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In this episode, I had the pleasure of speaking with Nina Prol, an experienced oncology nurse and SurvivingBreastCancer.org's amazing Pilates instructor. Nina has been a vital part of our community, offering free, virtual Pilates classes that are accessible to anyone.

We dive into the benefits of Pilates, especially for those undergoing cancer treatment. Nina shared how Pilates can help manage the side effects of treatments like chemotherapy, radiation, and hormonal therapies by promoting gentle movement and honoring the body's capabilities. She introduced the concept of "exercise snacks," which are short, manageable bursts of exercise that can be easily incorporated into daily routines.

Welcome to the conversation.

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Attend a free virtual Pilates class:

https://www.survivingbreastcancer.org/movement-mondays

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

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About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

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Genetic tests like 23andMe are perceived as a fun and engaging way to explore family history, However, the implications of genetic testing extend beyond mere curiosity about ancestry; they touch on the very fabric of our lives and the lives of our loved ones. For those who discover they carry genes associated with increased cancer risk, like Lesser, the stakes are high. It raises questions about proactive measures, such as screenings or preventive surgeries, and how these decisions affect not only the individual but also their family members. Lesser's narrative illustrates the emotional complexity of being a previvor—someone who has not yet developed cancer but carries a genetic predisposition. The conversations around such decisions often involve family dynamics, as loved ones grapple with the implications of their own genetic risks and the potential need for testing.

SURVIVINGBREASTCANCER.ORG

Attend a free virtual yoga class:

https://www.survivingbreastcancer.org/movement-mondays

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

Listen on: Apple Podcasts Spotify

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In the podcast episode, I speak with Kate Garcia and Jen Tipton, and discuss the significant role that yoga can play in the lives of breast cancer survivors and thrivers. Both Kate and Jen lead yoga classes for our SurvivingBreastCancer.org (SBC) community and they share their personal experiences and insights on how yoga can aid in healing and recovery.

• Restorative Yoga: Kate teaches restorative yoga classes that focus on gentle movements and breathing techniques. This style is particularly beneficial for individuals who may feel overwhelmed or disconnected from their bodies due to the stresses of cancer treatment. Kate emphasizes that restorative yoga can be challenging in its own right, as it requires participants to slow down and be present, which can be difficult in our fast-paced lives.
• DIEP Flap Yoga: Jen leads DIEP flap yoga classes specifically designed for individuals who have undergone DEIP flap surgery. This type of yoga addresses the unique physical challenges faced by those recovering from such surgeries, including tightness and discomfort in the chest and abdomen. Jen's personal experience with DIEP flap surgery allows her to connect with her students on a deeper level, providing tailored guidance and support.

SURVIVINGBREASTCANCER.ORG

Attend a free virtual yoga class:

https://www.survivingbreastcancer.org/movement-mondays

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

Listen on: Apple Podcasts Spotify

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In this episode of Breast Cancer Conversations, I, Laura Carfing, founder of survivingbreastcancer.org, delve into the critical topic of fertility preservation and genetic counseling for breast cancer patients. Joined by Alejandra Bernal, a genetic counseling student at the University of Pittsburgh, and Melissa Bourdius , a hereditary cancer counselor, we explore the intersection of cancer treatment, fertility, and genetics.

Alejandra shares insights from her research on how patients are informed about the risk of infertility due to cancer treatments and the role genetic counselors can play in this process. She highlights the importance of asking the right questions and involving a multidisciplinary team to ensure patients receive comprehensive information about their options.

Melissa discusses the genetic aspects of cancer, explaining how mutations in genes like BRCA1 and BRCA2 can increase cancer risk and affect family planning decisions. She emphasizes the importance of genetic counseling in helping patients understand their risks and make informed decisions about their treatment and future family planning.

It's all here for you in today's episode!

Resources:

• https://www.facingourrisk.org/support/insurance-paying-for-care/screening-and-prevention/fertility-preservation/overview
• https://www.allianceforfertilitypreservation.org/fertility-risks-from-treatment/
• https://www.thechickmission.org/ Information about grants and advocacy
• https://worththewaitcharity.com/resources/patient-education/ Has practical patient resources

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

Listen on: Apple Podcasts Spotify

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In this episode of Breast Cancer Conversations, host Laura Carfang welcomes Dr. Amy Morris, an ovarian cancer survivor and cancer researcher, to discuss navigating health and wellness post-cancer diagnosis. We delve into essential topics such as the side effects of treatments like chemotherapy, radiation, and hormonal therapies, including weight gain and the challenges of sudden menopause. Dr. Morris shares her unique insights from both her professional background in oncology and her personal journey as a survivor. Tune in for valuable information and support for those affected by breast cancer and their caregivers.

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

Listen on: Apple Podcasts Spotify

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In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Kathleen Moss, a nutritionist from Portland, Oregon, who shared her journey with breast cancer. Kathleen's story is both unique and insightful, as she was diagnosed with lobular breast cancer after a decade of screening and monitoring a shadow in her left breast. She detailed her experience with DCIS, the challenges of detecting lobular breast cancer, and the eventual discovery of invasive cancer following her mastectomy.

Kathleen provided an in-depth explanation of lobular breast cancer, highlighting its distinct characteristics and the difficulties in detection due to its non-lump formation. She also discussed the importance of advocacy and education, emphasizing the need for awareness around different breast cancer subtypes.

We delved into her surgical decisions, including her choice to forgo breast reconstruction in favor of a Goldilocks mastectomy, and the emotional and physical impacts of these choices. Kathleen's advocacy work with the Lobular Breast Cancer Alliance and her efforts to support and educate others through local advocacy teams were truly inspiring.

Kathleen also shared her personal experiences with her mother's breast cancer diagnosis and passing, and how it shaped her perspective on life and death. As we wrapped up, she updated us on her current health status and the ongoing surveillance for potential recurrence.

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

Listen on: Apple Podcasts Spotify

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In this episode of Breast Cancer Conversations, I had the pleasure of speaking with Dr. Kohli, the Director of Breast Surgery at Monmouth Medical Center in New Jersey. We delved into the multifaceted journey of breast cancer survivorship, emphasizing the importance of treating the whole person, not just the disease.

Dr. Kohli shared her insights on the increasing incidence of breast cancer in younger women and the importance of focusing on the quality of life for long-term survivors. We discussed the initial overwhelming phase of diagnosis and treatment decisions, and how crucial it is to consider mental and emotional health alongside physical health.

One of the key topics we explored was the decision-making process regarding surgery options—lumpectomy, mastectomy, and double mastectomy.

We also touched on the long-term management of side effects, particularly lymphedema. Dr. Kohli explained what lymphedema is, its risks, and the importance of early detection and proactive management. She introduced the use of bioimpedance spectroscopy for early detection and shared her approach to monitoring and managing this condition.

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

Listen on: Apple Podcasts Spotify

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I had the pleasure of speaking with Dr. Thomas Francel, a plastic surgeon specializing in breast reconstruction.

One of the key takeaways from our conversation was the importance of personalized care. Dr. Francel stressed that each patient's journey is unique, and decisions regarding reconstruction should be made based on individual circumstances, preferences, and medical needs. We also touched on the emotional aspects of recovery, sharing heartfelt stories of patients who found confidence and a sense of normalcy through successful reconstruction.

SURVIVINGBREASTCANCER.ORG

Attend a free virtual SurvivingBreastCancer.org event:
https://www.survivingbreastcancer.org/events

Follow us on Instagram
SurvivingBreastCancer.org: https://www.survivingbreastcancer.org/
Breast Cancer Conversations: https://www.instagram.com/breastcancerconversations/

About SurvivingBreastCancer.org: SurvivingBreastCancer.org, Inc. (SBC) is a federally recognized 501(c)(3) non-profit virtual platform headquartered in Boston with a national and global reach. Through education, community, and resources, SurvivingBreastCancer.org supports women and men going through breast cancer. We provide a sanctuary of strength, compassion, and empowerment, where those diagnosed with cancer unite to share their stories, learn invaluable coping strategies to manage wellness and mental health, and find solace in the unbreakable bond that fuels hope, resilience, and the courage to conquer adversity.

Listen on: Apple Podcasts Spotify

Support the show