
The Invisible Kingdom
Reimagining Chronic Illness
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Narrado por:
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Meghan O'Rourke
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De:
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Meghan O'Rourke
Acerca de esta escucha
A landmark exploration of one of the most consequential and mysterious issues of our time: the rise of chronic illness and autoimmune diseases
A silent epidemic of chronic illnesses afflicts tens of millions of Americans: These are diseases that are poorly understood, frequently marginalized, and can go undiagnosed and unrecognized altogether. Renowned writer Meghan O’Rourke delivers a revelatory investigation into this elusive category of “invisible” illness that encompasses autoimmune diseases, post-treatment Lyme disease syndrome, and now long COVID, synthesizing the personal and the universal to help all of us through this new frontier.
Drawing on her own medical experiences, as well as a decade of interviews with doctors, patients, researchers, and public health experts, O’Rourke traces the history of Western definitions of illness, and reveals how inherited ideas of cause, diagnosis, and treatment have led us to ignore a host of hard-to-understand medical conditions, ones that resist easy description or simple cures. And as America faces this health crisis of extraordinary proportions, the populations most likely to be neglected by our institutions include women, the working class, and people of color.
Blending lyricism and erudition, candor and empathy, O’Rourke brings together her deep and disparate talents and roles as critic, journalist, poet, teacher, and patient, synthesizing the personal and universal into one monumental project arguing for a seismic shift in our approach to disease. The Invisible Kingdom offers hope for the sick, solace and insight for their loved ones, and a radical new understanding of our bodies and our health.
©2022 Meghan O'Rourke (P)2022 Penguin AudioLos oyentes también disfrutaron...
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Reseñas de la Crítica
“An authentically original voice and, perhaps more startlingly, an authentically original perspective….The book is not only a memoir of her illness, but also a document of years of research.” —Andrew Solomon, National Book Award-winning author of The Noonday Demon, in The New York Times Book Review
“The Invisible Kingdom is an important and powerful book in many ways, but perhaps its most valuable contribution is the way it articulates the loneliness and frustration of having symptoms that superficially resemble the pains and pressures of contemporary life in the United States while being much more severe.”—The Nation
“[O’Rourke] gives shape and color to the invisible life of patients whom society has failed. She offers hope for patient-driven change. Most important, she provides an account that many will be able to relate to—a ray of light into those isolated cocoons of darkness that, at one time or another, may afflict us all.” —The Wall Street Journal
Featured Article: Best of the Year—The 15 Best Bios and Memoirs of 2022
There are few stories more compelling or more intimately told than those soul-baring memoirs that seek not just to recount the experiences of one's own life, but to draw some greater commentary on the big existential questions. What does it mean to be human? What is our purpose in being here? How much of who we are is purely self-determined? Exceptional in both their prose and narration, these listens represent a few of the year's best memoirs.
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A riveting and candid account of a young journalist's awakening to a life of chronic illness, weaving together her personal story with reporting to shed light on how Americans live with long-term diagnoses today.
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Excellent book
- De LZ en 02-14-21
De: Tessa Miller
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Medical Gaslighting
- How to Get the Care You Deserve in a System That Makes You Fight for Your Life
- De: Ilana Jacqueline
- Narrado por: Lori Prince
- Duración: 8 h y 49 m
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For women, the possibility of experiencing medical gaslighting—having a healthcare provider dismiss or ignore their concerns without considering appropriate testing or creating a treatment plan—has always been a very real and present danger, with consequences ranging from self-doubt and emotional stress to delayed diagnosis and death. And being a woman of color, transgender, or disabled only compounds the risk. In Medical Gaslighting, you’ll equip yourself with the tools you need to be fully heard at every step of the process.
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This should be required reading
- De Amazshop .222222 en 10-02-24
De: Ilana Jacqueline
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How to Be Sick (Second Edition)
- A Buddhist-Inspired Guide for the Chronically Ill and Their Caregivers
- De: Toni Bernhard
- Narrado por: Deon Vozov
- Duración: 7 h y 22 m
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In 2001, Toni Bernhard got sick and, to her and her partner’s bewilderment, stayed that way. As they faced the confusion, frustration, and despair of a life with sudden limitations - a life that was vastly different from the one they’d thought they’d have together - Toni had to learn how to be sick. In spite of her many physical and energetic restrictions (and sometimes, because of them), Toni learned how to live a life of equanimity, compassion, and joy.
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Essential read for anyone sick/in pain
- De MJ en 10-01-19
De: Toni Bernhard
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The Lady's Handbook for Her Mysterious Illness
- A Memoir
- De: Sarah Ramey
- Narrado por: Eileen Stevens, Sarah Ramey
- Duración: 13 h y 16 m
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In her harrowing, defiant, and unforgettable memoir, Sarah Ramey recounts the decade-long saga of how a seemingly minor illness in her senior year of college turned into a prolonged and elusive condition that destroyed her health but that doctors couldn't diagnose or treat. Worse, as they failed to cure her, they hinted that her devastating symptoms were psychological. The Lady's Handbook for Her Mysterious Illness is a memoir with a mission: to help the millions of (mostly) women who suffer from unnamed or misunderstood conditions.
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💯 a valuable use of your money AND time. 💯
- De Amazon Customer en 06-14-20
De: Sarah Ramey
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When Chronic Pain & Illness Take Everything Away
- How to Mourn Our Losses
- De: Esther Smith
- Narrado por: Sarah Carleton
- Duración: 1 h y 39 m
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Chronic pain, illness, and disability take so much away. Sometimes it seems as though they take everything we have ever loved and held dear. Our physical abilities and our jobs. Our current passions and future dreams. Our finances and our friends. Our sense of community and our ability to engage the world in ways we could before. Chronic pain takes away our sense of self and who we always thought ourselves to be. How in the world are we supposed to deal with this fact?
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When chronic pain and illness take everything away
- De barbara cruz en 04-03-18
De: Esther Smith
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Long Illness
- A Practical Guide to Surviving, Healing, and Thriving
- De: Meghan Jobson MD PhD, Juliet Morgan MD
- Narrado por: Ellen Archer
- Duración: 11 h y 8 m
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Drs. Meghan Jobson and Juliet Morgan specialize in treating long illness; from their work on the frontlines with long COVID, they know that all long illnesses shares many of the same hallmarks. Using evidence-based integrative medicine, they have put together a program that legitimizes long illness and validates concerns where other physicians often dismiss them. In Long Illness, you’ll find an unparalleled, holistic approach to healing.
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The most singularly amazing & helpful book!
- De view en 04-09-24
De: Meghan Jobson MD PhD, y otros
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The Long Goodbye
- A Memoir
- De: Meghan O'Rourke
- Narrado por: Meghan O'Rourke
- Duración: 6 h y 53 m
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What does it mean to mourn today, in a culture that has largely set aside rituals that acknowledge grief? After her mother died of cancer at the age of 55, Meghan O'Rourke found that nothing had prepared her for the intensity of her sorrow. In the first anguished days, she began to create a record of her interior life as a mourner, trying to capture the paradox of grief - an endeavor that ultimately bloomed into a profound look at how caring for her mother during her illness changed and strengthened their bond.
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Really great. Loved it.
- De Pamela Harvey en 04-18-11
De: Meghan O'Rourke
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Through the Shadowlands
- A Science Writer's Odyssey into an Illness Science Doesn't Understand
- De: Julie Rehmeyer
- Narrado por: Julie Rehmeyer
- Duración: 11 h y 10 m
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Julie fully expected to be breathing at the end of the trip - but driving into Death Valley felt like giving up, surrendering. She'd spent years battling a mysterious illness so extreme that she often couldn't turn over in her bed. The top specialists in the world were powerless to help, and research on her disease, chronic fatigue syndrome, was at a near standstill. Having exhausted the plausible ideas, Julie turned to an implausible one. Going against both her instincts and her training, she followed the advice of strangers she'd met on the Internet.
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Gives me a whole new respect for patients w this
- De JJ Edwards en 11-13-22
De: Julie Rehmeyer
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Strangers to Ourselves
- Unsettled Minds and the Stories That Make Us
- De: Rachel Aviv
- Narrado por: Andi Arndt
- Duración: 7 h y 41 m
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In a powerful and gripping debut, Rachel Aviv raises fundamental questions about how we understand ourselves in periods of crisis and distress. Drawing on deep, original reporting as well as unpublished journals and memoirs, Aviv writes about people who have come up against the limits of psychiatric explanations for who they are. Animated by a profound sense of empathy, Aviv’s exploration is refracted through her own account of living in a hospital ward at the age of six and meeting a fellow patient with whom her life runs parallel—until it no longer does.
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Just Falls Short ...
- De Jenny Jenkins en 01-15-23
De: Rachel Aviv
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The Deep Places
- A Memoir of Illness and Discovery
- De: Ross Douthat
- Narrado por: Ross Douthat
- Duración: 6 h y 2 m
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In the summer of 2015, Ross Douthat was moving his family, with two young daughters and a pregnant wife, from Washington, DC, to a sprawling farmhouse in a picturesque Connecticut town when he acquired a mysterious and devastating sickness. It left him sleepless, crippled, wracked with pain - a shell of himself. After months of seeing doctors and descending deeper into a physical inferno, he discovered that he had a disease which, according to CDC definitions, does not actually exist.
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Excellent!!
- De D en 11-09-21
De: Ross Douthat
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Disability Visibility: First-Person Stories from the Twenty-First Century
- Unabridged Selections
- De: Alice Wong
- Narrado por: Alejandra Ospina, Alice Wong
- Duración: 8 h y 1 m
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One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent - but all are underrepresented in media and popular culture. Now, just in time for the 30th anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.
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Missing stories
- De Adrianna A. en 11-19-20
De: Alice Wong
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His Truth Is Marching On
- John Lewis and the Power of Hope
- De: Jon Meacham, John Lewis - afterword
- Narrado por: JD Jackson, Jon Meacham
- Duración: 10 h
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An intimate and revealing portrait of civil rights icon and longtime US congressman John Lewis, linking his life to the painful quest for justice in America from the 1950s to the present - from the Pulitzer Prize-winning author of The Soul of America.
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Absolutely remarkable!
- De Janie en 08-30-20
De: Jon Meacham, y otros
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All in Her Head
- The Truth and Lies Early Medicine Taught Us About Women’s Bodies and Why It Matters Today
- De: Elizabeth Comen
- Narrado por: Anna Caputo
- Duración: 13 h y 25 m
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For as long as medicine has been a practice, women's bodies have been treated like objects to be practiced on: examined and ignored, idealized and sexualized, shamed, subjugated, mutilated, and dismissed. The history of women’s healthcare is a story in which women themselves have too often been voiceless—a narrative instead written from the perspective of men who styled themselves as authorities on the female of the species, yet uninformed by women’s own voices, thoughts, fears, pain and experiences.
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Historical and hopeful
- De Meghan Hurley en 10-26-24
De: Elizabeth Comen
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Between Two Kingdoms
- A Memoir of a Life Interrupted
- De: Suleika Jaouad
- Narrado por: Suleika Jaouad
- Duración: 13 h y 2 m
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In the summer after graduating from college, Suleika Jaouad was preparing, as they say in commencement speeches, to enter “the real world”. She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone. It started with an itch - first on her feet, then up her legs, like a thousand invisible mosquito bites. Then a trip to the doctor and, a few weeks shy of her 23rd birthday, a diagnosis: leukemia, with a 35 percent chance of survival.
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This was painful.
- De Meredith Nutrition en 07-31-22
De: Suleika Jaouad
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The Way Out
- A Revolutionary, Scientifically Proven Approach to Healing Chronic Pain
- De: Alan Gordon, Alon Ziv
- Narrado por: Alan Gordon
- Duración: 4 h y 50 m
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Alan Gordon, a psychotherapist and the founder of the Pain Psychology Center in Los Angeles, was in grad school when he started experiencing chronic pain and it completely derailed his life. He saw multiple doctors and received many diagnoses, but none of the medical treatments helped. Frustrated with conventional pain management, he developed Pain Reprocessing Therapy (PRT), a mind-body protocol that eliminated his own chronic pain and has transformed the lives of thousands of his patients.
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An Amazing Book
- De Steven D. en 09-05-21
De: Alan Gordon, y otros
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Empire of AI
- Dreams and Nightmares in Sam Altman's OpenAI
- De: Karen Hao
- Narrado por: Karen Hao
- Duración: 17 h y 50 m
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When AI expert and investigative journalist Karen Hao first began covering OpenAI in 2019, she thought they were the good guys. Founded as a nonprofit with safety enshrined as its core mission, the organization was meant, its leader Sam Altman told us, to act as a check against more purely mercantile, and potentially dangerous, forces. What could go wrong?
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Large focus on individuals' perceived social issues
- De Alice Thompson en 05-28-25
De: Karen Hao
Chronic illness
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Knowledge is power!
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Insight into auto-immunity disease
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Comforting, Validating with Fact Finding Reports
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So informative!
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Such an insightful book
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I was healthy until a head injury! Eds and ptsd and TBI…
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I was riveted by the narrative. I have known several people whose lives resemble Meghan O’Rourke’s. Going from doctors to spiritualists to nutritionists, etc.
My best friend is a primary care physician who talks about the broken system even as she advocates for her patients - patients that no other doctor will see. Hers are the difficult patients, one’s who are not healing, who are cranky and I’ll-tempered from a lifetime of inept medical care. Whose minds are filled with fear and loss and weariness. Who seek hope where none is available.
My friend is no fan of our way of working with healing, and set out to change it. Now she is slowing (well not so slowly) going bankrupt as her care far exceeds the payments made for it.
She works 7 days a week, and I worry for her.
This book has opened my eyes to so many things. Why the “wellness” model is so very inadequate for most Americans. Why the need for Universal Health Care is so necessary. Why treating the whole person, the whole family, and the whole community is necessary.
COVID-19 has changed us forever. Yet for Meghan and thousands of others it was another SNAFU. Long-COVID will demand - is demanding that the US health Care System change now. We must take Ms. O’Rourke’s message to heart. For far too many of us are suffering, everyday. Far too much potential is lying prone unable to stand, let alone work.
Listening to this unending story was uncomfortable for me. I am uncomfortable with illness, with illness that is unrelenting. I do not know what to say. I too have subscribed to the “meaning in the illness” narrative. I have not known what to say at the bedsides of my friends.
I still do not know, but simply sit and hold hands in the silence.
Every time I walk into a store I am repulsed by the amount of chemicals inside, chemicals that go into our ground water and into our bodies, and into every living creature on this planet.
Meghan reveals how fragile life is. In her well-told revelations I found myself leaning in, wishing to understand, but also not to turn away. Somehow, in this story I found the endurance to listen, to let the story work me. I am changed. I am sorry. I am humbled that this is not my story, and hope it never will be.
I am also grateful to know more than I did yesterday. I will also be thinking about healing, it’s many forms. This is a book I will be recommending often. It is important.
Humbling. Heart-Opening. Disturbing.
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Milestone of understanding
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Gripping and essential reading
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