Novedades

Greg Ryan details his journey through the trials of physical deformity and deep depression. A story of human courage, loneliness, enlightenment and joy He was born 54 years ago, by rights he could have died within the first few days as he had been born without an anal opening, with a rare condition called Imperforate Anus, also known as Anorectal Malformation. Fortunately for his family he was born in Melbourne Australia where the Royal Children’s Hospital was located and due to the incredible skills of their surgeons, they could perform marvellous life-saving surgery which gave him a ...

This book describes with raw honesty and deep emotion the journeys that families go on when their child is born with an Imperforate Anus (IA) also known as Anorectal Malformation (ARM). It is a rare congenital condition that affects ONE in 5000 births which is very rarely talked about or known in the wider community. It reveals the many difficulties both emotionally and physically that babies, children and adults living with IA/ARM endure. It is a book filled with love, courage, resilience and hope. It shows the importance of having access to good information and medical staff who are ...

'From the moment I received the call about Cathy-a young girl in excruciating pain with nowhere else to turn-my life was forever changed. When I arrived at the hospital to pick her up, the scene was heartbreaking. Cathy was in agony, unable to bend her legs or back due to the enormous tumour that had consumed her entire back. The nurses who had cared for her were in tears, overwhelmed by the suffering she endured. We tried to fit her into a small car, but it was impossible. Eventually, we arranged for an ambulance, not realizing that this moment would mark the beginning of an incredible ...

After being diagnosed with muscular dystrophy, Melissa Haugen felt alone. In an effort to make others feel seen, she vulnerably shares her personal story of living with muscular dystrophy.