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Guys!!!

I’m stuck between sharing our journey and keeping it on the down low. I mean, part of me wants to just hide it all away. The other part of me knows every story told is a story that needs to be heard by someone.

I don’t wish the medical system and all the errors, time wasted, things forgotten…on anyone. It can be roadblock after roadblock. Should it be so hard?! No!!! Are we just a number?! Ummm, yup.

No one knows who the heck you are.

Family and friends have no idea how to handle your story. Sometimes, they don’t respond the way you would think. Or sometimes they just don’t have the care you would think they would. Sometimes you can tell they are like, oh here’s yet another problem BUT GUESS WHAT?! We are the ones living it. YESSSSS it’s another story. It’s our life!

Breaking the news to your kids that you don’t get to hit those milestones OR the kid that hit them and now get them taken away, is heartbreaking. The ins and outs of our medical woes. The ups and downs of this journey we’re on. The positive girl I am who still has the feelings that consume me in not my positive ways.

We are all living a story..

Tune in as I go a little deeper in to this thing called life!

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www.instagram.com/passionate.on.purpose