Disability Memoir

Hey guys, you might know me already from one of my social media channels where I talk about the highs and lows of living with Tourette's syndrome. I've loved sharing those times with you and - as there are lots of things I can't fit into a 60-second video - I've decided to write a book! It's the full story of how I came to be diagnosed and how having Tourette's has changed my life. Writing it has given me an opportunity to talk about things I haven't felt ready to share before - for some reason it's easier to put down private things in written words than in a video!

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.

In Imperfect, Jim Abbot retraces his remarkable journey. Born without a right hand, Jim Abbott as a boy dreamed of being a great athlete. Raised in Flint, Michigan, by parents who saw in his condition not a disability but an extraordinary opportunity, Jim became a two-sport standout in high school, then an ace pitcher for the University of Michigan. But his journey was only beginning. By 21, he’d won the gold medal game at the 1988 Olympics and cracked the starting rotation of the California Angels....

As a child, Matt Hay didn’t know his hearing wasn’t the way everyone else processed sound—because of the workarounds he did to fit in, even the school nurse didn’t catch his condition at the annual hearing and vision checks. But by the time he was a prospective college student and couldn’t pass the entrance requirements for West Point, Hay’s condition, generated by a tumor, was unavoidable: his hearing was going, and fast. A personal soundtrack was Hay’s determined compensation for his condition.

At 30 years old Bryan Bishop’s life was right on track: as the sidekick on The Adam Carolla Show, his career was taking off and, newly engaged, his personal life was soaring to new heights. Then he was diagnosed with an inoperable brain tumor. Suddenly Bryan’s promising future was looking at a troubling schedule of radiation and chemotherapy. But having found refuge in comedy, "Bald Bryan" recounts his alternately heartbreaking and hysterical experience of cancer treatment and recovery.

When fourth grader Alex Schwartz first met his cello, his eyes lit up with wonder, and a smile appeared on his face as bright as the potential his new cello teacher saw within him. The cello positively impacted all aspects of his development, including focus, fine motor, and gross motor skills.

When PhD candidate Sarah Vallance is thrown from a horse and suffers a jarring blow to the head, she believes she walks away unscathed. The next morning, things take a sharp turn as she’s quickly led from work to the emergency room. By the end of the week, a neurologist delivers a devastating prognosis: Sarah suffered a traumatic brain injury that has caused her IQ to plummet, with no hope of recovery. Her brain has irrevocably changed.

Nathan Glad was not expected to survive birth. Born with OI (Osteogenesis Imperfecta), also known as Brittle Bone, he has faced remarkable life challenges. Despite it all, Nathan remains determinately happy. This book contains his 7 Hacks for Happiness.

On June 10, 2008, Carol Decker walked through the hospital doors a healthy woman with flu-like symptoms and early labor contractions. Three months later, she returned home a blind triple-amputee struggling to bond with a daughter she would never see. Unshattered recounts Carol's fight for survival against sepsis and its life-shattering complications. From excruciating skin grafts to learning how to function in daily life without lower legs, a left hand, and her sight, Carol takes us on a personal and raw, yet inspiring journey.

For fans of rags-to-riches stories, Be There When I Return is not just about overcoming epilepsy and finding success—it is also for those who are looking for a celebration of love in its purest form. When thirty-one-year-old Michael starts to act out of character, it gets the attention of his roommate and a woman he has started dating. After denying anything is wrong with him, Michael finally decides to visit a neurologist. His life takes an unexpected turn when he receives a life-altering diagnosis of epilepsy.

There Plant Eyes probes the ways in which blindness has shaped our ocularcentric culture, challenging deeply ingrained ideas about what it means to be “blind”. For millennia, blind­ness has been used to signify such things as thoughtlessness (“blind faith”), irrationality (“blind rage”), and unconsciousness (“blind evolution”). But at the same time, blind people have been othered as the recipients of special powers as compensation for lost sight (from the poetic gifts of John Milton to the heightened senses of the comic book hero Daredevil).

At age 16, James Tate Hill was diagnosed with Leber’s hereditary optic neuropathy, a condition that left him legally blind. After high school friends stopped calling and a disability counselor advised him to aim for C's in his classes, he used his remaining blurry peripheral vision to pretend he could still see. Feigning eye contact, memorizing common routes, filling shelves with paperbacks he read via tape cassettes, he organized his life around passing for sighted.

Growing Up Disabled in Australia is the fifth book in the highly acclaimed, best-selling Growing Up series. It includes interviews with prominent Australians such as Senator Jordon Steele-John and Paralympian Isis Holt.

A dramatic and remarkable narrative of an extraordinary teacher's determination, from the author of the Sunday Times bestsellers The Tiger's Child and One Child. Torey Hayden faced six emotionally troubled kids no other teacher could handle - three recent arrivals from battle-torn Northern Ireland, badly traumatized by the horrors of war; an eleven-year-old boy, who only knew life inside an institution; an excitable girl, aggressive and sexually precocious at the age of eight; and seven-year-old Leslie, perhaps the most hopeless of all, unresponsive and unable to speak.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

After a normal, healthy, full-term pregnancy, Margaret Moore's parents Anne and Terrence were shocked as a prolapsed umbilical cord left their daughter unable to breathe on her own. Margaret, nicknamed Meg, was not expected to live through the night and began to breathe on her own by the next day—a phenomenon that medical personnel deemed a miraculous recovery. Meg came home with a physical disability Cerebral Palsy and permanent dependence on others for help with feeding, dressing, hygiene, and transfers to and from her wheelchair and walker.

It's not what I lost. It's what I've found. I was only 17, just a girl, when God asked me for everything I had...my health, my hopes, my independence, my dreams, my freedom, and my mobility. He took it all. I was so angry with him that I tried to push him away. God relentlessly held me more closely. Looking back, 40 years later, I understand that God has changed and healed me - my heart and my mind - in the most unexpected ways, giving me rubies of his wisdom about an unbending faith and an experience of his mercy I can now tell you about.

After 30 years of a healthy, rewarding, and exciting life, I wake up in a hospital bed unable to move. The neurosurgeon leans down and breaks the news: You won't regain any function in your body and you will never walk again. My medical insurance sends me home, discontinues my care, and tells me to "adapt to my new life". Little Big Steps is the story of the pivotal moments, interactions, and breakthroughs following the injury that turned my life upside down.

In 1958, Riva is one of the first children born with spina bifida to survive. Her parents and doctors are determined to "fix" her, sending the message over and over again that she is broken. That she will never have a job, a romantic relationship, or an independent life. Enduring countless medical interventions, Riva tries her best to be a good girl and a good patient in the quest to be cured. Everything changes when, as an adult, Riva is invited to join a group of artists, writers, and performers who are building Disability Culture.

When Jade unexpectedly suffered from a rare condition which left her paralysed and in a wheelchair at the age of twelve, she never imagined that she'd one day meet her husband John and that together they would take to social media to dispel the stigma surrounding disability, one story at a time. From questions about suffering and sex to family and faith, Jade and John speak honestly and humorously about life as an inter-able couple.