ever complete an IRONMAN® triathlon, inspires others to achieve their goals by getting one percent better better every day.

The modern world is built for neurotypicals. Needless noise, bright flashing lights, small talk, implication and ‘unwritten rules’; it can be a nightmarish dystopia as far as the autistic population is concerned. In Untypical, Pete Wharmby lays bare the experience of being ‘different’, explaining with wit and warmth just how exhausting it is to fit into a world not designed for you.

Sipping Dom Pérignon Through a Straw is an inspirational and truly intersectional memoir from global humanitarian and disability-justice advocate Eddie Ndopu—a queer, Black wheelchair user. Ndopu’s incredible story begins with his childhood being raised by a single mother fleeing Apartheid South Africa before rocketing through every boundary put in front of him—because of his disability, his ethnicity, and his sexuality—to eventually hold official positions at both the United Nations and the World Economic Forum.