Disability Memoir

A memoir

What if you found out in mid-life that you were autistic? Kathleen was diagnosed in midlife with autism, and in her new book, U Don’t Seem Autistic, she bravely shares her personal story. This is a story of empowerment by the discovery of autistic identity, at last! By sharing the pitfalls she has experienced up to mid-life and their relationship to autism, she hopes to help others to seek a diagnosis, as she states women are missed or misdiagnosed due to the gender inequities of diagnosis.

Fred Rutman was certainly up against it. It being the Grim Reaper. The Reaper unleashed its full arsenal, pitting Fred against much of the medical system he trusted with his life. Even if Fred won the initial battles, could he win the war? The Summer I Died Twenty Times is a medical trauma memoir unlike any other. In one package, Fred Rutman provides all the overcoming adversity, resilience and beating the odds a listener expects. With a side of sarcasm and humor. He may not be the hero you expected. He just might be the hero you need.

In "You're Not Doing It Right," Ellen Patnaude bravely opens the door to the haunting reality of Lewy body dementia (LBD) and unravels its profound impact on families. One of the most common types of dementia after Alzheimer's disease, LBD is marked by fluctuations in cognition, hallucinations, and motor symptoms. The journey begins with subtle warnings of small changes in her mother's behavior that worry Patnaude's father, but go unnoticed by the author and her sibling.

The word conquer has changed meaning for Bryan Anderson. As a U.S. army sergeant in Iraq, it meant taking down the enemy. After becoming Iraq’s fourth triple amputee from a roadside explosive, what he had to conquer got a bit more personal. On October 23, 2005, the moment Bryan looked down and realized he no longer had legs, he cracked a joke. It was a tragedy that could break many, but Bryan transformed it into something positive, something that propelled him forward.

In 1989, at the tender age of 12 years old, Ms. Meadows awoke from a coma to find herself suddenly struck blind and severely brain injured. This greatly complicated her young life. When she was yet a minor child, her mother sued the doctor who caused this tragedy. This ultimately made Ms. Meadows' situation more desperate than ever. After the settlement; Ms. Meadows' parents continued to deny her treatment for her injuries. As a result, her life went off the rails in a huge way.

In this candid, humorous, and insightful book, author, political science lecturer, and “Dudeist Priest” Arch Grieve provides listeners with a first-hand account of the many lessons he has learned (often the hard way) as a person living with bipolar disorder. This guidebook is a must-listen for anyone who has recently been diagnosed with bipolar disorder or knows someone who has.

At the age of thirty, just as everything was falling into place for him, Lee Pesky died of brain cancer. For his father, Alan, grief came with the realization that he had lost the chance to love Lee as he was—not as he wanted him to be. Ambitious, successful, and always striving for more, Alan had a hard time relating to a son who struggled with learning disabilities at a time when there was little understanding or help for kids who had them. Their relationship was complicated, and now, Lee was gone.

At age 54, Chris Monnette is diagnosed with neovascular macular degeneration, an incurable retinal disease that slowly robs him of his eyesight. As each cell in his macula dies and his vision diminishes, he is forced, literally and figuratively, to see the world through different eyes. Raised in the shadow of an emotionally stifled father, Chris learns early on to mirror the belief that vulnerability equals weakness. A piercingly honest meditation on the emotional legacy of stoicism, Seeing Clearly is much-needed proof that being a man and being vulnerable are one and the same.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem cell transplant surgery could restore May's vision.

Arriving in the UK from Jamaica at the tender age of 14, Keisha shares her empowering lived experiences growing up with undiagnosed Dyslexia and Dyspraxia, while facing several intersectional challenges that include culture, race, and the UK education system.

Spoke by Spoke takes the listener on one woman's journey to reinvent herself following a hit-and-run accident which left her back broken and her bike crumpled by a speeding motor vehicle. The stories Terry shares will take you from the depths of despair and the edges of darkness to profound realizations about what we are all capable of. Terry's perseverance and resilience - fueled by her amazing spirit - show us that whatever hand we're dealt, we always have the choice to live a wholehearted life.

When someone would tap along and rescue me from being sandwiched between these two hardbacks, sorry, did I frighten you? You never heard or seen a talking book. Well, me either. The majority of the time, I am the only one in the room, or shall I say, “on the shelf”? So many humans walk right past me, playing blind games by pretending not to see that the struggle is real. Talk about the lack of accessibility.

Owen-known to his family as "little buddy" or "Little B"-has a rare genetic disorder that leaves him largely confined to a wheelchair. Before being united with Haatchi, Little B was anxious and found it difficult to make friends. Haatchi-an adorable Anatolian Shepherd puppy-was abused and left for dead on railroad tracks. He was struck by an oncoming train, and although his life was saved, his leg and tail were partially severed. Haatchi was left massively disabled and totally dispirited.

Sara invites us to join her on a far more personal journey, this time, as she tests her own beliefs in the alternative health-care practices she’s learnt of over recent years.

In January 2016, life took an unexpected turn for Marilyn Miller Lowry when a stroke abruptly had her asking those questions—and more. In the years since, Lowry examined her life and made dramatic changes that opened up more possibilities than she ever imagined. Grateful to be able to author A Stroke of Magic, Lowry uses her background as a counselor to share candid observations of the trauma that comes with unexpected physical disability.

Obsessed with music as a child - listening to everything he could lay his hands on, going to gigs, starting a band, and then pursuing a career in music journalism - John Harris had no idea that he was in fact preparing himself for the greatest challenge of his life. But so it transpired. When his son James was born, and three years later diagnosed with autism, music became their main form of communication, a hugely shared passion and - it is no exaggeration to say - the sound that saved them. John Harris tells the story of how music has opened up the world to James, one song at a time.

What would you have left if you awoke and were told you would be paralyzed from the eyes down for the rest of your life? After an almost fatal car crash and a botched surgery to repair nerve damage, that was Clay Byars' reality at 18 years old. Determination became the only constant in his life from that point on, and miraculously he quickly began to defy the odds. Clay discovered a life far different from that of his identical twin brother, Will.

Sarah’s story is one for any parent; it is not just about the highs and lows of having a child with additional needs, but also simply as a mum of three. She talks candidly about coming to terms with the decision to move Oscar to a SEN (Special Educational Needs) school, another big milestone in Oscar’s young life. Whilst Sarah may have found herself on a different path to the one she’d imagined for herself, it has not been a bad one. There is sadness, certainly; and there have been struggles along the way; but there has been so much laughter and happiness, too.

When I was six years old, I started wearing glasses. My view of my low vision quickly changed when I was twenty years old and found out that my brother had suddenly gone blind. He was told that he was suffering from Retinitis Pigmentosa (RP), a disorder that slowly destroys the pigment cells in the eyes. So far, there are no known cures. At the tender age of twenty-one, I was also diagnosed with RP. Since then, I have been slowly going blind, not knowing when my world would finally fade away forever. Battling against such a crippling disease led me through a labyrinth of challenges.