Episodios

  • Prime Day in HD

    Prime Day in HD
    Jul 11 2025
    Here's the link for a list I made with Amazon Prime Day deals that you may find helpful: https://tinyurl.com/primedayinhd
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    27 m
  • Liv's Legacy with Esme & Gemma

    Liv's Legacy with Esme & Gemma
    Jul 3 2025
    Today, we’re honoring the life and legacy of Liv, a beloved HDYO Ambassador. Esme & Gemma join me to talk about mental health, advocacy, and the importance of continuing Liv’s mission.
    TW: Discussion of mental health challenges.
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    55 m
  • Ingrezza with Dwight Tapp of Neurocrine

    Ingrezza with Dwight Tapp of Neurocrine
    Jun 26 2025
    In this episode, Dwight Tapp, MS, PhD, MBA, CCRP, CRCP, FACHE, sits down with Lauren Holder to discuss the INGREZZA® expansion into the treatment of chorea associated with Huntington’s disease for adults and the development of INGREZZA SPRINKLE. Dwight is Associate Medical Director, Neurology, at Neurocrine Biosciences. Prior to joining the Medical Affairs team at Neurocrine Biosciences, Dwight worked in pharmaceutical, medical imaging and clinical trial management companies. He has advanced degrees in psychology, neuroscience and healthcare business administration, and completed fellowships and post-doctoral training in brain aging, dementia and neuroimaging. Dwight has conducted research in Alzheimer’s disease, Parkinson’s disease, tardive dyskinesia and Huntington’s disease.
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    28 m
  • This is Me Smiling with Sarah & Randy Foster

    This is Me Smiling with Sarah & Randy Foster
    Jun 19 2025
    To buy Sarah's new book, "This is Me Smiling", please click here.

    To find out more about Sarah and to follow her blog, please click here.
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    1 h y 11 m
  • Being United with Gracey

    Being United with Gracey
    Jun 12 2025
    Gracey shares how HD has become a part of her life since she met her boyfriend, Jake, and how she supports him, making them a united front against HD.
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    40 m
  • Spared with Lori Jones

    Spared with Lori Jones
    Jun 5 2025
    Lori Jones is the author of Spared: A Memoir of Risk and Resolve. In it, she delves into her personal journey growing up in a family affected by Huntington’s Disease (HD), exploring themes of inherited trauma, caregiving, and ethical dilemmas.

    You can visit her website here.

    You can buy her book on Amazon here.
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    31 m
  • POWERHD with Karmen T.

    POWERHD with Karmen T.
    May 22 2025
    If you would like to join POWERHD, please click here.
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    37 m
  • HDYO Congress 2025 - Keynote: Empowerment Through Gratitude

    HDYO Congress 2025 - Keynote: Empowerment Through Gratitude
    May 15 2025
    Jimmy Pollard closes HDYO's 2025 International Young Adult Congress with a speech on Empowerment Through Gratitude.

    You can watch the full video here.
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    1 h y 19 m