Dementia Memoir

On a family vacation in 2009, Dr. Renée Brown Harmon felt the first jolt of fear that something might be wrong. How could her husband, Harvey, a highly intelligent physician, marathon runner, and devoted father, be struggling to keep up with their guide’s simple instructions or unable to do simple math to calculate their daughter’s age? The heartbreaking truth was confirmed nine months later when he was diagnosed with younger-onset Alzheimer’s disease at age fifty.

I Will Never Forget is the powerful true story of the author Elaine’s talented mother's extraordinary journey through Dementia. Through superb stories from Elaine’s childhood, including her controversial name, tales of smokin’ dragons, and the feisty teenage years, Betty Ward’s wonderful character is revealed. Over time, as their relationship evolves and a new paradigm is formed, her mother begins to exhibit goofy behaviors, uncharacteristic verbal assaults, and bizarre thinking.

The Last Ocean is Gerrard’s investigation into what dementia does to both the person who lives with the condition and to their caregivers. Dementia is now one of the leading causes of death in the West, and this necessary book will offer both comfort and a map to those walking through it. While she begins with her father’s long slip into forgetting, Gerrard expands to examine dementia writ large. Gerrard gives raw but literary shape both to the unimaginable loss of one’s own faculties, as well as to the pain of their loved ones.

In Remembering the Music, Forgetting the Words, Kate Whouley strips away the romantic veneer of mother-daughter love to bare the toothed and tough reality of caring for a parent who is slowly losing her mind. Yet, this is not a dark or dour look at the demon of Alzheimer’s. Whouley shares the trying, the tender, and the sometimes hilarious moments in meeting the challenge also known as Mom.

Christine Bryden was a top civil servant and single mother of three children when she was diagnosed with dementia at the age of 46. Since then she has gone on to challenge almost every stereotype of people with dementia. This is a vivid account of the author's experiences of living with dementia, exploring the effects of memory problems, loss of independence, difficulties in communication and the exhaustion of coping with simple tasks. She describes how, with the support of her husband, Paul, she continues to lead an active life and explains how professionals and carers can help.

From New York Times best-selling author, Emmy award-winning broadcast journalist, and leading Alzheimer's advocate Meryl Comer comes a profoundly intimate account of her husband's battle with Alzheimer's disease, one of today's most pressing - and least understood - health epidemics.

Mom’s Gone Missing is not a how-to book. It’s a here’s-what-unfolded book, a story of a daughter’s experience with a father’s decade-long Alzheimer’s journey and a mother’s lightning fast dementia decline and both of their deaths.

At just past 70, Alex Witchel’s smart, adoring, ultra-capable mother began to exhibit undeniable signs of dementia. Witchel reacted as she’d been raised: If something was broken, she would fix it. But as medical reality undid that hope, she retreated to the kitchen, trying to reclaim the mother who was disappearing in plain sight, by cooking the comforting foods that were her mother’s signature. Reproducing the perfect meat loaf was no panacea, but it helped a grieving daughter come to terms with her predicament, the growing phenomenon of "ambiguous loss" - loss of a beloved one who lives on.

In 1992, Franziska Thomas had her first seizure and her whole world was turned upside down - literally. In Fits and Starts, Franziska gives a compelling personal description of living with epilepsy, an illness shrouded in secrecy and antiquated myths. Laden with self-deprecating humor, she describes her own coming of age - as an epileptic, a teacher, and ultimately, a mother.

What do you do when your reality slips away? If you're Sky Yardley and Jane Dwinell, you accept each new challenge, reshape your life, and write. When Sky was diagnosed with "probable early stage Alzheimer's" at age 66, he was determined to live as fully as possible. He researched dementia, talked about dementia, connected with other people with the disease, and wrote about it.

Freedom 55? The so-called “Golden Years”? What if you are slowly losing your memories and your motor skills? Or what if you are the devastated witness as your partner struggles with dementia? Lewy Body Disease is a form of dementia second only to Alzheimer’s in numbers, yet many doctors and almost no lay people have ever heard its name. This is the story of two courageous people, Julie and Ken Sobol, life partners as well as writing partners. Caught up in the frightening and fatal fog of Lewy Body Disease, they started writing this book together.

An estimated 50 million people in the world suffer from dementia. Diseases such as Alzheimer’s erase parts of one’s memory but are also often said to erase the self. People don’t simply die from such diseases; they are imagined, in the clichés of our era, as vanishing in plain sight, fading away, or enduring a long goodbye. In On Vanishing, Lynn Casteel Harper, a Baptist minister and nursing home chaplain, investigates the myths and metaphors surrounding dementia and aging....

In 2003, England won the Rugby World Cup. Steve Thompson was there, in England's front row, at the heart of the match and at the heart of the scrum—one of sport's most destructive, repetitive impacts. But the triumphs came at a cost. When rugby union turned professional, Steve was plunged into a game where raw power meant everything. Today, he remembers nothing about playing in that final. In his words, watching the tape back is like watching a ghost.

This is the story of Carolyn’s mother, her dementia, and how they navigated her journey together. Your loved one may not force feed stuffed animals vanilla pudding or burn their neighbor’s mail like Fay did, but if you’re living through the sad realities of your loved one’s slow and tortuous farewell, this book will help you find solace as you deal with it realistically and with a heart at peace.

Hugh Bonneville is one of Britain's best-loved actors, whose credits include Downton Abbey, W1A and the Paddington films. From getting his big break as third shepherd in the school nativity play, to navigating Highclere Castle's complex Labrador policies, to bizarre Hollywood encounters, Hugh creates a brilliantly vivid picture of a career on stage and screen.

Based on the "field notes" she keeps in her journal, Memory's Last Breath is Gerda Saunders' astonishing window into a life distorted by dementia. She writes about shopping trips cut short by unintentional shoplifting, car journeys derailed when she loses her bearings, and the embarrassment of forgetting what she has just said to a room of colleagues. Coping with the complications of losing short-term memory, Saunders, a former university professor, nonetheless embarks on a personal investigation of the brain and its mysteries, examining science and literature.

Dealing with Early-Onset Alzheimer’s: Love, Laughter & Tears is Sonia Discher’s heartbreaking but empowering story of caring for her husband, Steve. The story follows Steve’s diagnosis of early-onset Alzheimer’s at age 50 through treatment, care, and his passing. Sonia provides a look behind the curtain of this terrible sickness to reveal a treasure trove of tips and tricks she used to understand the disease, advocate for her husband, care for her family, and preserve her sanity throughout a confusing and sad time.

Anthea Rowan writes about her mother's struggles of living with Depression and Dementia, while interpreting our understandings of this life-changing illness. Grounded in observations, A Silent Tsunami aims to prepare others for what to expect when this tide changes by recounting the lessons learned from experiences and challenges.

At first, Simon’s beloved father, Ted, suffered sudden bad moods and forgetfulness. Then the diagnosis: Alzheimer’s. Ted was disappearing from the family, but Simon wanted to hold on to him. While music could bring him back temporarily - the video of the two of them singing along to Ted’s favorite song was a hit around the world - Ted could no longer tell his story. This is that story.

Andrea struggles to mourn a man who is still alive as she witnesses her father decline into the depths of Alzheimer's. Denial and devastation color her life when she learns her father, Richard, a recently retired surgeon, is diagnosed with Alzheimer's at the age of 67. Her dream to grow closer to him is crushed as the reality of his disease is fully realized. Andrea, a mother of three young children, learns to balance motherhood with daughterhood as she grapples to accept her father's fate.