Disability Memoir

In the summer of 2019, journalist Melissa Blake penned an op-ed for CNN Opinion. A conservative pundit caught wind of it, mentioning Blake’s work in a YouTube video. What happened next is equal parts a searing view into society, how we collectively view and treat disabled people, and the making of an advocate. After a troll said that Blake should be banned from posting pictures of herself, she took to Twitter and defiantly posted three smiling selfies, all taken during a lovely vacation in the Big Apple. Now, in her manifesto, Beautiful People, Blake shares her truths about disability.

My name is Joseph A. Peragine, and I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance. Every October, I especially make it a priority to tell my family and loved ones how much I love them.

Follow the journey of Tanita Allen, a courageous Black woman confronting the challenges of Huntington's Disease. We Exist documents her harrowing two-year struggle for a diagnosis while living in a toxic NYC apartment that triggered the early onset of her condition. Learn how she wages an impossible, decade-long legal battle against those responsible, unveiling the staggering barriers faced by marginalized communities in both medical and legal systems.

If you grow up in a world where wrinkles are practically illegal, going bald is cause for a mental breakdown, and women over size zero are encouraged to shoot themselves (immediately), what the hell do you do if you're, gasp... disabled? Whatever body you’re born into, the pressure to be normal is everywhere. But have you ever met a normal person? What do they look like? Where do they live? What do they eat for breakfast? And what the **** does normal mean anyway?

Born with severe brain defects, Suzy was sentenced to a life of “nevers.” With the unwavering support of her mother, Jane, and extended family, Suzy’s miraculous journey has given many experts reason to question the medical textbooks that have been written. From predictions that she would never walk, talk, or function in society, Suzy overcame all these obstacles with determination and perseverance—not even allowing final-stage renal failure at the age of twenty-four to deter her.

In a Lifetime Fight: Living with Cerebral Palsy author Amanda Forry/Fino invites listeners to follow her journey towards healing and hope. After suffering a disabling accident and enduring a lifetime of abuse, Amanda is forced to rely on her own strength and courage to confront the traumas of her past and to find a path forward.

Do you like sex, drugs, and rock 'n' roll? Do you know what jails, institutions, and death are all about? I don't want to be controlled, but can I control myself? Who says I have to live by society's rules?

The Underdogs tells the story of Karen Shirk, felled at age 24 by a neuromuscular disease and facing life as a ventilator-dependent, immobile patient, who was turned down by every service dog agency in the country because she was "too disabled". Her nurse encouraged her to tone down the suicidal thoughts, find a puppy, and raise her own service dog. Karen did this, and Ben, a German shepherd, dragged her back into life.

When a tragic accident crushes her dreams, can a young woman fight to thrive once again? As a teen growing up in the '80s, Jenny Smith loved life. But, when a spinal cord injury paralyzed her from the chest down, her days of gymnastics and playing music came to an agonizing end. Completely reliant on others for her most basic needs, privacy and independence became things of the past. Refusing to give up, Jenny struggled along the exhausting, painful, and endless road to living as a quadriplegic.

A revelatory collection of essays on the DeafBlind experience, and a manifesto on the power and untapped potential of touch. Born Deaf into an ASL-speaking family and blind by adolescence, John Lee Clark learned to embrace the possibilities of his tactile world. He is on the frontlines of the Protactile movement, which gave birth to an unprecedented tactile language and a way of life based on physical connection.

My name is Joseph A. Peragine. I am a paranoid schizophrenic. On October 22, 2000, I tried to kill myself in a severely hallucinogenic state due to undiagnosed paranoid schizophrenia. I was suffering from this illness for many years leading up to that day. Every October since I started my recovery in 2000, I reflect on my life and am extremely thankful that I was fortunate enough to have been given a second chance.

The spoiler is that Platinum, the shiny precious metal we may associate with glamour and wealth, was an ingredient in one of the chemo compounds. In this context, it functioned as a poison, carrying out the bizarre miracle of chemotherapy where death and life meet. Tracing through the paradoxical tensions of treatment, healing from treatment, succumbing to medicine and claiming autonomy, Hannah Kate guides us through essential components of the journey. There are material resources that will support you—yet much of what is needed requires connecting with the fundamental elements of life.

What do you do when you wake up in your mid-40s and realize you've been living a lie your whole life? Do you tell? Or do you keep it to yourself? Laura James found out that she was autistic as an adult, after she had forged a career for herself, married twice and raised four children. Odd Girl Out tracks the year of Laura's life after she receives a definitive diagnosis from her doctor, as she learns that 'different' doesn't need to mean 'less' and how there is a place for all of us, and it's never too late to find it.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

During an ordinary Fall afternoon, Kimber Hanchey-Ogden was delivered devastating news: Seth, her 17-year-old son, had been hit by a car and airlifted to a hospital! Having sustained a traumatic brain injury, doctors told her that if Seth made it, he would never be able to walk or talk; he would not remember his past or understand humor. And that was just for starters.

By combing through the journals that Hannah has kept for much of her life, this collection of narrative essays delivers a fuller picture of her life, her experiences, and the things she's figured out about family, faith, love, sexuality, self-worth, friendship, and fame. Revealing what makes Hannah tick, this sometimes cringeworthy, poignant collection of stories is sure to deliver plenty of Hannah's wit and wisdom - and hopefully encourage you to try your hand at her patented brand of reckless optimism.

Despite a childhood affliction that left James Cabezas with the grim knowledge that he might one day go blind, he led a courageous career in law enforcement for more than four decades. With his vision intact, Jim proudly wore a police uniform, tracking drug dealers, thieves, and an armed robber in the precarious days before Baltimore cops wore bullet proof vests. He performed his duty relentlessly, despite interference from corrupt, racist and inept cops.While the world’s finest eye doctors kept him from going blind, Jim worked as a deep covert, driving a cab in Baltimore’s notorious ...

On Boxing Day 2022, in Rome, Hanif Kureishi had a fall. When he came to, in a pool of blood, he was horrified to realise he had lost the use of his limbs. He could no longer walk, write or wash himself. He could do nothing without the help of others, and required constant care in a hospital. So began an odyssey of a year through the medical systems of Rome and Italy, with the hope of somehow being able to return home, to his house in London.

Success is a Special Need is the powerful memoir of Jeffrey L. McCain, who shares his life story of overcoming dyslexia to build a successful business. With personal anecdotes and reflections, McCain recounts how he navigated his educational struggles, developed survival skills, and eventually achieved extraordinary success in the traffic signal industry. This inspiring tale is one of resilience, innovation, and determination in the face of adversity.

When Pepper Stetler was told that her daughter who has Down Syndrome would be regularly required to take IQ tests to secure support in school, she asked a simple question: why? In questioning the authority and relevance of the test, Stetler sets herself on a winding investigation into how the IQ test came to be the irrefutable standard for measuring intelligence. The unsettling history causes Stetler to wonder what influence this test will have over her daughter's future and whether Louisa should be taking it at all.