Mostrando títulos en Personas con Discapacidades

Jeff Bauman woke up on Tuesday, April 16th, 2013, and he had no legs. Just 30 hours prior, Jeff was surrounded by revelry at the finish line of the 2013 Boston Marathon. The first bomb went off at his feet as he awaited his girlfriend's finish. When Jeff awoke days later from hours of surgery, rather than take stock of his now completely altered life, Jeff ripped out his breathing tube and tried to speak. He couldn't. Jeff asked for a pad and paper and he wrote down seven words, "Saw the guy. Looked right at me," setting off one of the biggest manhunts in the country's history....

Paige Layle was normal. She lived in the countryside with her mom, dad, and brother Graham. She went to school, hung out with friends, and all the while everything seemed so much harder than it needed to be. A break in routine threw off the whole day. If her teacher couldn't answer “why” in class, she dissolved into tears, unable to articulate her own confusion or explain her lack of control.

On June 10, 2008, Carol Decker walked through the hospital doors a healthy woman with flu-like symptoms and early labor contractions. Three months later, she returned home a blind triple-amputee struggling to bond with a daughter she would never see. Unshattered recounts Carol's fight for survival against sepsis and its life-shattering complications. From excruciating skin grafts to learning how to function in daily life without lower legs, a left hand, and her sight, Carol takes us on a personal and raw, yet inspiring journey.

Due to horrible physical deformities, he spent much of his life as a fairground freak. He was hounded, persecuted, and starving, until his fortune changed and he was rescued, housed, and fed by the distinguished surgeon, Frederick Treves. The subject of several books, a Broadway hit, and a film, Joseph Merrick has become part of popular mythology. Here, in this fully revised edition containing much fresh information, are the true and un-romanticized facts of his life.

Fairy tales shape how we see the world, so what happens when you identify more with the Beast than Beauty? Amanda Leduc looks at fairy tales from the Brothers Grimm to Disney, showing us how they influence our expectations and behaviour and linking the quest for disability rights to new kinds of stories that celebrate difference.

In The Future Is Disabled, Leah Laksmi Piepzna-Samarasinha asks some provocative questions: What if, in the near future, the majority of people will be disabled—and what if that's not a bad thing? And what if disability justice and disabled wisdom are crucial to creating a future in which it's possible to survive fascism, climate change, and pandemics and to bring about liberation?

On a hot July afternoon, Joni Eareckson Tada's life was dramatically altered in a split second. A reckless dive into shallow water took an athletic young woman from health and success to life as a quadriplegic in a wheelchair. In the 45 years since the release of this book - which has more than five million copies in print in over 40 languages - Joni's earnest struggle to find hope has resonated with millions of listeners around the world.

Sabrina Greenlee was born to teenage parents in the shadow of South Carolina’s Clemson University, and her story unfolds against the backdrop of her challenging upbringing in a family that lacked the means—financial and emotional—to offer her and her two brothers the safety, comfort, and love every child deserves. When she was a teenager, her beloved younger brother, Dilly, died in a drunk driving accident. In her early twenties, Sabrina faced the tragic loss of her fiancé and one true love. A decade later, she was brutally and publicly assaulted, resulting in the loss of her vision.

In this honest and open account of life with her PDA daughter, Sasha, Steph Curtis reveals the everyday struggles and explores the milestones of raising a child diagnosed with Pathological Demand Avoidance. This book guides you through the Curtis family's 'lightbulb moment' of recognising Sasha's PDA profile following her autism diagnosis at the age of two, their experiences of various education settings and attempts to access support, everyday life at home and relationships with family and friends.

Lauren Windas is one of the estimated 250,000 people suffering with CFS in the UK. Whilst at university in 2012, she fell ill with a viral infection and was later diagnosed with CFS. Since then she has devoted herself to reclaiming her health and being able to live a full life, drawing on the knowledge of experts to help manage her often mysterious and hard-to-manage condition. In Chronic Fatigue Syndrome, Lauren recounts the highs and lows of her own health journey and experiences,.

David Tatel has served nearly 30 years on America’s second highest court, the United States Court of Appeals for the D.C. Circuit, where many of our most crucial cases are resolved—or teed up for the Supreme Court. He has championed equal justice for his entire adult life; decided landmark environmental and voting cases; and embodied the ideal of what a great judge should be. Yet he has been blind for the past 50 of his 80-plus years.

Blinded at age three, Mike May defied expectations by breaking world records in downhill speed skiing, joining the CIA, and becoming a successful inventor, entrepreneur, and family man. He had never yearned for vision. Then, in 1999, a chance encounter brought startling news: a revolutionary stem-cell transplant surgery could restore May's vision.

Having grown up on their great-grandfather’s stories, Royd Tolkien and his brother, Mike, have always enjoyed adventures. So when Mike is diagnosed with motor neurone disease, also known as ALS, the brothers decide to use the time they have left to tick off as much as possible from Mike’s bucket list, from remote camping in Norway to travelling through Royd’s beloved New Zealand. Yet, when Royd loses Mike, he discovers his brother had been writing another kind of bucket list: 50 things he wanted Royd to do after his death.

We meet Andrew Leland as he’s suspended in the liminal state of the soon-to-be blind: he’s midway through his life with retinitis pigmentosa, a condition that ushers those who live with it from sightedness to blindness over years, even decades. He grew up with full vision, but starting in his teenage years, his sight began to degrade from the outside in. Soon— but without knowing exactly when—he will likely have no vision left. Full of apprehension but also dogged curiosity, Leland embarks on a sweeping exploration of the state of being that awaits him.

Marian Schembari was thirty-four years old when she learned she was autistic. By then, she’d spent decades hiding her tics and shutting down in public, wondering why she couldn’t just act like everyone else. Therapists told her she had Tourette’s syndrome, obsessive-compulsive disorder, sensory processing disorder, social anxiety, and recurrent depression. They prescribed breathing techniques and gratitude journaling. Nothing helped. It wasn’t until years later that she finally learned the truth: she wasn’t weird or deficient or moody or sensitive or broken. She was autistic.

The GIs called her Joey. Hundreds owed their lives to the tiny Filipina who stashed explosives in spare tires, tracked Japanese troop movements, and smuggled maps of fortifications across enemy lines. As the Battle of Manila raged, Josefina Guerrero walked through gunfire to bandage wounds and close the eyes of the dead. Her valor earned her the Medal of Freedom, but what made her a good spy was also destroying her: leprosy, which so horrified the Japanese they refused to search her.

In her moving account of how she came to understand the world around her despite being blind and deaf since childhood, Helen Keller confirms that no physical obstacle can hinder the achievements of the human mind. Included with Keller's poignant autobiography are her letters, spanning 15 years, which reveal her remarkable intellectual growth and empathic soul. Commentary by her teacher, Anne Sullivan, and the book's original editor is also featured, providing illuminating insight from two of Keller's closest companions.

Vaneetha Risner contracted polio as an infant, was misdiagnosed, and lived with widespread paralysis. She lived in and out of the hospital for 10 years and, after each stay, would return to a life filled with bullying. When she became a Christian, though, she thought things would get easier, and they did: carefree college days, a dream job in Boston, and an MBA from Stanford where she met and married a classmate. But life unraveled. Again.

As a deafblind woman with partial vision in one eye and bilateral hearing aids, Elsa Sjunneson lives at the crossroads of blindness and sight, hearing and deafness—much to the confusion of the world around her. And she knows how wrong our one-size-fits-all definitions of disability can be. Part memoir, part cultural criticism, part history of the deafblind experience, Being Seen explores how our cultural concept of disability is more myth than fact, and the damage it does to us all.

In 2011, three years after leaving the NFL, Steve Gleason was diagnosed with ALS, a terminal disease that paralyzes the entire body. Doctors gave him three years to live. He was thirty-four years old. As Steve says, he is now ten years past his expiration date. His memoir is the chronicle of a remarkable life, one filled with optimism and joy, despite the trauma and pain and despair he has experienced.