Rare Mamas Rising Podcast Por Nikki McIntosh arte de portada

Rare Mamas Rising

Rare Mamas Rising

De: Nikki McIntosh
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A podcast for mothers of children with rare diseases to find strategies, strength, support, and sisterhood! Nikki McIntosh, founder of Rare Mamas, author of the book Rare Mamas: Empowering Strategies for Navigating Your Child's Rare Disease, and podcast host, discusses rare disease parenting with mothers who have navigated their children's rare disease diagnoses with remarkable resilience. Catch an episode of Rare Mamas Rising and walk away encouraged, uplifted, and empowered!2021 Crianza y Familias Higiene y Vida Saludable Psicología Psicología y Salud Mental Relaciones
Episodios
  • Introducing Rare Mamas: A Rare Disease Parenting Book by Nikki McIntosh
    Jul 23 2025

    RARE MAMAS RISING- EPISODE 50

    Introducing Rare Mamas: A Rare Disease Parenting Book by Nikki McIntosh

    Nikki McIntosh—rare disease mom, advocate, caregiver, and founder of Rare Mamas—shares her biggest news yet: the upcoming release of her debut book, Rare Mamas: Empowering Strategies for Navigating Your Child’s Rare Disease, launching September 23rd.

    This heartfelt and practical rare disease parenting book is written for mothers of children with rare diseases who are navigating the overwhelming world of rare diagnoses, caregiving responsibilities, and medical advocacy. Tune in to hear the emotional story behind the book, what’s inside, and how you can be part of this powerful movement of support, strength, and sisterhood for rare disease moms.

    In this episode, Nikki shares:
    • Why she wrote Rare Mamas, a first-of-its-kind resource for moms raising children with rare diseases
    • What’s inside the book (28 chapters packed with caregiver tools, advocacy strategies, emotional support, and stories from lived experience)
    • How she kept writing through surgeries, hospital stays, exhaustion, and uncertainty
    • What this guide offers for parents of medically complex children—including guidance on healthcare, education, systems, and self-care
    • How to join the Rare Mamas Book Interest List and help share this support resource with the broader rare disease community

    Links & Resources Mentioned:

    • Join the Book Interest List: www.raremamas.com/book
    • Follow on Instagram: @rare_mamas
    • Become a Rare Mamas Ambassador – DM @rare_mamas or email nikki@raremamas.com to get involved

    CONNECT WITH NIKKI

    Facebook

    https://www.facebook.com/RareMamas1/

    Instagram

    https://www.instagram.com/Rare_Mamas/

    Website

    https://raremamas.com/

    Email

    info@raremamas.com

    PODCAST INFO

    podcast@raremamas.com

    Más Menos
    11 m
  • Holding On To Our Identity
    May 8 2025

    RARE MAMAS RISING- EPISODE 49

    Holding On To Our Identity

    with Rare Mama Nikki McIntosh


    In this empowering Mother’s Day episode of Rare Mamas Rising, host Nikki invites listeners into a raw, tender conversation about what it means to hold on to your identity while parenting a child with a rare disease. From personal reflections to stories from fellow rare moms, this episode explores the invisible shifts in identity and small but powerful ways to reconnect with who you are. Because this Mother’s Day, we’re celebrating the whole you— not just the caregiver, but the creative, the dreamer, the friend, the person. This episode is a tribute to the woman behind the diagnosis — a celebration of who you are, who you were, and who you’re becoming.

    CONNECT WITH NIKKI

    Facebook

    https://www.facebook.com/RareMamas1/

    Instagram

    https://www.instagram.com/Rare_Mamas/

    Website

    https://raremamas.com/

    Email

    info@raremamas.com

    PODCAST INFO

    podcast@raremamas.com

    Más Menos
    17 m
  • Spring Cleaning - Letting Go of Things that No Longer Serve Us
    Apr 10 2025

    RARE MAMAS RISING- EPISODE 48

    Spring Cleaning: Letting Go of Things That No Longer Serve Us

    with Rare Mama Nikki McIntosh


    In this uplifting episode of Rare Mamas Rising, Nikki invites you to embrace spring’s renewal by letting go of what no longer serves you—draining digital habits, old stress loops, unhelpful routines, and even relationships or thoughts that weigh you down. With personal insights and actionable steps, she guides Rare Mamas through clearing the clutter—mental, emotional, and physical—to make space for peace and strength. Tune in to discover how shedding these burdens can lighten your load and lift you up, because as spring blooms, so can we.

    CONNECT WITH NIKKI

    Facebook

    https://www.facebook.com/RareMamas1/

    Instagram

    https://www.instagram.com/Rare_Mamas/

    Website

    https://raremamas.com/

    Email

    info@raremamas.com

    PODCAST INFO

    podcast@raremamas.com

    Más Menos
    16 m
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