ihateprofiles

I’ve been in this life for fifty years, been trying to work out its riddle for forty-two, and been keeping diaries of clues to that riddle for the last thirty-five. Notes about successes and failures, joys and sorrows, things that made me marvel, and things that made me laugh out loud. How to be fair. How to have less stress. How to have fun. How to hurt people less. How to get hurt less. How to be a good man. How to have meaning in life. How to be more me. Recently, I worked up the courage to sit down with those diaries.

Julie MacNeil is 6'4," and although she is neither a WNBA athlete nor a famous model, she has a remarkable story to tell. As an adopted child, she always wondered about the parents who gave her up. After overcoming a challenging childhood and surviving two tumultuous marriages, a chance DNA test revealed an incredibly rare and life-threatening liver-lung disease called alpha-1 antitrypsin deficiency. Julie then embarked on a difficult journey to find her birth family. Her goal was to warn them about the disease, which is highly genetic and often undiagnosed.