
Ep 1 - Taylor, Chapter 1: "The Story Before Mine"
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In the debut episode of Last Words Podcast, host Nic Main travels back to his home state of Indiana.
Here he sits down with Taylor, a previvor. Taylor is a 24 year old Li-Fraumini patient. Li-Fraumini syndrome predisposes Taylor to the risk of developing multiple cancers over her lifetime.
The National Institute of Health has stated that the five core LFS-related cancers that LFS patients are predisposed to are adrenocortical carcinomas (ACC), breast cancer, central nervous system (CNS) tumors, osteosarcomas, and soft-tissue sarcomas.
According to St. Jude,
50% of Li-Fraumeni patients will develop cancer before they are 30.
100% of Li-Fraumeni patients will develop cancer before they are 60.
Nic first heard Taylor’s story over 2 years ago when they were both volunteering for the same non-profit organization. That is when he knew when he launched Last Words Podcast, he wanted to bring her story to life.
His question was: what was life like for Taylor before her diagnosis?
In Chapter 1 of Taylor’s story, she recounts the lives of her father Bradley, aunt Jennifer, and younger sister Lexi. How she had to navigate the loss of her father and aunt, before she would ever receive her own diagnosis.
How her mother fought an uphill battle to uncover the truth in where these cancers came from.
And how her younger sister Lexi’s diagnosis would uncover the link between them all.
This is Last Words.
This is Taylor.