Disability Memoir

We think of Alexander Graham Bell as the inventor of the telephone, but that’s not how he saw his own career. As the son of a deaf woman and, later, husband to another, his goal in life from adolescence was to teach deaf students to speak. Even his tinkering sprang from his teaching work; the telephone had its origins as a speech reading machine. The Invention of Miracles takes a new look at an American icon, revealing the astonishing true genesis of the telephone and its connection to another, far more disturbing legacy of Bell’s.

The entire world knows Michael J. Fox as Marty McFly, the teenage sidekick of Doc Brown in Back to the Future; as Alex P. Keaton in Family Ties; as Mike Flaherty in Spin City; and through numerous other movie roles and guest appearances on shows such as The Good Wife and Curb Your Enthusiasm. Diagnosed at age 29, Michael is equally engaged in Parkinson’s advocacy work, raising global awareness of the disease and helping find a cure through The Michael J. Fox Foundation for Parkinson's Research, the world's leading nonprofit funder of PD science.

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

MEDICAL GASLIGHTING MEMOIR by author Anneke Vliegen, diagnosed with a combination of chronic, rare, barely visible and fluctuating diseases. Anneke describes her journey to happiness, after a misdiagnosis of chronic fatigue syndrome (ME/CFS) brought her condescendence, humiliation and neglect. For twenty years, this medical gaslighting continued until she was close to death. The discovery of adrenal insufficiency, lupus and hypermobile Ehlers-Danlos syndrome (hEDS) led to improved care and respect. The medical world had heard Anneke’s hooves, and assumed she needed to be treated like a ...

In this inspirational memoir, Derrick Coleman, Jr., the Seattle Seahawks fullback who won the 2014 Super Bowl with the Seahawks in his second year in the NFL, relates his inspirational story of hard work and determination in his own words. Showcasing his unlikely and challenging journey to become the first deaf athlete to play offense in the NFL, he talks about overcoming internal and external obstacles in the course of reaching your true potential.

Can you continue traveling as you get older or if you are disabled? On Two Legs and Three Wheels answers that with an emphatic, "Yes!" Multiple sclerosis disabled the legs of the author's wife twenty years ago, making her rely on a mobility scooter, and now both the author and his wife are in their seventies. But none of that stopped them from traveling. On two legs and three wheels, they have traveled to twenty countries and twenty states. Perseverance, ingenuity, and flexibility have enabled them to overcome virtually all obstacles. These characteristics are on full display in the two ...

What would it be like to see everyone as a friend? Twelve-year-old Eli D'Angelo has a genetic disorder that obliterates social inhibitions, making him irrepressibly friendly, indiscriminately trusting, and unconditionally loving toward everyone he meets. It also makes him enormously vulnerable. Eli lacks the innate skepticism that will help his peers navigate adolescence more safely - and vastly more successfully.

In 2019, Greta Morgan was on the rise. She had toured with Vampire Weekend, collaborated with Jenny Lewis, and garnered critical acclaim with her own musical projects. But in March 2020, after contracting COVID-19, she was diagnosed with spasmodic dysphonia, a neurological disorder with no known cure that left her unable to sing. Her once crystalline voice now reduced to a hush, she saw her career come to an abrupt standstill.

Dietetics practitioners are food and nutrition experts who help people live healthier lives. They work in a variety of settings—from hospitals and research to sports, schools, nursing homes, and the food industry. Yet, despite the diversity of the populations they serve, the dietetics profession is predominantly female, white, and able-bodied. Only 2% of dietetics practitioners have a disability compared to 29% of US adults. There is an urgent need to diversify the field—especially by including practitioners with disabilities.

We all face obstacles that threaten to hold us back. For Robert Paylor, his paralysis wasn’t a metaphor. In the biggest game of his life, competing for the collegiate rugby national championship, Robert suffered a catastrophic spinal cord injury that left him paralyzed from the neck down. Doctors told him he’d never walk or move his hands again. But Robert refused to accept that fate.

After being diagnosed with muscular dystrophy, Melissa Haugen felt alone. In an effort to make others feel seen, she vulnerably shares her personal story of living with muscular dystrophy.

What do you do when multiple sclerosis knocks you on your ass, tells you your rap career is over, and dares you to stay down? You write a new story — and this one’s real as hell. Myelin My Shoes is the raw, unfiltered, punch-in-the-gut memoir from underground hip-hop artist Robert “B-Cide” Cardillo II, who turned pain into power and built something real in a world full of fake. From rocking shows with legends to dodging shady promoters, from touring the country to being forced into a wheelchair by multiple sclerosis — this is the story of a man who refused to tap out. No ghostwriters.

At six months old, Kenneth is struck by polio, leaving him physically marked and setting the tone for a life shaped by struggle. Abandoned by his mother at the hospital, he is taken in by Pearlie Mae, a blind but fearsome relative who raises him with tough love and relentless discipline. By three, Kenneth experiences haunting visions of celestial beings that feel like a divine or infernal claim on his soul, adding a spiritual weight to his physical trials. Life with Pearlie Mae is harsh; she demands survival skills rather than offering comfort. Kenneth learns early to navigate a world that ...

At the age of four, Joshua Miele was blinded and badly burned when a delusional neighbor poured sulfuric acid over his head in a crime that shocked New York. It could have ended his life, but instead, Miele—naturally curious, and a born problem solver—not only recovered, but thrived. Throughout his life, Miele has found increasingly inventive ways to succeed in a world built for the sighted, and to help others to do the same. At first reluctant to even think of himself as blind, he eventually embraced his blindness and became a committed advocate for disability and accessibility

Katherine and Jay Wolf were a young couple living the dream in Southern California, but all was nearly lost when Katherine suffered a shocking near-fatal brainstem stroke and struggled to find hope in a life that looked nothing like the one they had before.

Virginia Hall, una joven estadounidense rechazada por el Servicio de su país por ser mujer y por haber perdido la pierna izquierda, fue la primera espía en ingresar a una misión secreta en Francia durante la Segunda Guerra Mundial. Sus proezas son muestra del valor y la astucia que la caracterizaron como agente. Se infiltró como periodista en Vichy y en Lyon, peligrosamente cerca de los nazis; organizó una red de agentes bajo el territorio enemigo; liberó a prisioneros de situaciones que parecían irremediables; y hasta dinamitó puentes para sabotear las operaciones alemanas.

Erik Weihenmayer is the first and only blind person to summit Mount Everest, the highest point on Earth. Descending carefully, he and his team picked their way across deep crevasses and through the deadly Khumbu Icefall; when the mountain was finally behind him, Erik knew he was going to live. His expedition leader slapped him on the back and said something that would affect the course of Erik’s life: “Don’t make Everest the greatest thing you ever do.” No Barriers is Erik’s response to that challenge.

As Harry Potter's stunt double, David Holmes's amazing gymnastic skills saw him earn onscreen immortality. He was the first-ever person to play Quidditch on a broomstick; he dodged dragon's fire and dove deep into the Great Lake, without any gillyweed to protect him. Life on set was an adventure. He and Daniel Radcliffe became like brothers, and the cast and crew a second family. Then tragedy struck. During the making of Deathly Hallows Part 1 a stunt went badly wrong and David's spinal cord snapped. He was only 25 and would never walk again.

When Phil Hanley was in first grade, he realized something that would forever set him apart from his peers: he couldn’t read. His teachers were ill-equipped to assist him, and he slipped through the school’s cracks, year by year falling further and further behind his friends. Finally, he was diagnosed with dyslexia, a learning disability that would shape the rest of his life. Unable to pursue college or a traditional job, Phil was thrust into a life defined by unconventional twists. Eventually, he found himself on a stage with a microphone, a spotlight, and five minutes of jokes.

Writing about the rhythms and textures of what it means to live in a body that doesn’t fit, Rebekah reflects on everything from the complications of kindness and charity, living both independently and dependently, experiencing intimacy, and how the pervasiveness of ableism in our everyday media directly translates to everyday life. Disability affects all of us, directly or indirectly, at one point or another. Sitting Pretty challenges us as a society to be patient and vigilant, practical and imaginative, kind and relentless, as we set to work to write a different story.