Episode Summary:

In this thought-provoking episode of the Dementia Caregivers Corner Podcast, host Juliah is joined by Dr Hannah Hussain, a Health Economist at the Office of Health Economics in London. Dr Hussain, who holds a PhD in health economics from the University of Sheffield and is a qualified pharmacist, shares her insights into the challenges that Black, Asian, and Minority Ethnic (BAME) communities face in accessing dementia care.

From cultural stigma and late diagnoses to language barriers and the overlooked role of unpaid carers, this episode dives deep into the structural and social factors that limit access to timely and culturally sensitive dementia support. Dr Hussain also highlights the importance of inclusive research and culturally competent care homes in addressing these disparities.

Key Topics Discussed:

• Barriers to dementia diagnosis and care in BAME communities
• Economic impact of unpaid caregiving on families and the healthcare system
• The need for culturally competent dementia services and inclusive research

Key Takeaways:

1. Cultural stigma and expectations in BAME communities can discourage families from seeking formal dementia care, contributing to late diagnoses and hidden burdens.
2. Unpaid carers in BAME households save the NHS substantial costs but often lack adequate support and recognition.
3. Culturally competent care and language access are essential for improving dementia services for diverse communities.

Resources Mentioned

https://www.dementiaresearcher.nihr.ac.uk/blog-challenges-of-dementia-care-for-ethnic-minorities-in-the-uk/

https://www.dementiaresearcher.nihr.ac.uk/blog-coping-with-distress-the-strength-of-caregivers/

https://www.dementiaresearcher.nihr.ac.uk/blog-the-economics-of-dementia/

Repost: This week sees the return of popular guest Isabel Baker, a retired clinical nurse consultant and author from Australia who has more fascinating insights to share about her work, and what she learned in her time as a dementia caregiver and how she helps others learn what is truly needed by those with dementia.

The conversation begins with the fascinating insight that many dementia symptoms can be caused by other issues and moves on to a discussion of Isabel’s C.O.R.E.C.A.R.E principles of caring for those with dementia.

Each letter is an important insight on its own, but it truly all about treating each person as an individual.

So, listen in, and learn about how to take care of the individual.

Find Isabel on LinkedIn here:

https://www.linkedin.com/in/isabel-baker-4770466b

Find more information about Isabel and her work here:

https://isabelbaker.net/

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Episode Summary:

In this episode of Dementia Caregivers` Corner Podcast, Juliah speaks with Mr. Dallas Dixon, who is living with dementia. Together, they explore how different stakeholders, such as policymakers, healthcare professionals, and caregivers can better support people with dementia.

Mr. Dixon shares his perspective on the misconceptions and misunderstandings surrounding dementia and discusses the aspects of identity that he believes remain untouched by the condition, which he attributes to his faith. He also talks about his journey as an author, including the inspiration behind his books, particularly The Dancing Dementia Dude, and the messages he hopes to share with the world.

Key Takeaways from This Episode

1. The importance of well-structured dementia policies that truly address the needs of those living with the condition.
2. The need for better education and awareness among healthcare professionals and caregivers to improve dementia care.
3. The power of faith, personal identity, and storytelling in reshaping the narrative around dementia.

Resources Mentioned

John: Chapter 14 verse 26

World Health Organization

Teepa Snow

https://podcasts.apple.com/nz/podcast/shes-brave-life-after-early-onset-alzheimers-claimed/id1710778347?i=1000679985387

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