Disability Memoir

Si no es cada cuatro años que se celebran los paralímpicos, si no se acerca el Día Internacional de las pcd, cuando las marcas realizan acciones; si no es que el gobierno da beneficios fiscales para impulsar la inserción laboral de este grupo, el resto del tiempo las personas con discapacidad viven entre las sombras.

Condamné par la maladie, Olivier Goy partage avec la journaliste Anne Fulda son inlassable combat pour mieux faire accepter le handicap et lever des fonds pour la recherche, et, surtout, appelle à regarder et aimer la vie pleinement?! Olivier a 46 ans quand on lui diagnostique la maladie de Charcot en 2020. Une maladie neurodégénérative qui se traduit par une paralysie progressive des muscles, mais laisse au malade ses pleines capacités intellectuelles. Espérance de vie?: 3 à 5 ans.

A late bloomer’s coming-of-age memoir asks how does one accept and free themselves from visible and invisible disabilities and still retain their sense of connection and humor? Nothing Special is a disarmingly candid tale of two sisters growing up in the 1970s in rural Connecticut. Older sister Chris, who has Down syndrome, is an extrovert, while the author, her younger, typically developing sister, shoulders the burdens and grief of her parents.

As a neurodivergent child in a hundred-year-old house, Zaji Cox collects grammar books, second-hand toys, and sightings of feral cats. She dances and cartwheels through self-discovery and doubt, guided by her big sister and their devoted single mother. Through short essays that evoke the abundant imagination of childhood, Plums for Months explores the challenges of growing up mixed race and low-income on the outskirts of Portland, Oregon.

This is a guide for anyone going into a mental asylum or institution for the first time, or if you have a delusional loved one, with a mental illness, this will help you relate to them better in understanding insanity. Now, join me, in the asylum, as together we go on a very odd journey of discovery in my first mental institution experience. Enter a strange world, before I was diagnosed with schizophrenia, as I compete against other game show contestants in a battle to win genetic traits for my family tree.

When I was six years old, I started wearing glasses. My view of my low vision quickly changed when I was twenty years old and found out that my brother had suddenly gone blind. He was told that he was suffering from Retinitis Pigmentosa (RP), a disorder that slowly destroys the pigment cells in the eyes. So far, there are no known cures. At the tender age of twenty-one, I was also diagnosed with RP. Since then, I have been slowly going blind, not knowing when my world would finally fade away forever. Battling against such a crippling disease led me through a labyrinth of challenges.

This honest, outspoken, and thought-provoking memoir by award-winning writer and appearance activist Carly Findlay will challenge all your assumptions and beliefs about what it is like to have a visibly different appearance. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. This is both a moving memoir and a proud manifesto on disability and appearance diversity issues.

Als Matt Haig mit 24 Jahren urplötzlich krank wird, begreift er nicht, welch dunkle Macht da von ihm Besitz ergreift. Die Krankheit überfällt ihn auf so dramatische Art und Weise, dass sie ihn buchstäblich an den Abgrund bringt. Doch Haig entscheidet sich für das Leben - und für seine große Liebe Andrea. Er findet heraus, dass er nicht allein ist mit der Diagnose Depression, sondern dass Millionen Menschen auf der Welt sein Schicksal teilen.

This book is about the life of the author. It focuses on her faith, her hope, and her endurance during the years of her illness. In this true story, you will learn the how and why about the effects that changed her family’s life—the author’s Crohn’s disease, the 14 blood clots, toxic gut syndrome, colitis, tumors, ulcers, vertigo, weight gain and loss, pregnancies, the many surgeries, and how her body would not wake up after some of her surgeries.

"Dandelion Roots Run Deep" is the true story of three generations of tenacious Midwestern women, one in Illinois and two in Michigan. Merry is the third generation, and her mother Merrill, fought for organic agriculture and Michigan's environment from 1967 - 2009. Merrill developed Alzheimer's before finishing her book, so Merry took her story to fruition.

Connected at the chest by a band of flesh, Chang and Eng Bunker toured the United States and the world from the 1820s to the 1870s, placing themselves and their extraordinary bodies on exhibit as "freaks of nature". More famously known as the Siamese twins, they eventually settled in rural North Carolina, married two white sisters, became slave owners, and fathered 21 children between them. More than a biography of the twins, this is a study of 19th-century American culture and society that reveals how Americans projected onto the twins their own hopes and fears.

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.

Robert Hoge was born with a giant tumour on his forehead, severely distorted facial features and legs that were twisted and useless. His mother refused to look at her son, let alone bring him home. But home he went, to a life that, against the odds, was filled with joy, optimism and boyhood naughtiness. Home for the Hoges was a bayside suburb of Brisbane. Robert's parents, Mary and Vince, knew that his life would be difficult, but they were determined to give him a typical Australian childhood.

Damaged is a story of survivor's guilt coupled with resentment tempered by love. It reveals the changing dynamics of a family faced with an injury no one could heal. Nancy Klein was in the first trimester of her second pregnancy when she made headlines as "Coma Mom." This intimate memoir, written by Klein's sister, reveals all that happened to her and her family after the news cycle moved on. The family: a mother who never gave up hope, even when hope was long gone, and a father who couldn't live without his wife's love.

An eye-opening wife’s journal which speaks about an amazing and unbelievable traumatic brain injury adventure. Written with love, respect, and humor, this is a must-listen for anyone who wants to know about a TBI survivor’s daily routine.

As a 14-year-old psych ward patient, Harry realized he had a choice: let anorexia keep ruining his life or fight back against everything his mind told him was true. Now 22 years old, Harry delicately pieces together how his mind derailed to that point, what’s happened since he made his choice, and most importantly, what it’s taught him about life and how best to live it.

In the face of a mysterious and terrifying illness, this is the story of a family trying to maintain some kind of togetherness. Torn between his commitment to keep Clarisa a part of Janir’s life and the threat she poses to that life, John acknowledges that he can care for his son in ways he never could for Clarisa. All who have experienced the wrench of mental illness in the family will recognize their own journey in this heartfelt story of fatherhood.

Steph Hammerman has been motivating herself and others her entire life. Since defying the odds by surviving as a one-pound, fifteen-ounce baby and weeks later being diagnosed with cerebral palsy, to beating Hodgkin's lymphoma stage 3B cancer in 2016, Steph has been a living example of overcoming seemingly insurmountable objects in order to achieve the impossible.

Owen-known to his family as "little buddy" or "Little B"-has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi-an adorable Anatolian Shepherd puppy-was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited.

Monday, March 11, 2024, was remarkably uneventful—indeed, frankly dull—until around 5 p.m. that evening when Carl Davies collapsed in a heap. It was a day that would change his life forever. Stroke Me! Recounts the story of his recovery from a near-catastrophic brain haemorrhage. The author details, in often graphic detail, every step of his journey, from the stroke itself to the pain of physical and occupational therapy. He leaves no stone unturned as he describes the impact his illness has had on him and his family. Stroke Me!