Disability Memoir

Quentin Kenihan is living proof that superheroes don't need capes, just the right attitude. When he was a kid, Quentin loved Superman. Ironic, really. Quentin didn't need kryptonite to reveal his weakness - born with a rare bone disorder, osteogenesis imperfecta, his bones broke all on their own. When Quentin was seven, Mike Willesee made a documentary about him. Australians fell in love with his wit and never-say-die attitude. Over the years he grew up before our eyes. But there was a dark side to his life. The true story was never told...until now.

In this candid, humorous, and insightful book, author, political science lecturer, and “Dudeist Priest” Arch Grieve provides listeners with a first-hand account of the many lessons he has learned (often the hard way) as a person living with bipolar disorder. This guidebook is a must-listen for anyone who has recently been diagnosed with bipolar disorder or knows someone who has.

Just before Christmas in 2012, at age 53, John LeMieux lost his left leg to a recurrence of sarcoma. The unique 20-hour rotationplasty surgery - never done on a man his age - was followed by six months of bed rest. It was only the beginning of years of physical, spiritual, and emotional growth. In this memoir, John recounts the lows and highs of a life forever altered.

At the age of thirty, just as everything was falling into place for him, Lee Pesky died of brain cancer. For his father, Alan, grief came with the realization that he had lost the chance to love Lee as he was—not as he wanted him to be. Ambitious, successful, and always striving for more, Alan had a hard time relating to a son who struggled with learning disabilities at a time when there was little understanding or help for kids who had them. Their relationship was complicated, and now, Lee was gone.

At age 54, Chris Monnette is diagnosed with neovascular macular degeneration, an incurable retinal disease that slowly robs him of his eyesight. As each cell in his macula dies and his vision diminishes, he is forced, literally and figuratively, to see the world through different eyes. Raised in the shadow of an emotionally stifled father, Chris learns early on to mirror the belief that vulnerability equals weakness. A piercingly honest meditation on the emotional legacy of stoicism, Seeing Clearly is much-needed proof that being a man and being vulnerable are one and the same.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem cell transplant surgery could restore May's vision.

Spoke by Spoke takes the listener on one woman's journey to reinvent herself following a hit-and-run accident which left her back broken and her bike crumpled by a speeding motor vehicle. The stories Terry shares will take you from the depths of despair and the edges of darkness to profound realizations about what we are all capable of. Terry's perseverance and resilience - fueled by her amazing spirit - show us that whatever hand we're dealt, we always have the choice to live a wholehearted life.

Adventurous international teacher, Amy Bovaird, is diagnosed with Retinitis Pigmentosa, a hereditary eye disease that will blind her. In spite of that, she manages to continue teaching overseas. Then her father's final illness brings her back home for good. There, friends and acquaintances begin to notice that she doesn't always recognize them and sometimes stumbles as if drunk! Insensitive students ridicule her in the classroom.

Owen-known to his family as "little buddy" or "Little B"-has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi-an adorable Anatolian Shepherd puppy-was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited.

When someone would tap along and rescue me from being sandwiched between these two hardbacks, sorry, did I frighten you? You never heard or seen a talking book. Well, me either. The majority of the time, I am the only one in the room, or shall I say, “on the shelf”? So many humans walk right past me, playing blind games by pretending not to see that the struggle is real. Talk about the lack of accessibility.

In January 2016, life took an unexpected turn for Marilyn Miller Lowry when a stroke abruptly had her asking those questions—and more. In the years since, Lowry examined her life and made dramatic changes that opened up more possibilities than she ever imagined. Grateful to be able to author A Stroke of Magic, Lowry uses her background as a counselor to share candid observations of the trauma that comes with unexpected physical disability.

Obsessed with music as a child - listening to everything he could lay his hands on, going to gigs, starting a band, and then pursuing a career in music journalism - John Harris had no idea that he was in fact preparing himself for the greatest challenge of his life. But so it transpired. When his son James was born, and three years later diagnosed with autism, music became their main form of communication, a hugely shared passion and - it is no exaggeration to say - the sound that saved them. John Harris tells the story of how music has opened up the world to James, one song at a time.

What would you have left if you awoke and were told you would be paralyzed from the eyes down for the rest of your life? After an almost fatal car crash and a botched surgery to repair nerve damage, that was Clay Byars' reality at 18 years old. Determination became the only constant in his life from that point on, and miraculously he quickly began to defy the odds. Clay discovered a life far different from that of his identical twin brother, Will.

When I was six years old, I started wearing glasses. My view of my low vision quickly changed when I was twenty years old and found out that my brother had suddenly gone blind. He was told that he was suffering from Retinitis Pigmentosa (RP), a disorder that slowly destroys the pigment cells in the eyes. So far, there are no known cures. At the tender age of twenty-one, I was also diagnosed with RP. Since then, I have been slowly going blind, not knowing when my world would finally fade away forever. Battling against such a crippling disease led me through a labyrinth of challenges.

I finished my first book, Multiple Sclerosis: A Blessing in Disguise, around the end of 1998. At that time, I was going through a lot of issues that I thought were very important to me. That book told of my discovery, my eventual acceptance of the illness, and how I dealt with what was happening to me. Like anybody else who is faced with the burden of discovery, I had a lot of questions that I felt I really needed to answer, but I never sought to answer why this had happened to me.

In 1989, at the tender age of 12 years old, Ms. Meadows awoke from a coma to find herself suddenly struck blind and severely brain injured. This greatly complicated her young life. When she was yet a minor child, her mother sued the doctor who caused this tragedy. This ultimately made Ms. Meadows' situation more desperate than ever. After the settlement; Ms. Meadows' parents continued to deny her treatment for her injuries. As a result, her life went off the rails in a huge way.

Despite a childhood affliction that left James Cabezas with the grim knowledge that he might one day go blind, he led a courageous career in law enforcement for more than four decades. With his vision intact, Jim proudly wore a police uniform, tracking drug dealers, thieves, and an armed robber in the precarious days before Baltimore cops wore bullet proof vests. He performed his duty relentlessly, despite interference from corrupt, racist and inept cops.While the world’s finest eye doctors kept him from going blind, Jim worked as a deep covert, driving a cab in Baltimore’s notorious ...

At twenty-four, Arnold Beisser was a recent medical school graduate and a nationally ranked tennis player. But overnight a devastating bout of polio left him permanently paralyzed from the neck down and dependent on an iron lung to draw his next breath. Polio robbed Arnold Beisser of his strength, his athletic ability, and almost his life. Yet he discovered in this unthinkable trap not only the expected sadness and despair, but wonder, delight, and the pleasure of everyday living.

A raccoon bite on the arm doesn’t seem that serious, but it soon becomes a life-or-death medical crisis for Melissa Loomis. After days of treatment for recurring infection, it becomes obvious her arm must be amputated. Rewired is the inspirational, miraculous story of Dr. Ajay Seth’s revolutionary surgery that allows Melissa to not just move a prosthetic arm simply by thinking, but to actually feel with the prosthetic hand, just as she would with her natural arm. This resulted in what others have recognized as the world’s most advanced amputee.

A rare insight into the complexities faced by autistic people and a completely new perspective on some astonishing advantages of autism. For autistic individuals, relatives and carers, teachers, friends, partners, employers or anyone else who is interested in learning about autism.