On this episode, we’re joined by Emily Oberst, an Ewing sarcoma survivor.

Emily shares her experience navigating childhood cancer — from the decision making around surgery as an active young person to considering fertility preservation at an age when most kids are thinking about school, sports, and friends.

As she transitioned out of treatment and into young adulthood, Emily found empowerment through adaptive sports. Discovering wheelchair basketball in high school, she’s gone on to become a Paralympic athlete, channeling her strength and determination both on and off the court.

A champion on the court and for the sarcoma community, Emily shares insights on finding courage and building confidence,in the face of a life-changing diagnosis.

Links:

Fertility & Adoption Grants for Cancer Survivors: https://worththewaitcharity.com

Subtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma

Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/

Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/

Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/

Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704

AYA Facebook Group: https://www.facebook.com/groups/733435902222520

Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/

Connect with Emily: https://www.instagram.com/emily_oberst/

On this episode, we sit down with Dan Rubin, who was diagnosed with Ewings sarcoma in 2017 and has since navigated many, many different types of therapies to manage his diagnosis.

Dan’s unique record keeping system, which we dive into throughout the episode, along with the incredible support of his wife Katharine, has allowed Dan to navigate his care and advocate for himself throughout the years.

Dan has had to make numerous informed decisions about the best courses of action for his treatments - and from clinical trials to taking a more palliative approach - Dan has so much experience to share with the sarcoma community.

As a 7 time marathoner, we talk about how exercise has continued to support Dan through his diagnosis and how he’s maintained his positive mindset 95-98% of the time.

Links:

Ewing Sarcoma Subtype Page: https://curesarcoma.org/sarcoma-subtypes/ewing-sarcoma/

Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/

RTCS Marine Corps Marathon team: https://fundraisers.hakuapp.com/teams/sarcoma-foundation-of-america-2?partner=ce52206b901f55550cf5

Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/

Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/

Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/

Caregiver Connect FB Group: https://www.facebook.com/groups/1342913339758774

Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704

Dan's Blog: https://rwoac24.substack.com/

Dan's LinkedIn: https://www.linkedin.com/in/dan-rubin-48318a17/

On this episode, we speak with Brian Fugere, who is a synovial sarcoma survivor of 20 years. Brian shares his perspective on what the sarcoma landscape looked like 20 years ago at the time of his diagnosis, taking us through his treatment journey and how his marathon running has been an outlet for him to not only give back to the sarcoma community, but also reclaim his life.

We are so fortunate to be able to be a part of Brian's reflection and discuss so many topics like what to say to support someone during a sarcoma diagnosis, giving permission to be honest about how you're feeling and the important roles of care partners in our life.

Links:

Synovial Sarcoma Subtype Page: https://curesarcoma.org/sarcoma-subtypes/synovial-sarcoma/

Race to Cure Sarcoma: https://curesarcoma.org/race-to-cure-sarcoma/

RTCS Marine Corps Marathon team: https://fundraisers.hakuapp.com/teams/sarcoma-foundation-of-america-2?partner=ce52206b901f55550cf5

Sarcoma Patient Pathways Survey: https://curesarcoma.org/get-involved/sarcoma-patient-experience-survey/

Discussion Guide: https://curesarcoma.org/sfa-launches-sarcoma-diagnosis-and-treatment-discussion-guide/

Stand Up To Sarcoma Gala: https://curesarcoma.org/ways-to-help/stand-up-to-sarcoma-gala/

Caregiver Connect FB Group: https://www.facebook.com/groups/1342913339758774

Sarcoma Stories FB Group: https://www.facebook.com/groups/512452631597704

Brian’s Email: fugerebrian@gmail.com