Disability Memoir

When I was six years old, I started wearing glasses. My view of my low vision quickly changed when I was twenty years old and found out that my brother had suddenly gone blind. He was told that he was suffering from Retinitis Pigmentosa (RP), a disorder that slowly destroys the pigment cells in the eyes. So far, there are no known cures. At the tender age of twenty-one, I was also diagnosed with RP. Since then, I have been slowly going blind, not knowing when my world would finally fade away forever. Battling against such a crippling disease led me through a labyrinth of challenges.

I finished my first book, Multiple Sclerosis: A Blessing in Disguise, around the end of 1998. At that time, I was going through a lot of issues that I thought were very important to me. That book told of my discovery, my eventual acceptance of the illness, and how I dealt with what was happening to me. Like anybody else who is faced with the burden of discovery, I had a lot of questions that I felt I really needed to answer, but I never sought to answer why this had happened to me.

Despite a childhood affliction that left James Cabezas with the grim knowledge that he might one day go blind, he led a courageous career in law enforcement for more than four decades. With his vision intact, Jim proudly wore a police uniform, tracking drug dealers, thieves, and an armed robber in the precarious days before Baltimore cops wore bullet proof vests. He performed his duty relentlessly, despite interference from corrupt, racist and inept cops.While the world’s finest eye doctors kept him from going blind, Jim worked as a deep covert, driving a cab in Baltimore’s notorious ...

At twenty-four, Arnold Beisser was a recent medical school graduate and a nationally ranked tennis player. But overnight a devastating bout of polio left him permanently paralyzed from the neck down and dependent on an iron lung to draw his next breath. Polio robbed Arnold Beisser of his strength, his athletic ability, and almost his life. Yet he discovered in this unthinkable trap not only the expected sadness and despair, but wonder, delight, and the pleasure of everyday living.

A rare insight into the complexities faced by autistic people and a completely new perspective on some astonishing advantages of autism. For autistic individuals, relatives and carers, teachers, friends, partners, employers or anyone else who is interested in learning about autism.

When her son was diagnosed with autism at the age of three, Irma Velasquez was devastated. It was the pre-internet era of the early 1990s, and both information and experts were hard to find. Desperate for answers, she sought out therapists and educational programs designed to teach Aaron how to become successful in school and in life. But those early years ended up teaching Irma more than they taught Aaron. Irma realized her desire to "fix" her son had been a masquerade to fulfill her own needs, and she began to love him just as he was: perfect.

Like many of us, James Lindsay is no stranger to stress and anxiety. But in his case, leaving those struggles untreated led to a full psychotic episode that hospitalized him for the better part of a month. With the help of medication and therapy, he has now overcome this dark period and is currently living a much happier life.

A sudden rise in opioid addicts coinciding with a sudden drop in legally available opioids, created a desperation for prescription drugs never seen before in this country. Physicians shut down their previous practice of repeated refills, once the death toll was too high to ignore. As hospitals and rehab facilities instituted drug testing and CORI checks to ensure employees were clean, one health-care option stood alone as a place to easily obtain painkillers. That place was home health care.

Debie Monax loved math - its consistency and predictability. In math, all one had to do was follow the proper process and apply appropriate principles to produce a guaranteed result. She applied the same mindset to her life, believing that if she understood the rules and applied the proper principles to all her decisions, she would have the life she dreamed of.

This is my story. After a lifetime of trying to help everyone else get their lives together, I have finally figured out how to get mine together. I am now 72 years old, semi-retired from a business I created to help young adults with autism function in the world. I live in Mexico with my loving partner. I have fulfilling relationships with my adult children and grandchildren.

The Magic Circle tells the story of what happens when Charmaine Chan's sister Elaine is diagnosed with a rare and aggressive cancer. As the illness progresses, family members living on different continents gather together during Elaine's last days. Striving to distract Elaine from the worst effects of the cancer, Charmaine takes to the pen: conjuring up the vanished world of their childhood in Singapore, and discovering a way to keep her promise to Elaine's six-year-old daughter.

With aspirations of being a successful lawyer, Jonathan embarks on a path to make his dreams come true, but is ultimately, unable to do so due to his schizoaffective disorder. In this candid and unflinching memoir, Jonathan reveals his story in all its rawness: the ups, the downs, the wins, the losses, the highs and the darkest of lows.

A child survives the miracle of birth. Regrettably, the doctor discovers an abnormality. Born March 7th, 1973 as the 28th recorded birth to survive with a diagnosis of Eagle-Barrett Syndrome. The rare birth defect involves three triads of urological complications. Continued survival meant multiple surgeries, painful examinations, with tubes inserted into the urethra as the corrective procedures healed. The doctor’s frightening revelations, “a child rarely survives to the age of two.” Each birthday celebration an unknown, "The chance for your survival to the age of sixteen is rare," ...

Rick Werry was living the good life in beautiful Monroe, Utah. He was a young, athletic man who woke up every morning doing what he loved for work, and he had been lucky enough to marry his college sweetheart. A year after their marriage, all of that suddenly halted when an onsite construction injury nearly claimed his life.

This honest, outspoken, and thought-provoking memoir by award-winning writer and appearance activist Carly Findlay will challenge all your assumptions and beliefs about what it is like to have a visibly different appearance. Carly lives with a rare skin condition, Ichthyosis, and what she faces every day, and what she has to live with, will have you cheering for her and her courage and irrepressible spirit. This is both a moving memoir and a proud manifesto on disability and appearance diversity issues.

If your friends jumped off a cliff, would you jump too? Bryan chose to dive. Moments later, as he lay on the beach, unable to move his arms or legs, two questions ran through his mind: Would he walk again? And would he ever have kids? Based on the incredible true story of life, love, and never giving up.

After contracting polio as a child, Sandra Gail Lambert progressed from braces and crutches to a manual wheelchair to a power wheelchair - but loneliness has remained a constant, from the wild claustrophobia of a child in body casts to just yesterday, trapped at home, gasping from pain. A Certain Loneliness is a meditative and engaging memoir-in-essays that explores the intersection of disability, queerness, and female desire with frankness and humor.

If you're skeptical about changing society's discriminatory treatment of people with dwarfism and other disabilities, Van Etten offers hope with these words: "Advocacy makes change possible when people call out what is wrong, care enough to stand up for what is right, commit to the cause for as long as it takes, and have confidence in God's power to change hearts". Van Etten repeatedly demonstrates the power of advocacy in this audiobook.

A profoundly beautiful memoir about disability, difference, and living as a vulnerable body. Jan Grue had just become a father when he inherited a stack of his childhood medical records. Following a diagnosis of spinal muscular atrophy at the age of three, the raft of doctors' notes, clinical descriptions and case histories defined his body as defective and his future as bleak and limited. They conjured a childhood nothing like the one he remembered, that failed to anticipate the life he lived now. "I Live a Life Like Yours" is Grue's beautiful, groundbreaking search for a literary language that could better tell his story.

In Parkinson's & Recreation 2, Dennis shares ways in which he and his wife are traversing the progression of PD and is first and foremost a written legacy he is attempting to leave for his family. As a part of this attempt, Dennis has gone on a journey of uncovering his family roots. What would you feel if you discovered Viking kings in your lineage? What would you feel if you uncovered the mystery of how the Jernigan line was woven throughout the fabric of English nobility? What would such revelations mean for you and your family?